ME/CFS Testimonials

Living with ME/CFS

Whitney Dafoe

The most fundamental symptom is debilitating fatigue that worsens after physical or mental exertion.
MDPI

Extremely Severe ME/CFS—A Personal Account

A personal account from an Extremely Severe Bedridden ME/CFS patient about the experience of living with extremely severe ME/CFS. Illness progression, medical history, description of various aspects of extremely severe ME/CFS and various essays on specific experiences are included.

Patient Interviews

Patient Interview with Prof Ronald W. Davis, PhD, about ME/CFS Research and Clinical Trials

ME/CFS Research Update: November 2019 Bedside Chat with Ben H. and Ron Davis

Short Story of a Family's Struggle with ME/CFS

We asked ME/CFS patients: What would you do if you were cured today?

ME/CFS Research Interviews

Prof. Dr. Ron Davis: Focus on Treatments and a Cure using Old Ideas and New Ideas (Day 1, Block 5)

ME/CFS Research: Dr. Ron Davis's Talk at Albert Einstein College of Medicine

Dr. Ron Davis of Stanford Presents an ME/CFS Research Update (Presentation #1)

Dr. Ron Davis Presents on ME/CFS Research Activities at Stanford at Inaugural Harvard Symposium

Published ME/CFS Research

Longitudinal cytokine and multi-modal health data of an extremely severe ME/CFS patient with HSD reveals insights into immunopathology, and disease severity

PubMed

Longitudinal cytokine and multi-modal health data of an extremely severe ME/CFS patient with HSD reveals insights into immunopathology, and disease severity - PubMed

Our study advocates for the integration of longitudinal multi-omics with multi-modal health data and artificial intelligence (AI) techniques to better understand ME/CFS and its major comorbidities. These findings highlight the significance of dysregulated Th2-type cytokines in patient stratification …

A nanoelectronics-blood-based diagnostic biomarker for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)

PubMed Central (PMC)

A nanoelectronics-blood-based diagnostic biomarker for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disease which afflicts approximately 2 million people in the United States and many more around the globe. A combination of factors might trigger ME/CFS, and there is currently no ...

The IDO Metabolic Trap Hypothesis for the Etiology of ME/CFS

PubMed

The IDO Metabolic Trap Hypothesis for the Etiology of ME/CFS - PubMed

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating noncommunicable disease brandishing an enormous worldwide disease burden with some evidence of inherited genetic risk. Absence of measurable changes in patients' standard blood work has necessitated ad hoc symptom-driven t …

On This Page

Life with Severe ME/CFS

Whitney Dafoe


Bateman Horne Center

Research | Clinical Care | Education

Teaching Scientists About Brain Fog

"Bateman Horne Center is honored to have a guest message by Janet Dafoe. She is a caregiver for her very severe ME/CFS son, advocate and fundraiser for the End ME/CFS Project at Open Medicine Foundation and CFSRC at Stanford. Follow her on Twitter at @JanetDafoe."