About the Council

Council History:
The idea for an Adult Cystic Fibrosis Advisory Council (ACFAC) was conceived by Dr. David Weill when he became involved in the care of adult cystic fibrosis patients in 2008.  He had previously worked as Medical Director of the Lung Transplant Program at the University of Alabama at Birmingham where a CF advisory council had been established.  Dr. Weill felt a similar council could be an asset to both the Stanford Medical Center (SMC) and adult CF community since a new CF adult clinic was being established at SMC.

Dr. Weill first presented this idea to the CF community at large at the 2009 Stanford Education Day.  Over the next few months he met with interested members to explore the need for and level of interest in an advisory council.  In the fall of 2009, at approximately the same time as the new CF adult clinic opened, the council became a reality as a group of 2 CF adults and 3 parents began the process of writing the ACFAC mission statement and bylaws and developing a brochure to introduce the CF community to the newly established council.

Mission statement:
The Stanford Adult CF Advisory Council (ACFAC) provides feedback to and partners with members of the healthcare team to improve the patient and family experiences and care at Stanford University Hospital. The Advisory Council is committed to the betterment and excellence of the entire Cystic Fibrosis Center at Stanford including pediatric, transitional, and adult care at Lucile Packard Children’s and Stanford University Hospitals.

How to Contact the Stanford Adult CF Advisory Council
Address:
Stanford Adult CFAC
c/o Colleen Dunn
770 Welch Rd, Suite 350
Palo Alto, CA 94304
Email: stanfordcfac@gmail.com
Phone: (650) 549-5102