Support Forums and Communities for Parkinson's
Joining an online support forum or community connects you with others in similar circumstances. The seven online communities listed here are for people with Parkinson's disease as well as family and friends. They are always open — day or night.
There are often two ways to engage with these forums — as an anonymous reader and as a poster. Usually to post questions, comments, or replies, one must become a member. Depending on the content of your posts, members may be able to remain anonymous. If you post a question to a message board, replies from other group members trickle in over hours or days. Some communities have a moderator to 'police' the forums, others do not.
If you prefer real-time communication, perhaps seeing the people you are communicating with, check out our list of scheduled group meetings.
Communicate Any Time With People Around the World
Parkinson's Buddy Network
An online community for people with Parkinson's Disease and Parkinson's care partners is a safe space to build connections, share experiences, ask questions and find support. Building your personal profile helps software connect members of similar demographics and interests. The group is hosted and moderated. Must be a member to post to the forum. More than 12,000 members from over 84 countries.
Parkinson's Disease
This online forum for people with Parkinson's Disease and Parkinson's care partners is hosted and moderated by Mayo Clinic staff so no question goes unanswered. Must be a member to post to the forum. Anyone may read posts. Over 3,000 members.
PD Buddy
Designed by people with PD and backed by science, this app combines community with symptom and medication tracking, exercises, activities, and resources to help you stay informed and organised.
PD Conversations
Moderated discussion groups on several Parkinson's topics, including Newly Diagnosed, Symptoms of PD, Treating PD, Tips for Daily Living, Caregiving for PD, Young Onset, and General Discussion groups in both English and Spanish. Parkinson's Foundation Helpline staff answers posted questions, participates in conversations, and posts helpful information and announcements for upcoming Parkinson's educational opportunities.
Cure Parkinson’s
HealthUnlocked unmoderated discussion groups on a variety of PD-related topics. The Parkinson's community is run in conjunction with Parkinson's Movement, an initiative of The Cure Parkinson's Trust (UK), and the European Parkinson's Disease Association (EPDA). Must be a member to post to the forum. Anyone may read posts. Over 28,000 members.
Parkinson's UK Forum
Moderated sections include Daily Life, Health & Wellbeing, Newly Diagnosed, Caregivers, Friends & Family, Treatments, Creative Corner, and Social Chat.
PatientsLikeMe Forum
Unmoderated posts on a variety of PD-related and non-PD related topics. Members 'tag' their postings with relevant subject titles, suggested by the site, so visitors to the forum can search for or filter 'tags' they are interested in. Must be a member to read or post to the forum. Over 20,000 PD patient members.
Smart Patients Parkinson's Disease Community
Moderated posts, organized by communities around different illnesses, including PD. The PD community runs in partnership with the American Parkinson Disease Association (APDA). You must be a member to read or post.
Last updated September 2025 by Stanford Parkinson's Community Outreach.