Stanford Parkinson's Community Outreach
and
Stanford APDA Information & Referral Center
Based at Stanford University Medical Center
Contact: Robin Riddle, Coordinator, phone 650-724-6090
- referrals to physicians who diagnose and manage PD, and other healthcare professionals (PTs, OTs, SLPs, counselors, etc)
- "Stanford PD Info" emails that include a monthly list of guest speakers and special programs at Northern California PD support groups and a monthly list of Parkinson's webinars
- "PD caregiver" emails that focus on suggestions, resources, and sympathetic viewpoints that may be of interest to caregivers. Included is a monthly list of webinars that are caregiver-oriented.
- Parkinson's community blog
- educational seminars around the Bay Area on topics such as cognitive issues in PD, Lewy Body Dementia, caregiver communication, and genetics
- social worker-facilitated PD caregiver-only support groups in Menlo Park, Los Altos, Belmont, and Daly City
American Parkinson Disease Association (APDA)
Based in New York
Contact: APDA National Office, tollfree phone 800-223-2732
- educational booklets and pamphlets on various topics, such as nutrition, medications to avoid, constipation, and depression. Some publications are in Spanish, Portuguese, German, Italian, Russian, and Chinese. All can be ordered online and will be mailed. Or, many can be downloaded.
- quarterly newsletter with articles by PD experts or PD research updates
- blog posts about three times monthly by movement disorder specialist Rebecca Gilbert, MD, PhD
- jointly operates National Resource Center for Rehabilitation. An exercise helpline allows communication with a licensed physical therapist at Boston University who can answer questions about exercise.
- about 30 Information & Referral Centers around the US
Davis Phinney Foundation
Based in Colorado
Contact: Davis Phinney Foundation, tollfree phone 866-358-0285
- "Parkinson's 101" and "Living Well" online information
- blog of weekly artcles on living well with PD
- occasional events in the US
Michael J. Fox Foundation for Parkinson's Research
Based in New York
Contact: Michael J. Fox Fundation, tollfree phone 800-708-7644
- "Parkinson's 101" online information
- Fox Trial Finder, which matches those with PD and those who don't have PD with clinical trials in your area
- third Thursday webinar series
- Foxfeed Blog, weekly blog posts with research updates
Parkinson's Foundation
Based in Miami
Contact: Parkinson's Foundation, tollfree phone 800-473-4636. Note - this is the new name for the merged organizations of the National Parkinson Foundation and the Parkinson's Disease Foundation (which was based in New York).
- "Ask the Doctor" online forum
- "Aware in Care" kit to take with you to the hospital
- up-to-date research news on the Parkinson's Today Blog
Medical News Today
Based in Brighton, UK
Contact: Medical News Today
- Parkinson’s Disease News, a weekly blog on the latest Parkinson’s research by Medical News Today staff writers.
- All About Parkinson’s Disease overview information pages.
Northwest Parkinson's Foundation
Based in Seattle
Contact: NWPF, toll free phone 877-980-7500
- weekly e-newsletters that compile PD-related news articles from around the world
- occasional webinars
- weekly streaming yoga class (and archives of past classes)
Parkinson's UK
Based in London
Contact: Parkinson's UK
- publications on PD for laypeople and healthcare professionals
- moderated forum with posts for specific audiences such as newly-diagnosed or carers, and posts on specific topics such as treatment, impulsive and compulsive behavior, and research
Parkinson and Movement Disorder (PMD) Alliance
Based in Tucson, AZ
Contact: PMD Alliance, phone 800-256-0966
- offers webinars with a movement disorder specialist the fourth Wed of every month
- offers webinars with speech therapists, physical therapists, or occupational therapists the third Wednesday of each month
- offers weekly video support groups on Tuesdays, Thursdays, and Fridays
Last updated August 2020 by Stanford Parkinson's Community Outreach
