These blogs and podcasts are all about Parkinson's disease (PD). They are written or recorded by people diagnosed with Parkinson's Disease (PD), PD care partners, PD researchers, or PD organizations. Some are about living with PD. And some have a focus such as PD research, humor, or movement.
Pick a few and have a read or a listen. You may learn something and you will definitely not feel alone in dealing with PD.
Blogger: Dr. Maria De Leon, retired movement disorder specialist and young onset Parkinson’s patient
Topics covered: medication management; dental hygiene; tips for good sleep; treatment of overactive bladder; end-stage Parkinson’s disease; tardive dyskinesia; combating apathy; weight gain after DBS in women; and women’s health and sexuality.series.
Blogger: Tom Eckhardt, diagnosed with Parkinson's at age 67
Topics covered: Join PD Avengers to End PD, Dr. Mischley's PD School 2020, World PD Day, World PD Congress in Portland, passing of time, and more.
Blogger: Frank Church, professor and researcher in the School of Medicine at the University of North Carolina, Chapel Hill, and young onset patient
Topics covered: my public journey and life-steps with Parkinson’s; service and research; milestones in Parkinson’s disease research and discover; MAO-B inhibitors; and the VA “My Parkinson’s Story” video series.
Blogger: Sheryl Jedlinski, diagnosed with Parkinson's at age 44
Topics covered: Thanfulness, second oppinions, taking control, nocturnal leg cramps, keeping calm, putting health and well-being first, Sinemet shortage, saved by my walker, and more.
Bloggers: Daren, diagnosed with Parkinson's at age 40
Topics covered: PD symptoms, sleep, stem cell research, sympathy vs. empathy, alcohol, smoking, caffeine, research interest groups, etc.
Blogger: Gary Sharpe, PhD scientist, engineer and young onset patient, and Deb Helfrich, author and wellness mentor
Topics covered: how a dog in the family helped me to understand my Parkinson’s disease; a unified explanation for Parkinson’s disease via the vagus nerve; and helicobacter pylori bacteria in the gut and Parkinson’s disease; and women’s health and sexuality.series.
Blogger: Kathleen Kelly Reardon
Topics covered: painting how-to for people with Parkinson's and others
Blogger: Fran Lo, a person with Parkinson's (PWP)
Topics covered: how to find a support group, how to find PD-specific exercise classes, support for Parkinsonisms, finding a physical therapist, online support communities, books and online resources for finding out about symptoms and treatments, what the different and various foundations for PD actually do.
Blogger: Bruce Ballard, diagnosed with Parkinson's at age 59
Topics covered: quality of life, medication schedule, ping-pong for PD, teaching with Zoom, and more!
Blogger: Zach Galati
Topics covered: surviving winter, Parkinson's and coronavirus, staying active during a pandemic, being the child of a parent with PD, being a good spouse and care partner, telehealth, exercising at home, common PD misconceptions, PD boxing, hospitalization with PD, and more.
Blogger: Michael Okun, MD, and Indra Subramanian, MD
Topics covered: urinary issues, speech therapy, sexual dysfunction, caring for the PD caregiver, PD genetics, mindfulness, music & PD, occupational therapist usefulness, and more!
Blogger: Sarah King, PT, DPT
Frequency: Irregular (February 2016 - May 2019)
Topics covered: exercise, nutrition, mindset & mood, energy & sleep, surgery & medication
Blogger: Maria De León, neurologist (retired), person with Parkinson's
Topics covered: beauty tips for PD, making the most of PD, health and PD, PD Advocacy, fashion tips for women with PD, care partners, Women&PD Initiative, marriage and PD, weight changes in PD, and more!
Topics covered: telemedicine, anxious toes, soulder pain with PD, painting with PD, personal DBS experiences, and more.
Blogger: Sherri Woodbridge
Topics covered: what are the odds of developing Parkinson’s disease; a slithering snake, a two-year-old, and his granny; poetry; photography; DBS; for the caregivers; a thing about nurses; and non-parkinson’s related writings.
Blogger: Siddharth Kharkar, MD, neurologist
Topics covered: symptoms, diagnosis, parkinson's plus syndromes, slowing progression, medications, non-motor symptoms, deep brain stimulation, cause, latest news and research
Blogger: Robert Rogers, PhD
Topics covered: natural therapies that are safe and cause no harmful side effects.
Blogger: Hannah Grassie, speech language pathologist (SLP)
Topics covered: picking your care team, modifying your day to adapt to PD, how professionals should prepare someone with PD for an assessment, getting involved with the PD community, balancing PD with family life, 5 ways to up your goal writing game, untangling PD medical speak, cognitive changes, young onset PD, dysphagia, clinical tools to stay informed about PD, vocal changes in PD, how to prepare for Dr. visits, apathy, and more.
