Clinical Care

Directions to the Chest Clinic:

• Once you enter the Pasteur Drive Entrance (also known as the Fountain Entrance), you will find the Information Desk on your left-hand side.
• Right opposite to the Information Desk, you will follow the signs to the Ambulatory Care Clinic 2 (A13). Enter and follow signs to Chest Clinic Front Desk

Clinic Information:

• Return patient visits are held Wednesdays and Thursday afternoons from 12:30-3:30 PM
• New Patient visits are held Friday afternoons form 1:00-3:00 PM

MyHealth Registration: We encourage you to enroll in Stanford Health Care's MyHealth App. This allows for you to message your CF Team, review labs results, conduct patient visits via telehealth and more. Please visit this link to register prior to your New Patient Visit:

https://stanfordhealthcare.org/for-patients-visitors/myhealth.html

Clinic flow:

1. Check in with the front desk
2. Once you are roomed, Vitals are taken by the Medical Assistant.
3. The Respiratory Therapist comes in to do a Spirometry and talk about your AWC Therapy at home. Any supplies you need ordered for you will be addressed (such as Nebulizer cups, Compressor, Vest, PeP). If you have questions about your treatments at home, the RT will help you with education, handouts etc.
4. The Nurse Practitioner will assess your recent health history, review any updated labs/cultures/imaging, perform a physical exam and discuss the plan with the physician.
5. The Dietician, Social Worker, the Psychiatrist MD will meet with you as needed.
6. Attending MD will come and discuss your final visit and plan of care.

Infection Control:

We take infection control very seriously at the Adult Cystic Fibrosis Clinic. We ask that you wear a mask in all common areas of the Chest Clinic and maintain at least a 6 feet distance from all other patrons. Our team members will be wearing isolation gowns, masks and gloves for the duration of your clinic visit. We ask that patients with certain bacterial infections to be scheduled in the last clinic appointments of the day to prevent any possible transmission to other CF patients. Of note, during the novel Coronavirus pandemic, Stanford Health Care may augment the visitor policy. We encourage you to clarify with Guest Services prior to your clinic visit.

If you are feeling sick:

Contact the RN coordinator if you are having symptoms and we can schedule you for a video visit, telephone visit, in-person clinic visit or Emergency Room visit as appropriate. Do NOT send a myhealth message if you are feeling sick as myhealth is for non-urgent matters only. 

Clinic Adjustments During Covid-19 Pandemic: Throughout the Covid-19 Pandemic, your clinic visit may be transitioned from an in-person visit to a telehealth visit. Our staff will contact you either by phone or via MyHealth if your appointment type will need to be adjusted. Thank you in advance for your understanding and patience

1. Cystic Fibrosis clinic visits every 2 months (minimum 4 visits per year per CF Foundation guidelines)
   
   
2. Chest X-Ray (CXR) every 2-3 years or as needed
   
   
3. Bone Density Scan (DEXA) every 1-5 years (depending on results)
   
   
4. Traditional Oral Glucose Tolerance Test (OGTT) every year unless established diagnosis of Diabetes Mellitus (please complete by April of each year)
   
   
5. CF Respiratory & Fungal Sputum cultures quarterly or as needed
   
   
6. Acid Fast Bacteria (AFB) Culture minimum twice annually or as needed
   
   
7. Annual Labs (please complete between Jan 1 – Apr 30th; preferably at first clinic visit of the year): 
   1. Complete Blood Count (CBC)
   2. Comprehensive Metabolic Panel (CMP)
   3. Fructosamine
   4. Hemoglobin A1C
   5. Magnesium
   6. Phosphorous
   7. Gamma-Glutamyl Transferase
   8. Total IGE
   9. PT/PTT/INR
   10. Vitamins A, E, D

Laboratory location and hours:

300 Pasteur Drive, Pavilion E, Level 1, E12
Mon-Fri 7:00am – 5:00pm
Sat-Sun 7:00am-3:30pm
After hours until 9:00pm (blood draws only)

If you need to complete labs outside of Stanford, please contact the RN coordinators and ask them to place orders to Lab Corp/Quest or please provide a fax number for the specific lab you'd like to use.

Thank you.