CF Research at Stanford

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Email: cfresearch@lists.stanford.edu
Phone: (650)721-1132
Fax: (650)723-5201
QR Code: Use this to fill out a CF Research Interest Form

Research Information

At Stanford CF Center, we participate in research that is observational and investigational, meaning you could participate in a study that involves no more than your usual medical care or a clinical trial that studies whether a new treatment or device is safe and effective. We conduct clinical trials from all different phases, from short-term phase 1 trials in small groups of patients to phase 4 trials in large groups that can last for many years. No matter what type of research you participate in, it is important and helps move us all toward a cure for CF!

Meet the Research Team

Carlos Milla, MD
Professor, Department of Pediatrics,
Pulmonary Division, CF Center Director,
Pediatric Specialty: Pulmonary Medicine
and Transplant

Jackie Spano, DNP, RN, CNP, CCRC
Pediatric Research Clinical Practitioner

Tina Conti, RRT-NPS, C-NPT
Respiratory Research Coordinator

Monica Elazar
Regulatory Affairs

Laura Rojas
Life Science Research
Professional II

Amanda Keen, MSN, RN
Clinical Research Nurse Coordinator

Lani Demchak, BS, MBA
Clinical Research Coordinator II

Cathy Hernandez
Database Specialist

Kayo Nakano
Research Assistant

In order to reach our goals of better treatments and ultimately a cure for Cystic Fibrosis, we need your help!

You ask: "why me?" we reply: "why not you?"

Together we can work to attain our goals.

For more information, visit the CFF website: https://www.cff.org/research-clinical-trails/why-participate-clinical-trial

Testimonials from our research patients and families

"I would tell other kids to try it because they might feel better on the new medicine." -Kareese

I would tell other kids to do a study because it helps your body and helps doctors know what kinds of medicine you need." -Henry

"The beginning is always the most time consuming with long medical days and missed school and work. However, the increased health and considerable CF symptom reduction makes it worth it each time. We live four hours away so we try to treat each visit as a mini vacation. The kids love staying in the hotels and we try to pick a museum to visit or a different activity to look forward to for each visit." -Jessi and James, parents of Kareese and Henry

Clinical Trials: Frequently Asked Questions

What is an informed consent?

Informed consent includes the purpose, schedule of procedures, risks and benefits, your rights as a study participant, your responsibilities as a participant, and contact information for each study.

In general what procedures can I anticipate while participating in a study?

Most often you will have procedures very similar to your usual clinic visits, such as vital signs, physical exam, spirometry, and blood work. Some studies do have special procedures that will be explained to you in detail. Procedures can occur at the CF clinic, at the Clinical and Translational Research Unit (CTRU), or even inpatient at the hospital.

When I come to a study visit, who will see me?

You may see several different people at study visits, similarly to your clinical visits. Usually, this includes your study coordinator, provider, and respiratory therapist.

Do I need to tell my primary physician that I am participating in a clinical trial?

It is always a good idea to keep your care team updated on any interventions that could impact your healthcare. The research team is separate from your care team, so we do not discuss your clinical trial participation unless you give us permission.

For other frequently asked questions on clinical trials, check out:

https://www.cff.org/research-clinical-trials/how-do-clinical-trials-work

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