Blogs and Podcasts About PD

It is What it is! Living with Parkinsons Disease

Blogger:  Tom Eckhardt, diagnosed with Parkinson's at age 67

Frequency:  Irregular

Topics covered:  Join PD Avengers to End PD, Dr. Mischley's PD School 2020, World PD Day, World PD Congress in Portland, passing of time, and more

Moving and Shaking

Blogger:  Andi Brown, writer with Parkinson's disease, diagnosed in 2021

Frequency:  Irregular

Topics covered:  Personal reflections on living with Parkinson's and aging, chronic pain, clinical trials, humor, and navigating multiple health conditions

Parkies and Me

Blogger:  Sue Waight, diagnosed in 2020, health professional, both parents had PD

Frequency:  Irregular, frequent

Topics covered:  The author's life post diagnosis, what she's learning and what helps

Parking Suns, A Life with Parkinson's Disease

Blogger:  Bruce Ballard, diagnosed with Parkinson's at age 59

Frequency:  Irregular

Topics covered:  Quality of life, medication schedule, ping-pong for PD, teaching with Zoom, and more!

Parkinson Foundation of the National Capital Area Blog

Bloggers:  PFOTNCA bloggers

Frequency:  Irregular

Topics covered:  Surviving winter, Parkinson's and coronavirus, staying active during a pandemic, being the child of a parent with PD, being a good spouse and care partner, telehealth, exercising at home, common PD misconceptions, PD boxing, hospitalization with PD, and more

Parkinson Secrets

Blogger:  Michael Okun, MD, Indra Subramanian, MD, and Jonny Acheson, MD

Freguency:  Irregular

Topics covered:  Urinary issues, speech therapy, sexual dysfunction, caring for the PD caregiver, PD genetics, mindfulness, music & PD, occupational therapist usefulness, and more!

Parkinson's Humor

Blogger:  YumaBev

Frequency:  Irregular

Topics covered:  Telemedicine, anxious toes, soulder pain with PD, painting with PD, personal DBS experiences, and more

Parkinson's Research Blog

Blogger: Parkinson's UK

Frequency: Irregular, frequent

Topics covered: Clinical trials, unmet PD needs of women, supplements and PD, race equality in PD research, annual research highlights, stem cells, pain and PD, understanding sleep, and more

Parkinsons Recovery

Blogger: Robert Rogers, PhD

Frequency: Irregular

Topics covered: Natural therapies that are safe and cause no harmful side effects

ParkyLife

Blogger:  Contributions from the Parkinson’s community

Frequency:  Weekly

Topics covered:  The brightest slices of positivity from across the Parkyverse, including hacks, perks, inspiring people and funny stories

PD Community Blog

Bloggers:  NWPF bloggers

Frequency:  Monthly

Topics covered:  Living with PD, advocacy, exercise, hope, research, treatment options, young-onset PD, and more

PD Wise

Bloggers:  Allan Cole and Chris Tracey

Frequency:  Irregular

Topics covered:  Young-onset and general PD issues, including living well, parenting, getting at PD diagnosis, loss and grief, resilience, disclosing a PD diagnosis, advocacy, medical care, DBS, spirituality, professional implications, research and treatment, legal issues, humor, hope, friendship, and more

Stanford PD Community Blog

Blogger: Stanford Parkinson's Community Outreach Staff

Frequency: Frequent (several posts a month)

Topics covered: Upcoming webinars and conferences, webinar and conference notes, shared articles and podcasts about PD from around the web

The Quiver

Bloggers: Individual contributors

Editorial staff: Christopher Lion,  Ashley Romberg, and Julie Fitzgerald

Frequency: Frequent (several posts a month)

Topics covered: AN assortment of art created by people with Parkinson's, including photography, painting, poetry and other writings, etc. with brief biographies of some of the artists whose works are posted to the blog

The Science of Parkinson’s Disease

Blogger: Simon Stott, postdoctoral Parkinson’s researcher and president of his Parkinson’s UK support branch

Frequency: Bi-weekly

Topics covered: Trying to digest gut research; improving patient education; wearable tech for Parkinson’s; stress and Parkinson’s disease; old dogs new tricks, repurposing drugs for Parkinson’s; and milestones in Parkinson’s disease research and discovery

