National Parkinson's Organizations

There are four national Parkinson's disease (PD) support organizations — American Parkinson Disease Association, Davis Phinney Foundation, Michael J. Fox Foundation, and the Parkinson's Foundation. Below, we've highlighted some of the key resources each of these four organizations offers. Additionally, we list a few other PD organizations that have virtual events. See our blog for a compilation of PD virtual events for the upcoming month.

Major National PD Organizations

American Parkinson Disease Association (APDA)

Based in New York

Contact: APDA National Office, tollfree phone 800-223-2732

factsheets and booklets on medications to avoid, exercise, constipation, fatigue, depression, and other topics. Downloadable or can be mailed. Some publications in Spanish and Chinese
frequent educational webinars (including Spanish-language) and virtual exercise classes
quarterly newsletter with articles by PD experts or PD research updates
symptom tracker app available for download
blog posts about three times monthly by movement disorder specialist Rebecca Gilbert, MD, PhD
jointly operates National Resource Center for Rehabilitation, with an exercise helpline (888-606-1688) that allows communication with a licensed physical therapist at Boston University who can answer questions about exercise
resources specific to veterans, young onset PD, and care partners
specialized training courses for first-responders and fitness professionals
about 20 Information & Referral Centers around the US

Davis Phinney Foundation

Based in Colorado

Contact: Davis Phinney Foundation, tollfree phone 866-358-0285

Parkinson's 101 and Living Well online information
Every Victory Counts manual
blog of weekly artcles on living well with PD
The Parkinson's Podcast
self-paced, online training course for care partners

The Michael J. Fox Foundation for Parkinson's Research

Based in New York

Contact: The Michael J. Fox Foundation, tollfree phone 800-708-7644

Parkinson's 101 online information
Fox trial finder, which matches those with PD and those who don't have PD with clinical trials in your area
third Thursday webinar series
Parkinson's 360 is a set of resourcesfor anyone whose life has been touched by Parkinson's

Parkinson's Foundation

Based in Miami

Contact: Parkinson's Foundation, tollfree phone 800-473-4636

helpline
PD Conversations online forum
hospital safety guide so you know know pitfalls to look out for and how to advocate for the best possible care
up-to-date research news on the Parkinson's Today Blog