Founded in late 2023, the Division of Quality of Life and Pediatric Palliative Care team is the newest division within the Department of Pediatrics at Stanford Medicine.

Featured Publications:

• Patient, Parent, and Oncologist Perspectives and Recommendations on the Right Way to Talk About Prognosis in Advanced Childhood Cancer. Kaye EC, Farner H, Mehler S, Bien K, Mali N, Brinkman TM, Baker JN, Hinds P, Mack JW.JCO Oncol Pract. 2024 Sep 6:OP2400249. doi: 10.1200/OP.24.00249. Online ahead of print.PMID: 39241207
• It Starts With a Story: A Four-Step Narrative-Based Framework for Serious Illness Conversations.Lanocha N, Taub S, Webb JA, Wood M, Tate T.J Palliat Med. 2024 Sep;27(9):1177-1183. doi: 10.1089/jpm.2024.0088. Epub 2024 Jul 5.PMID: 38968377
• Outpatient Pediatric Palliative Care Development: Guidance on Building Sustainable Programs. Casie James, Suraj Sarvode Mothi, Elissa G. Miller, Erica C. Kaye, Alexis Morvant, Caroline Stafford, and Ashley K. Autrey. Published Online: 21 August 2024 Journal of Palliative Medicine. https://doi.org/10.1089/jpm.2024.0148
• Language to Support Dignity for Children With Advanced Cancer and Their Families. Humphrey C, Mehler S, O'Bryan S, Silverstein A, Mali N, Baker JN, Mack JW, Kaye EC.Pediatrics. 2024 Aug 1;154(2):e2023065559. doi: 10.1542/peds.2023-065559.PMID: 39049750
• Parent-Clinician Communication and Prolonged Grief in Parents Whose Child Died from Cancer.Ouyang N, Baker JN, Ananth PJ, Knobf MT, Snaman JM, Feder SL.J Pain Symptom Manage. 2024 Aug 12:S0885-3924(24)00921-7. doi: 10.1016/j.jpainsymman.2024.08.003. Online ahead of print.
• From Sickness unto Life: How Community and Belonging Can Bolster Wellbeing During Serious Illness and End-of-Life Care. Tate, T. (2024). In: Phillips, T., Araújo, N., Jones, T.W., Taylor, J. (eds) Narratives of Wellbeing. Palgrave Macmillan, Cham. https://doi.org/10.1007/978-3-031-59519-6_8
• It Starts With a Story: A Four-Step Narrative-Based Framework for Serious Illness Conversations. Lanocha N, Taub S, Webb JA, Wood M, Tate T. J Palliat Med. 2024 Jul 5. doi: 10.1089/jpm.2024.0088. Online ahead of print.PMID: 38968377
• International consensus on sleep problems in pediatric palliative care: Paving the way. Mercante A, Owens J, Bruni O, Nunes ML, Gringras P, Li SX, Papa S, Kreicbergs U, Wolfe J, Zernikow B, Lacerda A, Benini F; Pediatric Sleep and Palliative Care Group.Sleep Med. 2024 Jul;119:574-583. doi: 10.1016/j.sleep.2024.05.042. Epub 2024 May 23.PMID: 38833942
• Parent and oncologist perspectives on prognostic disclosure in advanced childhood cancer: communication pearls and pitfalls. Kristina Zalud 1, Griffin Collins 2, Justin N Baker 2 3, Jennifer W Mack 4 5, Erica C Kaye 6 7.2024 Support Cancer Care. May 13; 13;32(6):341.doi: 10.1007/s00520-024-08539-7. 
• Multilevel Characteristics of Cumulative Symptom Burden in Young Survivors of Childhood Cancer. Madeline R Horan 1, Deo Kumar Srivastava 2, Jaesung Choi 1, Kevin R Krull 3, Gregory T Armstrong 1, Kirsten K Ness 1, Melissa M Hudson 4, Justin N Baker 5, I-Chan Huang 1. JAMA Netw Open. 2024 May 1;7(5):e2410145.doi: 10.1001/jamanetworkopen.2024.10145.
