Welcome to our Spectrum Community Engagement Study!
Breast Cancer and African Americans
Welcome to our study, "Utilizing Digital Technology to Foster Community Engagement & Increase Breast Health Awareness!" Brought to you by our partners at Breast Cancer and African Americans, Stanford Cancer Institute, and Bay Area Cancer Connections, this study aims to improve engagement in breast cancer preventative practices and services among our community.
Participation in the study involves the following:
- Watch the video below that highlights a breast simulator technology created by Dr. Carla Pugh, a surgeon-scientist at Stanford, that is used to teach women how to perform an effective breast self-exam.
- Complete this survey comprised of questions relating to your breast health experiences and perceptions: https://stanforduniversity.qualtrics.com/jfe/form/SV_81FlcCnsbfgn83k
Participants who watch the video and complete the survey will receive an electronic $15 gift card via e-mail. Your participation is integral to finding sustainable, community-driven solutions for improving breast cancer outcomes and addressing inequalities in breast health.
Please direct all questions, comments, and concerns to Cassidi Goll at email@example.com. For participant's rights questions, please contact 1-866-680-2906. Thank you for supporting this important work!
Welcome Breast Cancer and African Americans event attendee!
The first step of your study participation is to watch the video below that is 5 minutes and 54 seconds in length. It's purpose is to give you an overview of a digital breast exam simulator. After watching the video, please complete the survey. After completing the survey, you will recieve a $15 gift card. Thank you for your participation!
Frequently Asked Questions
Why are you asking me to provide my demographic information?
Collecting demographic data can help to identify aids and barriers to engagement in breast cancer prevention. It also helps us to do the following:
- Identify and address differences in care for specific populations
- Distinguish which populations do not receive optimal care
- Develop additional care services for specific populations
What is meant by the term "economics" and why are you asking me to provide my annual household income?
Economics refers to how individuals, business, governments, and nations make choices about how to allocate resources. Income is highly associated with a wide array of important health and sociological outcomes and determining income levels is critical for evaluating the accessibility of various healthcare programs.
Who is the target population for this study?
Black/ African American women from all age groups.
When will I receive my gift card for participating in the study?
You can expect to receive your gift card via e-mail 1-3 days after completion of the survey. If your gift card is taking longer than expected to arrive, please contact Cassidi Goll at firstname.lastname@example.org.
Our team of experts is comprised of academic and community leaders who have a demonstrated history of working collaboratively with community members in the dissemination and use of research findings for healthcare empowerment.
Carla Pugh, MD, PhD
Professor of Surgery and Director of the Technology Enabled Clinical Improvement Center
Marketing Coordinator and Researcher, Technology Enabled Clinical Improvement Center at Stanford Medicine
Executive Director, Bay Area Cancer Connections
Alyce Adams, PhD
Stanford Medicine Innovation Professor, Professor of Epidemiology and Population Health and of Medicine & Associate Director for Health Equity and Community Engagement in the Stanford Cancer Institute
Pamela Ratliff, MPA
Program Director of Educational Initiatives and Partnerships at Stanford Cancer Institute’s Office of Cancer Health Equity and Community Engagement & President, Board of Directors, Bay Area Cancer Connections
Colleen Carvalho, LMFT
Associate Director, Bay Area Cancer Connections
If you have any questions, concerns or complaints about this research study, its procedures, risks and benefits, or alternative courses of treatment, you should ask the Protocol Director, Dr. Carla Pugh. You may contact her now or later at 650-724-3651. Injury Notification: If you feel you have been hurt by being a part of this study, please contact the Protocol Director, Dr. Carla Pugh at 650-724-3651. Independent Contact: If you are not satisfied with how this study is being conducted, or if you have any concerns, complaints, or general questions about the research or your rights as a participant, please contact the Stanford Institutional Review Board (IRB) to speak to someone independent of the research team at (650)-723-5244 or toll free at 1-866-680-2906. You can also write to the Stanford IRB, Stanford University, 1705 El Camino Real, Palo Alto, CA 94306. Alternate Contact: If you cannot reach the Protocol Director, please contact Cassidi Goll at email@example.com.