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The aim of the Donald W. Reynolds Cardiovascular Clinical Research Center at Stanford University was to provide better care for patients with heart disease through the application of modern genetic approaches. Projects utilized the techniques of modern molecular biology to identify genes for which abnormalities predisposed to heart disease in a specific way. These genes were then examined for unique mutations that could serve as markers to track disease in larger populations. The project was large in scope and consisted of several sub projects. I was involved in planning, designing and implementing systems for recruitment, scheduling clinic visits, generating reports and result letters, clinical visit data collection, barcode generation, and sample tracking. I was also involved in planning, designing and implementing Reynolds analysis dataset which served as a backbone for all the data analysis.
Palo Alto, California, USA
The Stanford Cancer Institute Research Database (SCIRDB) has a rich set of data which integrates many resources including EPIC/Clarity, STRIDE, specialized databases in surgical pathology and radiation oncology, the Stanford Cancer Registry, and the Social Security Death Index (SSDI). SCIRDB also provides extensive tools for browsing and searching the existing data.
Developed web-enabled Bone Marrow Transplant research database. The BMT database is being used for three primary purposes (1) Research (2) Mandatory Outcome Reporting (3) Annual Request for Information (RFI). The Research component of the database which entails but is not limited to assuring quality of the data collected, managing computer systems for data storage and access, development of systems improvements and assembling, summarizing and analyzing data for scientific reports and audits. In turn, the BMT database supplies the vital information needed for the other 2 components: Mandatory Outcome Reporting and the Annual RFI. The Outcome Reporting to the CIBMTR of all transplant patients who must be followed until death was mandated by federal law in 2005. The RFI reports the survival and mortality statistics of our BMT program in relation to comparable transplant programs around the country.
Developed web-enabled Lymphoma Program Project (LPP) research database to track patient demographics, diagnosis, courses of treatment, long-term follow-up, and clinical responses to the diseases for Stanford's Non-Hodgkins and Hodgkins Lymphoma cases back to the late 1960's.