National Resources

Major National PD Organizations

American Parkinson Disease Association (APDA)

Based in New York

Contact: APDA National Office, tollfree phone 800-223-2732

  • educational booklets and pamphlets on various topics, such as nutrition, medications to avoid, constipation, and depression. Some publications are in Spanish, Portuguese, German, Italian, Russian, and Chinese. All can be ordered online and will be mailed. Or, many can be downloaded.
  • quarterly newsletter with articles by PD experts or PD research updates
  • blog posts about three times monthly by movement disorder specialist Rebecca Gilbert, MD, PhD
  • jointly operates National Resource Center for Rehabilitation.  An exercise helpline allows communication with a licensed physical therapist at Boston University who can answer questions about exercise.
  • about 30 Information & Referral Centers around the US

Davis Phinney Foundation

Based in Colorado

Contact: Davis Phinney Foundation, tollfree phone 866-358-0285

Michael J. Fox Foundation for Parkinson's Research

Based in New York

Contact: Michael J. Fox Fundation, tollfree phone 800-708-7644

Parkinson's Foundation

Based in Miami

Contact: Parkinson's Foundation, tollfree phone 800-473-4636. Note - this is the new name for the merged organizations of the National Parkinson Foundation and the Parkinson's Disease Foundation (which was based in New York).

Other Useful Resources

Medical News Today

Based in Brighton, UK

Contact: Medical News Today

Northwest Parkinson's Foundation

Based in Seattle

Contact: NWPF, toll free phone 877-980-7500

Parkinson's UK

Based in London

Contact: Parkinson's UK

  • publications on PD for laypeople and healthcare professionals
  • moderated forum with posts for specific audiences such as newly-diagnosed or carers, and posts on specific topics such as treatment, impulsive and compulsive behavior, and research

Parkinson and Movement Disorder (PMD) Alliance

Based in Tucson, AZ

Contact: PMD Alliance, phone 800-256-0966

Last updated August 2020 by Stanford Parkinson's Community Outreach