Blogger: Parkinson's Foundation
Frequency: Irregular, frequent
Topics covered: PD and coronavirus, research updates, discussing difficult topics with your doctor, emergency preparedness, tips for living with PD, etc.
Blogger: Contributions from the Parkinson’s community
Topics covered: The brightest slices of positivity from across the Parkyverse, including hacks, perks, inspiring people and funny stories.
Bloggers: Allan Cole and Chris Tracey
Topics covered: Young-onset and general PD issues, including living well, parenting, getting at PD diagnosis, loss and grief, resilience, disclosing a PD diagnosis, advocacy, medical care, DBS, spirituality, professional implications, research and treatment, legal issues, humor, hope, friendship, and more.
Blogger: Allison Smith, MA, LMFT and person with PD
Topics covered: medications, dietary protein, apathy, getting dressed, grief, etc. Most presented with humor.
Bloggers: Christopher Lion and Lorraine Wilson
Frequency: Frequent (several posts a month)
Topics covered: A assortment of art created by people with Parkinson's, including photography, painting, poetry and other writings, etc. with brief biographies of some of the artists whose works are posted to the blog.
Blogger: Simon Stott, postdoctoral Parkinson’s researcher and president of his Parkinson’s UK support branch
Topics covered: trying to digest gut research; improving patient education; wearable tech 4 Parkinson’s; stress and Parkinson’s disease; old dogs new tricks, repurposing drugs for Parkinson’s; and milestones in Parkinson’s disease research and discovery.
Blogger: Kai Rubenstein, person with Parkinson’s
Topics covered: lower protein meals, losing your sense of smell and taste, selection of recipes and gardening posts, staying connected to your partner, foot stretches and exercises, balance, urinary urgency, getting dressed, exercise, staying positive, learning to fall, participating in clinical trials, tech tools for PD, meditation, and more.
A Soft Voice in a Noisy World: Dealing and Healing with Parkinson's Disease
Bloggers: Karl Robb, Person with Parkinson's, and Angela Robb, Karl's wife and Parkinson's Care Partner
Topics covered: gratitude, Parkinson's awareness, tolls and resources, PD during covid, home in transition, etc.
Blogger: Stanford Parkinson's Community Outreach Staff
Frequency: Frequent (several posts a month)
Topics covered: upcoming webinars and conferences, webinar and conference notes, shared articles and podcasts about PD from around the web.
Blogger: Benjamin Stecher, diagnosed with Parkinson's at age 29
Topics covered: PD research, genetics, myths of degenerative brain diseases, post-pandemic education, how language creates disease, RNA, and more.
Blogger: Sharon Krischer
Topics covered: PD boxing packs a punch; exercise can be a boon to people with Parkinson’s disease; 100 (posts) and counting; book reviews and recommendations; World Parkinson’s Conference seminar notes; and exercise and PD.
Blogger: Soania Mathur, MD and person with Young Onset Parkinson's
Topics covered: Post fall into five categories: quality of life, outlook, relationships, clinical trials and community.
Vloggers: Leslie and Jason Weiser
Frequency: 13 episodes (2019 - 2022)
Topics covered: Jason Weiser was diagnosed with Lewy Body Dementia (LBD) at age 45 after military service and a head injury. This series documents his experience trying to continue a full life with LBD and his wife, Leslie's, experience as his care partner. They discuss symptoms, doctor appointments, decline, grief, getting on with life, and more.
Podcaster: Brian Grant, former NBA basketball player, and Heather Kennedy, founder of PD advocacy site Kathleen Kiddo
Frequency: Four weekly episodes in April 2022 with more planned for fall 2022.
Topics covered: daily living with yound onset Parkinson's, socializing, dating, parenting, and the benefits and challenges of adopting a healthy lifestyle.
Podcaster: Various broadcasters for the European Parkinson's Disease Association
Frequency: Six episodes (originating May 2019)
Topics covered: parenting with PD, caring for a family member with PD, PD and work, PD assessment tools, women and PD, and getting creative with PD.
Podcaster: Larry Gifford, National Director of Talk Radio for Corus Entertainment in Canada.
Frequency: Every other week (Sep. 2018 - June 2020)
Topics covered: a first-hand account of what it is like to live with PD for Gifford, his family, and other members of the worldwide Parkinson’s community. Answering probing questions from co-host Niki Reitmayer and letting listeners eavesdrop in on intimate chats with his wife, Gifford uses humour to diffuse heavy content and give the podcast a hopeful tone.
Last updated September 2020 by Stanford Parkinson's Community Outreach.