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Stanford Medicine STAnford Research Repository (STARR) Tools – Online Tools for Cohort Discovery, Chart Review and Data Download for Clinical Research at Stanford Medicine

Enabling HIPAA-Compliant
Clinical Research at Stanford

Enabling Data Driven Clinical Research
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Frequently Asked Questions

I am getting an error page from off campus. Is your system down?

For data security reasons, only computers on the Stanford network are permitted to run the Cohort Discovery and Chart Review tools. Please connect to the Stanford network with the UIT VPN and try again.


How do I switch from Cohort Discovery to Chart Review?

To switch between the two tools, use the dropdown menu in the center of the page.


Can I get my list of patients periodically updated?

Yes, you can set up your Chart Review to re-run the inclusion query on a regular schedule and notify you if any new patients have been added.

Chart Review data is refreshed each night, so the most frequent notification schedule we offer at no cost is once a day.

You can also use the "Add MRN" feature in an existing Chart Review to add patients by uploading a list of MRNs.


I'm having trouble adding my collaborators

These issues typically arise when there is a mismatch between the IRB and Data Privacy Attestation (DPA) used to create the cohort and the IRB number used when completing a collaborator's add-on privacy attestation. 

To resolve, you can verify the IRB by clicking on the gear icon (“User Admin”) in the upper left of the chart review in question:

The IRB number will be displayed in the resulting pop-up window.

The each collaborator should double check that they have a valid add-on attestation for that IRB.

If you continue to experience difficulties, please contact Research IT for assistance.


My recruitment protocol is time sensitive. Do you offer real-time alerting?

Yes, Research IT operates a service for real-time alerting. Please note however that unlike the Cohort Discovery and Chart Review tools, there is a cost associated with supporting research programs through the real time alerting system.

Please contact Research IT to learn more.


Accession numbers show as [REMOVED]

Accession numbers are PHI. To review accession numbers, your DPA must specify that you are working with "Other PHI". And when creating your cohort, don't forget to check the "Other PHI" checkbox!


How do I remove myself or others from a saved cohort?

To remove a saved cohort from your Chart Review dropdown, open the Admin panel for that cohort and click "Remove" next to your name or the name of the collaborator you wish to remove, then click "Save". If you have removed yourself, you will need to refresh your browser to see the updated list after you save the updated settings.


Why are chart reviews limited to 7,500 patients?

In order to conduct chart review, patient information is transferred to your web browser. In cohorts larger than 7,500 patients, web browsers tend to run out of memory. We have adopted this size limit in order to keep chart review reliable and responsive for our users. 


Where to get training on SQL, R, or Python?

UIT offers classes in Data Science and Programming, and there are tutorials in Linkedin-learning available to SU staff.


Where to get training on STARR Tools?

Video recordings of STARR Tools workshops and and more are available on-demand.


How do the STARR tools support prospective research studies?

STARR Tools can be used in many ways to support prospective research, including but not limited to:

Preparatory to Research Activities

The Cohort Discovery can prove to be an invaluable resource when writing grant proposals. By comparing patient counts over time you can rapidly build up a rich understanding of the types of clinical data available at Stanford on the patients of interest to your proposed investigation.

Patient Recruitment

The Cohort Discovery Tool in conjunction with the Chart Review Tool is purpose-built to find out how many Stanford patients match a particular clinical phenotype, and learn more about the patients of interest. De-identified chart review is available to make it easier for researchers to adhere to the principle of HIPAA Minimum Necessary. And fully identified chart review is also available to researchers with permission to work with PHI granted by the IRB and Privacy Office.

Ongoing Chart Review

The Chart Review tool can be configured to re-run the patient selection algorithm periodically, which is handy if you are reviewing patient charts as part of an ongoing study, either for eligibility assessment or research variable abstraction.


How do the STARR tools support retrospective research studies?

STARR Tools support retrospective research in many ways. For example:

Preparatory to Research Activities

The Cohort Discovery can prove to be an invaluable resource when writing grant proposals for retrospective studies of Stanford Medicine's patient population. By comparing patient counts over time you can rapidly build up a rich understanding of the types of clinical data available on the patient population of interest to your planned investigation.

Chart Review

The Cohort Discovery Tool in conjunction with the Chart Review Tool is purpose-built to find out how many Stanford patients match a particular clinical phenotype, and learn more about the patients of interest. De-identified chart review is available to make it easier for researchers to adhere to the principle of HIPAA Minimum Necessary. And fully identified chart review is also available to researchers with permission to work with PHI granted by the IRB and Privacy Office.

Data Download

The Chart Review tool has built-in data download, available on the patient list page.


I keep my list of patients in REDCap. Can I link my REDCap to the Chart Review tool?

Yes. Please contact Research IT for assistance with setting this up.


Why are my chart review download files not appearing?

These files tend to be quite large and can take several hours to generate. If after 24 hours they are still not showing up, please contact Research IT for assistance.


How can I get a patient’s contact information e.g. email, phone and/or mailing address?

That information is in STARR, but by policy is not made available directly to researchers.

For assistance with patient recruitment by Stanford's Honest Broker, please contact Spectrum's Research Participation Program at engageparticipants@stanford.edu or by submitting a DASHER help ticket. More information is available here.


I am getting an error using my newly approved IRB protocol number in the Self Service Chart Review. What is going wrong?

There are two distinct set of approvals required before you can use an IRB to self-provision a cohort for chart review. After the Privacy Office approves your Data Privacy Attestation, there is typically a 1-2 week delay before the IRB can review and approve the protocol itself.

One business day after you have both Privacy and IRB approvals in place can your IRB number be used for self-service chart review. The one day delay is due to the fact that IRB data is only shared with STARR once a day.


What is the difference between STRIDE and STARR?

STARR Tools is the new name for STRIDE. STARR Tools is part of STARR portfolio. Learn more about STARR at https://starr.stanford.edu/.


I still have questions about how to use STARR tools. Who do I contact for answers?

Please contact Research IT for all questions regarding STARR Tools. We will do our very best to answer your questions, but may refer to to other expert groups on campus if your questions fall outside our area of expertise, such as for example questions on compliance.


FAQ's

FAQ's

Enabling Data Driven Clinical Research
  • Cohort Discovery
  • Self Service Chart Review
    • Chart Review User Guide
    • Cohort Monitoring
  • Data Compliance
    • HIPAA Primer
    • Data Privacy Attestation
    • Add-On Privacy Attestation
    • New Chart Review Protocol
    • Modify Existing Protocol
    • Modify Existing DPA
    • Determination of Human Subjects Research (QI/QA)
    • Preparatory to Research
    • Educational Purposes
    • SHC/SCH Clinical Operations or QI
    • Clinical Trial Recruitment
    • Research Use Exceeds STARR Capabilities
  • Data Inventory
    • Clinical Ancillary System Data
    • Data Concierge Service / Imaging Data
  • Other Resources
  • Frequently Asked Questions
Get Help with STARR Tools

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