I am a medical anthropologist with a background in public health and a passion for research that engages the voices of patients and families in improving population health and healthcare delivery. I am a proud Midwesterner, with a B.A. in anthropology from the University of Wisconsin-Madison, and a PhD and MPH from Case Western Reserve University in Cleveland, Ohio. My broad research interests include the psychosocial dimensions of health and illness, the well-being of children and families, and medical decision-making, particularly in the context of complex illness. I also am a perpetual student of the art of grant writing, and I love supporting scientists in developing this critical skill. At the Center for Biomedical Ethics, my research examines the ethical and economic implications of genome sequencing for diagnosis of children with rare diseases and their families. My work examines the ethical implications of varying approaches to economic evaluation and their relation to reimbursement and equitable access to new genomic technologies. I am also interested in the development of new tools for measurement of the costs and benefits of new genomic technologies that reflect patient values.
Member, Maternal & Child Health Research Institute (MCHRI)