Clinic Visits

If this is your first visit here at the Center, you probably have lots of questions...

  • What will happen?
  • Who will I see?
  • Where do I go?
  • Why are they doing that?
  • How will I ever remember all of this?

Hopefully, this guide will help you to understand some of what has to be done.

Pediatric Clinic Information

Location: Map to Palo Alto Clinic
770 Welch Rd, Suite 380, Palo Alto, CA  94304
Parking: Behind the building at 770 Welch Rd.

Location: Map to Emeryville Clinic
6121 Hollis Street, Suite 2, Emeryville, CA  94608

Information to Bring to Each Clinic Visit

  1. Insurance card
  2. Authorization from your HMO or PPO
  3. Name and phone number of at least one contact person
  4. List of current medications
  5. List of treatments currently done; respiratory treatments, feeding information
  6. Health history since last visit: include any illnesses (current or since last clinic visit), pediatrician visits, new medications or allergies
  7. Your list of questions or concerns
  8. Don't forget your PASSPORT  
People you will meet   
  • The receptionist will sign you in and let clinic staff know you are here. Don't forget to bring your insurance information.
  • The medical assistant will call you in and check vital signs: height, weight, temperature, pulse, respirations, blood pressure, and oxygen saturation.
  • The nurse will review medications and take a brief medical history.  Your doctor will do a physcial exam and further review your medical history and go over any recent illnesses, testing done at visit or prior to visit.  If testing was done at an outside facility, please bring records/DVD with you to visit. 
  • The nutritionist will help you with your diet, meal planning, food behaviors, enzyme dosing, and stooling issues.
  • The respiratory therapist will do spirometry tests, if you are old enough, that show how your lungs are functioning.  In addition, the RT will explain and review airway clearance choices, (CPT, Vest, Aeorbika), review cleaning of your respiratory equipment, which nebulizers go with certain medications, and sequence of nebulized medicaitons
  • The social worker will help you get connected to various resources, support groups, school documents, disability for college students, setting up 504 plans and/or accomodations for school, can refer for financial support.
  • The Pharmacist reviews current medication plan, discusses new treatment options and can help navigate the healthcare system to ensure access to medications.
  • The Office Assistant assists with scheduling, prior authorizations and insurance verification.
  • Additional Information
  • A sputum culture is done at every visit, if you are sick, additional testing will be ordered at visit.
  • Please let your CF team know if you need any refills on your medications. 
  • CF Action plan will be given and discussed with you prior to leaving.
  • You will be told when you should come back to clinic.
  • And the last step... the receptionist will make an appointment for your next clinic visit.

Some tests that are usually done:

  • Sweat chloride: a laboratory test used to assist with diagnosing Cystic Fibrosis
  • Spirometry: lung function tests
  • Chest x-ray: done annually to detect subtle changes in the lungs
  • Sputum culture: a test of the matter that is coughed up from the lungs
  • CF Annual studies: click here
  • Palo Alto Office
  • Pediatric CF Coordinator (Mary) CF Clinic Nurse (Liz) 650-736-1359 -Office hours phone line: 8-4pm
  • CF Clinic Office Assistant (Laura) 650-498-2655, Office hours 8:30-5pm
  • After Hours and Weekend (URGENT Pulmonary Problems) 650-497-8000 (ask for Pulmonary Physician on call).
  • Appointments 650-724-4788
  • Bone Density (Dexa) For your first DEXA call 650-497-8376, Previously done call 650-723-6855
  • PFT (Full PFT's) 650-497-8655
  • Pulmonary Office (Lara): 650-723-8325
  • Social Services (Pediatric Teresa) 650-736-1905
  • Dietitian (Pediatrics-Julie) 650-736-2128
  • Respiratory Therapist  650-724-0206
  • Pediatric Pharmacist (Russell) 650-505-9419
  • Outpatient Pharmacy 650-497-8289
  • Outpatient Laboratory 650-497-8614
  • Emeryville Office
  • Nurse Coordinator, (DJ Kaley) 650-724-8414, Office hours 8-5 M-F
  • Respiratory Therapist/Pulmonary Function Tech (Lorraine) 510-587-9631, Office hours Tues-Fri 8-4:30
  • Social Work,(Cleo) 510-361-7504, Office Hours 8-4:30 Tues/Thurs, 8-noon Fridays
  • Dietitian,(Johanna) Office Hours Tuesday/Thurs 8-4:30

Adult Clinic Information

If this is your first visit here at the Adult Cystic Fibrosis Center, you probably have a lot of questions.  This guide will help you understand some of our clinic operations.

