American Parkinson Disease Association (APDA)
Based in New York
Contact: APDA National Office, tollfree phone 800-223-2732
- Educational booklets and pamphlets on various topics, such as nutrition, medications to avoid, constipation, and depression. Some publications are in Spanish, Portuguese, German, Italian, Russian, and Chinese. All can be ordered online and will be mailed. Or, many can be downloaded.
- Quarterly newsletter with articles by PD experts or PD research updates
- Blog posts about three times monthly by movement disorder specialist Rebecca Gilbert, MD, PhD
- Jointly operates National Resource Center for Rehabilitation. An exercise helpline allows communication with a licensed physical therapist at Boston University who can answer questions about exercise.
- About 30 Information & Referral Centers around the US
Davis Phinney Foundation
Based in Colorado
Contact: Davis Phinney Foundation, tollfree phone 866-358-0285
- "Parkinson's 101" and "Living Well" online information
- Blog of weekly artcles on living well with PD
- Self-paced, online training course for care partners
- Occasional events in the US
Michael J. Fox Foundation for Parkinson's Research
Based in New York
Contact: Michael J. Fox Fundation, tollfree phone 800-708-7644
- "Parkinson's 101" online information
- Fox Trial Finder, which matches those with PD and those who don't have PD with clinical trials in your area
- Third Thursday webinar series
- Foxfeed Blog, weekly blog posts with research updates
Parkinson's Foundation
Based in Miami
Contact: Parkinson's Foundation, toll-free phone 800-473-4636. Note - this is the new name for the merged organizations of the National Parkinson Foundation and the Parkinson's Disease Foundation (which was based in New York).
- "PD Conversations" online forum
- "Hospital Safety Guide" so you know know pitfalls to look out for and how to advocate for the best possible care
- Up-to-date research news on the Parkinson's Today Blog
Brian Grant Foundation
Based in Portland, OR
Contact: Brian Grant Foundation, phone 503-274-9382
- Live Well with PD through exercise videos, nutrition articles and recipes, mindfulness articles and the Breath by Breath Mindfulness drop in class,
- Watch PD stories, join the Parkinson's discussion group on Facebook, listen to On Time: A Parkinson's Podcast, and read the BGF blog
Medical News Today
Based in Brighton, UK
Contact: Medical News Today
- Parkinson’s Disease News, a weekly blog on the latest Parkinson’s research by Medical News Today staff writers.
- All About Parkinson’s Disease overview information pages.
Northwest Parkinson's Foundation
Based in Seattle
Contact: NWPF, toll free phone 877-980-7500
- Occasional webinars
- Your Morning Wake Up Call communication and cognition exercise class to start each day off right
- Yoga for Healing 60-minute gentle workout that starts on a chair and progresses to standing
Parkinson's UK
Based in London
Contact: Parkinson's UK
- Publications on PD for laypeople and healthcare professionals
- Moderated forum with posts for specific audiences such as newly-diagnosed or carers, and posts on specific topics such as treatment, impulsive and compulsive behavior, and research
Parkinson and Movement Disorder (PMD) Alliance
Based in Tucson, AZ
Contact: PMD Alliance, phone 800-256-0966
- Webinars with a movement disorder specialist the fourth Wed of every month
- Webinars with speech therapists, physical therapists, or occupational therapists the third Wednesday of each month
- Weekly video support groups on Tuesdays, Thursdays, and Fridays
Twitchy Woman
Based in Beverly Hills, CA
Contact: Sharon Krischer
- Exclusively for women with Parkinson's Disease (PD)
- Sunday Mornings with Twitchy Woman monthly webinar series with speakers
- Peer support program
- Lists of Sharon's favorite blogs and other PD resources, books, and clinical trials
Last updated October 2024 by Stanford Parkinson's Community Outreach