Unshakable Hiker

Blogger: Colleen Thomas, person with YOPD, convinced that a Parkinson’s diagnosis doesn’t mean she has to quit the outdoors

Frequency: Irregular, frequent

Topics covered: The author's favorite hikes around the world, joining a PD support group, cognitive decline, participating in clinical trials, yoga for PD, and more

The Bright Side

Blogger:  Jamie Askari, medical advocate and partner to a person with YOPD

Frequency:  Irregular

Topics covered:  Caregiving, exercise, patient advocacy

Journey with Parkinson’s

Blogger: Frank Church, professor and researcher in the School of Medicine at the University of North Carolina, Chapel Hill, and person with young onset Parkinson's (YOPD)

Frequency: Irregular

Topics covered: My public journey and life-steps with Parkinson’s; service and research; milestones in Parkinson’s disease research and discover; MAO-B inhibitors; and the VA “My Parkinson’s Story” video series

Out-thinking Parkinson’s

Blogger: Gary Sharpe, PhD scientist, engineer and person with young onset Parkinson's (YOPD), and Deb Helfrich, author and wellness mentor

Frequency: Irregular

Topics covered: How a dog in the family helped me to understand my Parkinson’s disease; a unified explanation for Parkinson’s disease via the vagus nerve;  and helicobacter pylori bacteria in the gut and Parkinson’s disease; and women’s health and sexuality

PDMama

Bloggers: Ellie FInch Hulme

Frequency: Irregular

Topics covered: Parenting with Parkinson’s; personal reflections on disease progression; deep brain stimulation (DBS); living with chronic illness; anxiety, depression, and apathy; community building and peer support; COVID-19 lockdown experiences; balancing caregiving and self-care; advocacy for YOPD awareness, especially in women

The Perky Parkie

Blogger:  Allison Smith, MA, LMFT and person with PD

Frequency:  Irregular

Topics covered:  Medications, dietary protein, apathy, getting dressed, grief, etc.  Most presented with humor

Punk Rock Parkinson's

Blogger:  Darryn Wright, a person with YOPD

Frequency:  Irregular

Topics covered:  Darryn's YOPD journey, support, resilience

A Soft Voice in a Noisy World

Bloggers: Karl Robb, Person with Parkinson's, and Angela Robb, Karl's wife and Parkinson's Care Partner

Frequency: Weekly

Topics covered: Gratitude, Parkinson's awareness, tolls and resources, PD during covid, home in transition, etc.

Strength in Weakness

Blogger: Jeremy Likness, software developer and person with young onset Parkinson's (YOPD)

Frequency: Irregular

Topics covered: Jeremy's YOPD journey, nutrition, exercise, and PD advocacy

Tomorrow Edition

Blogger: Benjamin Stecher, diagnosed with PD at age 29

Frequency: Monthly

Topics covered: PD research, genetics, myths of degenerative brain diseases, post-pandemic education, how language creates disease, RNA, and more

Twitchy Woman

Blogger: Sharon Krischer

Frequency: Monthly

Topics covered: PD boxing packs a punch; exercise can be a boon to people with Parkinson’s disease; 100 (posts) and counting; book reviews and recommendations; World Parkinson’s Conference seminar notes; and exercise and PD

UnshakeableMD

Blogger: Soania Mathur, MD and person with Young Onset Parkinson's

Frequency: Irregular

Topics covered: Post fall into five categories: quality of life, outlook, relationships, clinical trials and community

Who Stole My Dopamine

Blogger: Emma, a person with Young Onset Parkinson's

Frequency: Daily (Must subscribe to Substack)

Topics covered: The everyday challenges faced by a woman with Parkinson’s disease who has a rescue collie, frustrating teenagers, and endless laundry

2 Parkies in a Pod: a Parkinson's Podcast

Podcasters: Dave Clark & Kuhan

Frequency: Irregular, frequent

Topics covered: Medical treatments, daily living with Parkinson's, research and science, coping strategies, expert interviews, personal stories, caregiving, and community support