Location: Map

The Clinic is located at 300 Pasteur Drive on the 1st floor of Boswell Building, located across from the water fountain.

Parking:  The parking structure is located across from the water fountain (Pasteur Dr. and Blake Wilbur)

What to Bring: (helpful information for each clinic visit)

  • Insurance card
  • Authorization letter from your HMO or PPO (if available)
  • Name and number of at least one contact person
  • List of current medications with dosage and frequency of daily use
  • List of treatments (inhaled medications/mechanical airway clearance) currently performed
  • Name and address of the pharmacy that you plan to use for your medications
  • Any pertinent test results from another center not included with your medical records
  • Your glucometer if you are using one
  • Your list of questions/concerns

People you will meet:

  • The Patient Coordinator will check you in and hand you relevant information about our clinic and let the nursing staff know you have arrived in the clinic...
  • The medical assistant will call you and check vital signs: height, weight, temperature, respirations, blood pressure, and oxygen saturation.
  • The respiratory therapist will see you first to perform spirometry.  Spirometry is used to measure lung function, and will be interpreted by the MD during your clinic visit.
  • The nurse coordinator will welcome you to our center and review your current medication, list allergies, and any tests that you had before coming to the center and orient you to the Adult Cystic Fibrosis Team members.
  • The Pulmonary Fellow or Nurse Practitioner will take a detailed medical history, and perform a physical examination, collaborate with the Attending Physician and then will return to your room to discuss and then implement the plan of care.
  • The Dietician will visit and assess your nutrition needs and meal planning.
  • The social worker will visit and assess your needs based on your current social supports and resources.
  • Our Attending Physician will oversee the plan of care through collaboration with the Cystic Fibrosis team members.

What to Expect:

  • Depending on the last time you had a chest X-ray and baseline blood work, you may be asked to complete these on your first visit.
  • A sputum culture will be collected.
  • You may be given new prescriptions.
  • Vaccinations may be administered depending on if you are due for one.
  • You will be advised when you should return to clinic for routine follow-up.
  • The respiratory therapist (RT) will talk to you about your airway clearance devices/methods (VEST, acapella, CPT, etc.).  The RT performs VEST fittings and orders new VEST’s for patients.
  • The nurse coordinator (RN) will speak with you again before you leave the clinic, review the plan of care, answer any final questions and direct you to check out.  
  • You will check out with the Patient Coordinator to schedule your follow up appointment.

Some tests that are usually done:

  • Genotype testing
  • Spirometry:  lung function test
  • Chest  X-ray or CT scan
  • Sputum culture:  a sample of sputum that you cough up will be sent to our microbiology lab.
  • Blood tests:  e.g. Serum lipids, liver function tests, vitamin levels, blood glucose tests.

We recommend: Please sign up for My Health with the Patient Coordinator so that we can reach you via email and release some diagnostic tests after they have been review by the Attending Physician.

CF Team Phone numbers:

  • Patient Call Line: 650-498-6840. Use for all sick calls, requests for any medication or equipment. Leave a message with your full name and contact information and a good time to have the call returned.  This patient line is checked regularly throughout the business day Monday through Friday
  • Clinic Appointments (new and existing patients): 650-736-5400
  • Adult Cystic Fibrosis Coordinator Katie and Mary Jane: 650-498-6840
  • After Hours and Weekends: 650-723-4000 Stanford University Hospital Main Number: Ask for the Pulmonary Fellow On-Call.
  • Return Appointments/Medication Authorization Questions:
  • Respiratory Therapy (Gauri):  650-736-8892
  • Social Services (Meg Dvorak): 650-723-6273
  • Dietitian (Michelle Stroebe): 650-529-5952

CF Team Responsibilities:

Adult Coordinator:  provides telephone triage and symptom assessment for all outpatient calls and works directly with the Attending MD to plan care, follows completion of home IV therapy, orders medication refills, orders nebulizers and  compressors, makes appointments and  referrals, renews for feeding orders, renews  oxygen orders, reviews  labs and cultures results. Works collaboratively with Primary care physicians, Endocrinology and ENT to facilitate patient care.

Respiratory Therapist: measures and orders Vests, provides CPT instruction for family members, provides instruction on Acapella, Flutter and other Airway Clearance devices.

MSW: psychological assessment and referral, disability petitions, financial resources, letters for employers

Dietician: follows all Cystic Fibrosis patients, available for consultation for concise diet and nutrition assessment and education, carb counting assistance and vitamin supplementation assessment.

Nurse Practitioner: provides direct patient care through assessment, diagnosis and treatment plan in collaboration with Attending MD.