Clinics

We need your help!

The Pediatric CF Center continues to take part in the CFF (Cystic Fibrosis Foundation) quality improvement initiative XOC (Experience of Care survey).  There has never been a better time to share your thoughts and feedback!  We want to hear from YOU!  Providing the best experience of care to our patients and families is important to us.  We are excited to participate and ask for your support.

Designed by a committee of care team members, adults with CF, and parents from across the country, the survey includes questions about infection prevention and control the way the care team responds to your questions and concerns, care planning, and overall communication and quality of the care experience.  This survey is short, easy to take, and asks about in-person and virtual-care experiences.  The feedback and comments captured in the survey will let us know what is most important to you, build trust and improve care.  Creating a better care experience is important to the whole team-patients and families, clinicians, and professional staff.

Your responses to the survey will be kept anonymous and will not be linked to you or your child's name or birthdate.  You will be surveyed following an in-person clinic visit and/or a telehealth visit (by phone or video).  We have discontinued sending SMS text messages and emails; however, we will continue to collect XOC survey data by having you click on a QR code (see example).  The QR code (in English and Spanish) will be handed out at CF Clinic, and we ask that you take the survey right after the clinic visit.  We value your feedback!