In the News

December

Popular Science, 12/06/18

--The gene-edited Chinese twins represent a multi-generational ethical quandary

This piece explores whether the parents of the twins reportedly created using CRISPR were appropriately advised of the risks of the undertaking. Kelly Ormond, professor of genetics, is included here. 

 

November

Associated Press, 11/27/18
--Q&A on scientist’s bombshell claim of gene-edited babies
A scientist in China announced that he had created the world’s first genetically edited babies, twin girls who were born this month. Hank Greely, with the Stanford Center for Biomedical Ethics and director of the Center for Law and the Biosciences, provides comment in this Q&A. 

 

Los Angeles Times, 11/26/18
--Why geneticists say it’s wrong to edit the DNA of embryos to protect them against HIV
This Q&A with Michael Snyder, the Stanford W. Ascherman, MD, FACS, Professor and chair of genetics, explores the science and ethics of editing DNA in human embryos following reports of the first genetically modified humans in China. Hank Greely, with the Stanford Center for Biomedical Ethics and director of the Center for Law and the Biosciences, also provides comment on the subject in a CNBC piece

 

Reuters, 11/20/18
--BioMarin sets stage early for hemophilia cure off-Broadway
BioMarin Pharmaceutical Inc. is turning to the theater to establish its name with hemophilia patients, long before its experimental cure for the bleeding disorder could reach the market. Alyssa Burgart, pediatric anesthesiologist and bioethicist, is quoted here. 

 

Scope, 11/20/18
--Proposal to include the price of drugs in television ads is flawed, Stanford scholar writes
A proposed federal rule to require direct-to-consumer television ads for prescription drugs to include pricing information could dissuade patients from seeking care after they see high prices and the prices may not accurately reflect how much they would pay. Michelle Mello, professor of law and health research and policy, is a co-author of a perspective piece here. 

 

Shots (NPR), 11/15/18
--Startup offers to sequence your genome free of charge, then let you profit from it
A new company allows customers to retain full ownership of their genome after it’s sequenced. Hank Greely, with the Stanford Center for Biomedical Ethics and director of the Center for Law and the Biosciences, offers insights.

 

Scope, 11/15/18

--In the Spotlight: At the intersection of tech, health and ethics

This In the Spotlight features Nicole Martinez-Martin, a postdoctoral fellow in biomedical ethics, who is investigating industry standards for digital phenotyping, or using information from smartphones or other devices to make health assessments. 

 

New York Times, 11/12/18

--Something happened to U.S. drug costs in the 1990s

Michelle Mello, professor of law and of health research and policy, is quoted in this piece on U.S. prescription drug spending.

 

Scope, 11/01/18

--Understanding AFib: Drugs and procedures to help restore a normal rhythm

In the latest installment in the series Understanding AFib, Randall Stafford, professor of medicine and director of the Program on Prevention Outcomes and Practices, explains how medications, procedures and pacemakers can be used for atrial fibrillation.

Read More in SCBE News

Advanced Health Care Directive

California law give you the ability to ensure that your health care wishes are known and considered if you become unable to make these decisions yourself. Completing a form called an “Advance Health Care Directive” allows you to do a number of things:

Appoint another person to be your health care “agent”

Delineate your health care wishes, such as:

  • Health care instructions, including life support, organ and tissue donation
  • Revoke prior directives

A sample form is attached for reference. Acknowledgment before a notary public is not required if two qualified witnesses have signed this Directive in Part 5. In other words this is a free legally binding document.

Upcoming Events

SCBE Brown Bag

Tuesday, December 11, 2018, Noon
Barbara Koenig, PhD
Professor of Medical Anthropology and Bioethics Department of Social and Behavioral Sciences, Institute for Health and Aging, UCSF
Topic: "Should Every Newborn Be Sequenced at Birth?"

More events

Medicine & the Muse Program

Click here to learn more 

Ways to Give Gifts

A gift may be made in the form of a check, securities, a bequest, or a complex trust arrangement designed to maximize tax advantages. Checks should be made payable to Stanford University.

For financial donations, please contact the Stanford Center for Biomedical Ethics at
650-723-5760.