• "Understanding why she had to leave me": The roles of religion and spirituality in narratives of parents grieving the loss of a child to cancer. Alexandra K Superdock 1, Mariela Trejo 2, Yenny Yang 3, Carlos Torres 4, Lindsay J Blazin 5 6, Justin N Baker 7, Holly L Spraker-Perlman 8, Erica C Kaye 9. Death Stud. 2024 May 6:1-12. doi: 10.1080/07481187.2024.2348059. 
• Natural language processing with machine learning methods to analyze unstructured patient-reported outcomes derived from electronic health records: A systematic review. Jin-Ah Sim 1, Xiaolei Huang 2, Madeline R Horan 3, Christopher M Stewart 4, Leslie L Robison 3, Melissa M Hudson 5, Justin N Baker 6, I-Chan Huang 7. PMID: 38042599. PMCID: PMC10693655 (available on 2024-12-01) DOI: 10.1016/j.artmed.2023.102701
• Agreement and disagreement between child-caregiver symptom and function reports in pediatric oncology. Meaghann S Weaver 1 2, Jichuan Wang 3, Bryce B Reeve 4 5, Amy S Porter 6, Justin N Baker 7, Jennifer W Mack 8 9, Amanda L Thompson 10, Lori Wiener 11, Daniel H Grossoehme 12, Pamela S Hinds 13 14. PMID: 37828816. DOI: 10.1002/pbc.30710
• Using natural language processing to analyze unstructured patient-reported outcomes data derived from electronic health records for cancer populations: a systematic review. Sim JA, Huang X, Horan MR, Baker JN, Huang IC.Expert Rev Pharmacoecon Outcomes Res. 2024 Apr;24(4):467-475. doi: 10.1080/14737167.2024.2322664. Epub 2024 Mar 5.PMID: 38383308
• Understanding treatment recommendations at diagnosis of advanced cancer in pediatric oncology: The need to explore decision-making challenges globally. Force LM, Hlatywayo L, Salek M, Bhakta M, Bonilla M, Kaye EC, Rodriguez-Galindo C, Baker JN, Bhakta N, Chitsike I.Pediatr Blood Cancer. 2024 Apr;71(4):e30854. doi: 10.1002/pbc.30854. Epub 2024 Jan 17.PMID: 38233986
• Factors influencing parents' choice of palliative treatment goals for children with relapsed or refractory neuroblastoma: A multi-site longitudinal survey study. Kaye EC, Smith J, Zhou Y, Bagatell R, Baker JN, Cohn SL, Diller LR, Glade Bender JL, Granger MM, Marachelian A, Park JR, Rosenberg AR, Shusterman S, Twist CJ, Mack JW.Cancer. 2024 Apr 1;130(7):1101-1111. doi: 10.1002/cncr.35149. Epub 2023 Dec 15.PMID: 38100619
• Preventing and Treating Pain and Anxiety during Needle-Based Procedures in Children with Cancer in Low- and Middle-Income Countries. McNeil MJ, Garcia Quintero X, Gonzalez M, Zheng Y, Ugaz Olivares C, Morales R, Boldrini E, Rebollo de Campos D, Ferreira D, Coopasamy K, Caneba J, Padernilla ML, Friedrichsdorf S, Baker JN, Friedrich P.Cancers (Basel). 2024 Mar 1;16(5):1025. doi: 10.3390/cancers16051025.PMID: 38473383
  
• Children with cancer at the end of life in a middle-income country: integrated pediatric palliative care improves outcomes. Cuervo-Suarez MI, Cleves D, Duque-Nieto N, Claros-Hulbert A, Molina-Gómez K, Bolaños-Lopez JE, Tello-Cajiao ME, Baker JN, McNeil MJ, García-Quintero X.BMC Palliat Care. 2024 Feb 2;23(1):31. doi: 10.1186/s12904-024-01354-1.PMID: 38302931
  

More research and publications information to come!