Stanford Young Onset Parkinson's Support Group
Stanford's APDA Information & Referral Center and Stanford Parkinson's Community Outreach coordinate a local Young Onset Parkinson's Disease (YOPD) support group. This YOPD support group is open to those diagnosed with PD by age 50 or younger, and their family members. Pre-pandemic, we met at the Lucile Packard Children's Hospital at Stanford. As of April 2020, we are now meeting virtually. About eight of our meetings feature a guest speaker, and about four are open discussion.
We meet the second Tuesday of each month, 7-8:30pm PT. If you are interested in being added to the meeting reminder email list, please contact John Mamin, phone 650-248-7363, or Robin Riddle, phone 650-724-6090.
October 2021 Meeting - Q & A
The October 12, 2021 meeting guest will be Alex Eisched, MD, movement disorder specialist, Stanford. He will be answering whatever questions you have about PD! Join us!
September 2021 Meeting - Topic To-Be-Determined
The September 14, 2021 meeting speaker will be Leila Montaser Kouhsari, MD, movement disorder specialist, Stanford. She will give a short presentation and then answer questions. Join us!
August 2021 Meeting - Building Resiliency and Wellness
The August 10, 2021 meeting focused on "Building Resiliency and Wellness for PD." The speaker was Maya Katz, MD, movement disorder specialist, Stanford.
> "Daily Wellness Journal." Created by Judy Long, Chaplain and Jana Guenther, Research Coordinator, University of California, San Francisco
July 2021 Meeting - Open Discussion
The July 13, 2021 meeting was an open discussion.
June 2021 Meeting - Deep Brain Stimulation
The June 8, 2021 meeting focused on "Deep Brain Stimulation (DBS) for PD." The speaker was Traci Hornbeck, RN, Stanford Neurosurgery. She gave a short presentation about DBS, and then answered questions.
May 2021 Meeting - Open Discussion
The May 11, 2021 meeting was an open discussion, allowing group members to discuss whatever is on their minds.
April 2021 Meeting - Open Discussion
The April 13, 2021 meeting was an open discussion.
March 2021 Meeting - PD Exercise Class
The March 9, 2021 meeting featured Jennifer Larsen, a certified athletic trainer and instructor of PD exercise classes. She taught a PD exercise class for over an hour.
Jennifer currently teaches PD exercise classes virtually. Here's an extensive list of live, virtual PD exercise classes, including those offered by Jennifer.
Feb 9, 2021
Open discussion (as guest speaker cancelled).
Jan 12, 2021
Dec 8, 2020
Virtual holiday gathering
Nov 10, 2020
Theresa Najjar, DPT, a physical therapist and PD fitness instructor spoke about the four key components of a PD exercise plan. Here's are links to her presentation and handout.
Dr. Najjar currently teaches PD exercise classes virtually. Here's an extensive list of live, virtual PD exercise classes, including those offered by Dr. Najjar.