Role: Chairperson, Advisory Council Member since 2012
Residency: San Jose, CA
Brian holds a master of science in mechanical engineering from the University of Pittsburgh, and a BSME degree from Carnegie Mellon University. He has worked primarily in the PLM field, consulting with major companies around the world. He and his beautiful wife just celebrated their third wedding anniversary.
Diagnosed at age 7, Brian has attended CF clinics in 6 different states, and has participated in numerous research studies since moving to the west coast.
To assist in building a high-quality CF Adult Center at Stanford University Medical Center.
David "Shawn" Taylor
Role: Secretary, Advisory Council Member since 2015
Residency: Fremont, CA
I have a degree in business management and I own my own landscape construction company. I have been in the landscape field for over 30 years. I am going on my 12th year coaching shot put and discus for the Washington High School track team. I love playing the ukulele. My ukulele comes with me to the hospital at all times. I enjoy playing golf with my wife when my health allows me.
I was diagnosed at age 50, before that they just thought I had severe asthma but cound not understand why I was always sick. Our dog Luna helped get the doctors attention and to check to see if I had CF. I have represented the Stanford CF Advisory Board on a couple of National PFAC boards.
To help educate and to help find a cure for Cystic Fibrosis. To represent Stanford CF PFAC the best that I can
Elyse Elconin Goldberg
Role: CF Advisory Council Member since 2000 with a break between 2013-2018. Rejoined 2018 as the CF Post Transplant representative
Residency: Los Gatos, CA
I graduated from UC Davis with a degree in Urban Planning (1980) and received a Masters degree from the University of Southern California in Urban and Regional Studies (1981). After relocating to the Bay Area, I began a career in Marketing Communications working for several start up companies. I left the high-tech industry to start a family. I am married and have two grown children. Recently, I became a grandmother!
I currently co-chair the Lung and Heart/Lung Transplant Patient and Family Advisory Council along with being an active participant in the Peer 2 Peer mentoring program at Stanford for pre transplant patients. I serve on the Board of Cystic Fibrosis Research, Inc (CFRI) and I am also on the CFRI CF Adult Advisory Committee. I have been a patient at Stanford for 40 years and have participated in numerous research studies over the years. I joined the Cystic Fibrosis PFAC to educate the Council and the CF adult community about the double lung transplant journey and to work together to make our experience at the Cystic Fibrosis Clinic and Lung Transplnat Clinic at Stanford Hospital a positive, emotional and physical environment for Cystic Fibrosis patients.
Role: Membership Chairperson. Advisory Council Member since 2010
Residency: San Jose, CA
Colleen Dunn, RRT, RPFT, CCRC is a clinical research coordinator at Stanford University Hospital in Palo Alto, California. Colleen has worked at Stanford for more than 25 years as a respiratory therapist. Early on she specialized in pediatric and adult critical care. She has also spent more than 10 years of her career in pulmonary diagnostics, working with the pulmonary division performing pulmonary function tests on patients with cystic fibrosis.
In May 2000, she joined the cystic fibrosis center at Stanford as a research coordinator. The Stanford CF research program is very active, as they are a member of the Cystic Fibrosis Therapeutics Development Network. She has been active in the CFF, educating other coordinators and presenting at the annual conference.
Another important role she plays is CF Education Day Coordinator. Stanford has had a CF Education Day annually since 2000 bringing extensive information to local families and patients. She has been and continues to be very committed to bring new therapies to the CF community and hopefully being part of the cure.
Colleen wants to support the CF adults and provide continuity as young adults transition to the adult program and to support positive feedback to the clinicians in an effort to improve the care of adults at Stanford.
Role: Advisory Council Member since 2010
Residency: Cupertino, CA
After serving four years in the USAF and studying four years at Stanford University, Ed worked over 36 years in the financial securities industry before his retirement in 2005.
Ed has volunteered at Children’s Hospital, Lucille Packard Children’s Hospital & Stanford Medical Center. As a CF volunteer with backgrounds in both pediatric and adult patient populations, he is uniquely oriented to assist in advising the smooth transitions from a very dependent children’s atmosphere at Packard to a very self-direct adult environment at Stanford.
In order to ensure smooth, seamless transitions from pediatric to adult-care, Ed hopes to maintain a healthy, interactive sense of CF Community.
Role: Member of the adivosry council since 2018
Residency: Los Altos, CA
Amy holds a degree in History-Secondary Education with a P.E./Coaching Sports Minor. She was a stay at home mom for 18 years and then went back to work part-time as a teacher aide in a Kindergarten classroom. When she's not wrangling 5 and 6 years olds, you can find her reading.
Amy has 3 awesome kids, 2 of which have CF. Her oldest with CF is 22 years and is off at college. Her youngest with CF is 16 years old. Both have participated in many trials at Stanford. She has been involved with the pediatric advisory council for 8 years. She really enjoys working with the CF Community.
Role: Advisory Council Member since August 2018
Residency: Berkeley, CA
Olivia is a singer songwriter, and has recorded two albums of original music. She is also currently working on writing her first book. She speaks at CF fundraisers and shares her patient perspective with pharmaceutical companies like Genetech and Vertex. She lives in Berkeley with her fiance and new puppy, Rizzo.
Diagnosed at 17 months of age, Olivia attends Stanford's affiliate CF center at CPMC in San Francisco. She is passionate about advocating for the CF community through her music, writing and public speaking.
To bring the CF patient perspective into the decision making processes of the Stanford and CPMC CF clinics