Our Mission is to excel in cystic fibrosis care, to be partners with those we care for, and to be leaders in the discovery process that will produce the cure for cystic fibrosis
As Zoe and I prepare to retire, we would like to thank all of YOU who have participated in CF research over the past 29 years with us. Please know that you have made a difference for everyone in the CF community worldwide. We have treasured the many hours that we spent with you during your study visits, we loved hearing about you and your adventures, and seeing how our efforts have improved your lives over the years.
As we transition away from this program, we want to remind you, all of you, that there is still work to be done! So with that in mind, we would like to ask that when you are approached about potential participation in a new study to strongly consider joining.
Zoe and I are leaving this program in very good hands with Jackie Spano and Lani Demchak.
How was your clinic visit?
After a clinic visit, in-person or virtually, you will be invited to share your feedback in the Experience of Care Survey.
Expect a survey invite via text or email.
The CFF has asked us to report if patients have received the COVID vaccine. They are asking for the dates and manufacture. Please bring this to your next clinic visit if you have received the vaccine.