The Caring Neurologist

Podcaster: Sandeep Thakkar, DO

Frequency: Irregular, frequent

Topics covered: PD 101, botulinum toxin treatment, navigating identity after diagnosis, debunking PD myths, deep brain stimulation (DBS), gut health and PD progression, environmental exposures, diet and toxins

Ending Parkinson's Disease: Live

Speakers: Ending Parkinson's Disease authors

Frequency: 16 episodes in 2020

Topics covered: PD caregiving, treatment, prevention, nutrition, integrative medicine, advocating for a cure, pesticides & PD, can drugs induce PD, etc.; some episodes also feature guests, like Brian Grant, Lonnie Ali, Davis Phinney and Connie Carpenter Phinney, researchers, and other people with PD

Here, Here, Parkinson's Podcast

Podcasters:  Edgar Valdmanis, WPC 2026 PD Ambassador and Eli Pollard, Executive Director of the World Parkinson Coalition (WPC)

Frequency:  Bi-monthly until the World Parkinson Congress in 2026

Topics covered:  Emphasizes the importance of patient inclusion and how it fosters progress by giving
individuals with Parkinson’s Disease (PD) a voice in ongoing discussions about PD; guests represent all stakeholders in the PD community and provide insights and tips for those planning to attend the 2026 World Parkinson Congress

I'm Not Dead Yet

Podcasters: Judy Yaras & Travis Robinson

Frequency: Irregular (5 seasons)

Topics covered: A close look at an extraordinary life with Parkinson's Disease. Quirky and irreverent; the cohosts take a look at this most tragic of events: life with an incurable disease and why it’s important to declare that I'm Not Dead Yet!

Living Well Starts Here

Vlogger: Melissa Livingston, Jeremy Likness, Esther Labib-Kiyrash and Chris Sutphin

Frequency: Monthly

Topics covered: A unscripted, frank discussion on the topics that can affect People with Young Onset Parkinson’s most; the conversation can go in unexpected directions, but it's always a good time

MDS Podcast

Podcasters:  Michele Matarazzo, Sara Schaefer, Tiago Outeiro, Sarah Camargos, Eduardo de Pablo-Fernández, Hugo Morales Briceño, Nicole Duff, Mitra Afshari, Divyani Garg

Frequency:  Regular, frequent

Topics covered:  Relevant developments in the field, including highlighted journal articles and interviews with the authors

Movers and Shakers

Podcasters:  Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn, and Jeremy Paxman

Frequency:  Twice monthly (March 2023-present)

Topics covered:  Depression, medications, work, exercise, deep brain stimulation (BDS), coping, young onset PD, possibility of a cure

My Journey with Parkinson's

Podcaster:  Sue Waight, diagnosed in 2020, health professional, both parents had PD

Frequency:  Irregular, frequent

Topics covered:  Short recordings on living with PD, including travel, memory, continence, diet, fate/destiny, complex morbidities, shouldisms, and more

North Scotland Parkinson's Research Pod

Podcaster: North of Scotland Parkinson’s Research Interest Group (NoSPRIG), part of a nationwide network of research groups

Frequency: Monthly, 2022-present

Topics covered: Clinical research studies, disease mechanisms, symptoms and treatments, mental health, exercise and physical therapy, rehabilitation services, medication trials, patient participation in research, healthcare delivery, emerging therapies

Parkinson's Disease Education Podcast

Podcaster: Michael Hyland, PT, DPT, CEEAA, CFPS

Frequency: Bi-weekly, 2022-present

Topics covered: Light therapy, natural compounds (β-caryophyllene), mobility aids, specialized diets, disease progression, vitamin toxicity, cannabis, psilocybin, cellular autophagy, nicotine therapy, methylene blue, sleep disorders, exercise approaches, cognitive changes, depression, constipation, hospital care, medication management, tremors, dyskinesia

Parkinson's Life, by the European Parkinson's Disease Association

Podcaster: Various broadcasters for the European Parkinson's Disease Association

Frequency: May 2019-present

Topics covered: Parenting with PD, caring for a family member with PD, PD and work, PD assessment tools, women and PD, and getting creative with PD

When Life Gives You Parkinson's

Podcaster: Larry Gifford, National Director of Talk Radio for Corus Entertainment in Canada and person with YOPD

Frequency: Irregular, frequent (September 2018-present)

