Dr. Porteus is an Associate Clinical Professor and attends at the Lucille Packard Children’s Hospital where he takes care of pediatric patients undergoing hematopoietic stem cell transplantation. He completed his combined MD, PhD at Stanford Medical School, and residency in Pediatrics at Boston Children’s Hospital. For his fellowship and postdoctoral research, he applied homologous recombination as a strategy to correct disease causing mutations in stem cells as definitive and curative therapy for children with genetic diseases of the blood, particularly sickle cell disease. His research program continues to focus on developing genome editing by homologous recombination as curative therapy for children with genetic diseases but also has interests in the clonal dynamics of heterogeneous populations and the use of genome editing to better understand musculoskeletal diseases.
Keith Wailoo, PhD is Henry Putnam University Professor of History and Public Affairs. He is jointly appointed in the Department of History and in the Princeton School of Public and International Affairs. He is former Vice Dean of the School of Public and International Affairs, former Chair of History, and current President of the American Association for the History of Medicine (2020-2022). His research straddles history and health policy, touching on drugs and drug policy, on the politics of race and health, on the interplay of identity, ethnicity, gender, and medicine, and on controversies in genetics and society. His next book, to be published in 2021, is Pushing Cool: Big Tobacco, Racial Marketing, and the Untold Story of the Menthol Cigarette (University of Chicago Press).
Holly Fernandez Lynch, JD, MBE, is the John Russell Dickson, MD Presidential Assistant Professor of Medical Ethics in the Department of Medical Ethics and Health Policy at the Perelman School of Medicine, University of Pennsylvania. A lawyer and bioethicist by training, her scholarly work focuses on the ethics and regulation of research with human subjects and related issues, including access to investigational therapies outside clinical trials before they have been approved by the FDA. She is the founder and co-chair of the Consortium to Advance Effective Research Ethics Oversight (AEREO), which aims to understand, evaluate, and improve IRB quality and effectiveness. During the COVID-19 pandemic, she has focused on FDA policy, drug and vaccine development, ethical conduct of research and allocation of scarce investigational products.
Jason A. Delborne is Professor of Science, Policy, and Society and University Faculty Scholar at North Carolina State University, with appoints in the Department of Forestry and Environmental Resources in the College of Natural Resources and the Genetic Engineering and Society Center. He teaches and conducts research at the intersection of environmental policy, biotechnology, and public engagement, using qualitative research methodologies to explore how policymakers, stakeholders and members of the public interface with emerging biotechnologies designed for environmental benefit. Delborne was twice appointed to expert committees of the National Academies of Sciences, Engineering, and Medicine (NASEM), which published Gene Drives on the Horizon (2016) and Forest Health and Biotechnology (2019). Recent projects have focused on the genetically engineered chestnut tree, a gene drive mouse for biodiversity conservation, and the management of free ranging cats in National Parks.
Jantina de Vries is an Associate Professor in Bioethics at the Department of Medicine of the University of Cape Town. Her work focuses on developing ethical best practice for collaborative health research in Africa, with a particular emphasis on genomics and biobanking. Amongst others, she has contributed to developing an evidence base for best practice in informed consent for African genomics research, investigating ethical challenges relating to the sharing of African samples and data, exploring what constitutes fairness and equity in African research collaborations, and studying how genomic research may impact on stigma relating to disease. Jantina co-directs the IFGENERA H3Africa ELSI Collaborative Centre. She was the founding Chair of the H3Africa Working Group on Ethics (2013-2016) and is a member of: the Research Ethics Board of Médecins Sans Frontières, the World Health Organization Expert Advisory Board on Genome Editing, the Steering Committee of the Global Forum for Bioethics in Research, the H3Africa Steering Committee and the Advisory Board for the Center for ELSI Resources and Analysis (CERA) based at Stanford University.
Dr. Erika “Ann” Jeschke, PhD is currently working with the Air Force Research Lab, the Army Institute for Surgical Research, and Navy Medical Research unit on a program of research to develop a broader understanding of the impact of catastrophic injury exposure on various forward surgical trauma teams in the United States Military. The goal of this research is to develop a theory of performance for trauma medicine that is framed by culturally sensitive and salient attributes of well-being. She also serves as an ethics consultant to Special Operations Medicine Prolonged Field Care Working Group and is a Fellow at the University of Chicago MacLean Center for Clinical Medical Ethics. Her research is grounded in the following question: What does it mean to care amidst violence? Relying on medical humanities and anthropology, she seeks to expand the medical context of caring beyond the clinical context and physician-patient dyad to include communal healing rituals as a means of restoring social identity and social justice after experiences of collective trauma.
Jacqueline Genovese, Colleen Cuddy, and Suzette Shipp
Jacqueline Genovese, MFA is Executive Director of the Medicine and Muse program. She leads a Literature and Medicine Series for Stanford physicians as well as a War Literature and Writing seminar for Stanford Military affiliated students.
Colleen Cuddy, MA is the Director of Research and Academic Collaboration at Lane Medical Library, Stanford University where she oversees data research and access services, user experience and communication as well as the Medical History Center.
Suzette Shipp, MSc works as a Life Science Technologist in the Lorry Lokey Stem Cell Research Building and is a lifelong pursuer of racial justice in the Kingian Nonviolence tradition.
Mia Keeys, MA is the first director of health equity policy and advocacy of the American Medical Association’s Center for Health Equity. She is the former policy director of the Congressional Black Caucus Health Braintrust and health policy advisor to Congresswoman Robin Kelly (D-IL).Previously, Mia has also been a Kaiser Family Foundation Barbara Jordan Health Policy Scholar; a Fellow for the City of Philadelphia in the Deputy Mayor’s Office for Health and Opportunity; an HIV/AIDS researcher in South Africa; and a U.S. Fulbright Fellow to Indonesia, where she worked on education and public health initiatives on behalf of youth and their families for three years. The National Minority Quality Forum recognizes Mia as a 40 Under 40 Leader in Minority Health. The National Academy of Medicine features Mia’s children’s book on health equity—titled Cole Blue, Full of Valor—in their 2017 national exhibit, “Visualizing Health Equity.” Her work on youth and the imagination is featured in a TEDx Talk, titled “A Racial Imagination Quotient”. Mia holds Bachelor of Arts degrees in English and Psychology from Cheyney University, and a Master of Arts degree in Medical Sociology from Vanderbilt University, where she was a Robert Wood Johnson Foundation Health Policy Fellow through Meharry Medical College. She is currently a doctoral student at The Milken Institute School of Public Health at The George Washington University. Mia is also a creative non-fiction writer, with training from the University of Oxford in the United Kingdom. She is originally from Philadelphia, PA.