Topics covered: A first-hand account of what it is like to live with PD for Gifford, his family, and other members of the worldwide Parkinson’s community; answering probing questions from co-host Niki Reitmayer and letting listeners eavesdrop in on intimate chats with his wife, Gifford uses humour to diffuse heavy content and give the podcast a hopeful tone

The Crooked Path

Blogger: Corey King, diagnosed with PD at age 47

Frequency: Inactive (2011-2024)

Topics covered: Observation of the joys and challenges of life, occasionally focusing on living well in defiance of early-onset Parkinson’s disease

Defeat Parkinsons

Blogger: Dr. Maria De León, retired movement disorder specialist and person with young onset Parkinson’s (YOPD)

Frequency: Inactive (2013-2023)

Topics covered: Medication management; dental hygiene; tips for good sleep; treatment of overactive bladder; end-stage Parkinson’s disease; tardive dyskinesia; combating apathy; weight gain after DBS in women; and women’s health and sexuality series; some posts are in Spanish

Kathleen Kiddo, Parkinson's Advocacy

Blogger: Heather Kennedy

Frequency: Inactive (2017-2022)

Topics covered: Heather Kennedy (aka Kathleen Kiddo) is a writer, speaker, and Parkinson's advocate diagnosed in 2011. She underwent Deep Brain Stimulation surgery in 2021. Her website features YouTube videos and podcasts addressing misunderstood symptoms of early-onset Parkinson's and palliative care. She has collaborated with the Davis Phinney Foundation, Brian Grant Foundation, and other Parkinson's organizations.

Living Well with Parkinsons Disease

Blogger:  Sheryl Jedlinski, diagnosed with Parkinson's at age 44

Frequency:  Inactive (2016-2022)

Topics covered:  Thankfulness, second opinions, taking control, nocturnal leg cramps, keeping calm, putting health and well-being first, Sinemet shortage, saved by my walker, and more

Parkinson's Diva

Blogger:  Maria De León, neurologist (retired), person with Parkinson's

Frequency:  Inactive (2015-2023)

Topics covered:  Beauty tips for PD, making the most of PD, health and PD, PD Advocacy, fashion tips for women with PD, care partners, Women&PD Initiative, marriage and PD, weight changes in PD, and more!

Parky Boy

Bloggers:  Rob, person with PD

Frequency:  Inactive (2020-2023)

Topics covered:  Living with Parkinson’s: to help others with Parkinson’s by talking about it openly, to help the author make sense of things and process the PD experience

Tim Hague Sr., Live Your Best

Bloggers: Tim Hague, author, PD advocate, winner of Great Race Canada, RN (ret), person with PD

Frequency: Inactive (2014-2022)

Topics covered: Newly diagnosed, 10 years a Parkie, accepting limits, PD's silver lining, taking advantage of opportunities, live your best life, and more

Women's Parkinson's Project

Bloggers: Reader submissions and project founders: Richelle Flanagan, Kat Hill, and Sree Sripathy

Frequency: Inactive (June 2021-December 2023)

Topics covered: Personal stories from women who have Parkinson's and how they cope with life's daily challenges.

Living with Lewy Body Dementia

Vloggers: Leslie and Jason Weiser

Frequency: Inactive (2019-2022)

Topics covered: Jason Weiser was diagnosed with Lewy Body Dementia (LBD) at age 45 after military service and a head injury; the series documents his experience trying to continue a full life with LBD and his wife, Leslie's, experience as his care partner, discussing symptoms, doctor appointments, decline, grief, getting on with life, and more

PD Lemonade

Podcaster:  Kat Hill

Frequency:  Inactive (2021)

Topics covered:  Interviews with caregivers and advocates in the YOPD community, with particular emphasis on women with PD

Trembling EMT: My Parkinson's Journey

Podcaster: Eric Aquino, EMT, person with young onset Parkinson's, and Founder of the Gray Strong Foundation

Frequency: Inactive (June 2018-February 2023)

Topics covered: Eric, who was diagnosed in his 40s with Parkinson’s, debunks the myth that Parkinson’s is an “old people disease," with candid stories and interviews with people living with Parkinson's, physical therapists and others involved with Moving Forward with Parkinson's