Caregivers need to have their own private support group meetings because they need to vent, share, learn tips and resources, and receive support from others walking the same path.
Here you will find Parkinson's caregiver support groups in Northern California. Most virtual groups restrict attendees to the local area.
Are you in the SF Bay Area but don't see a PD caregiver group near you? We have a list of caregiver-only support groups for those dealing with dementia. Note that most attendees are likely dealing with Alzheimer's Disease.
Are the meeting days/times below not ideal for you? Or do you live outside of Northern and Central California? Check out our lists of online support groups (meeting any time) and scheduled virtual nationwide support groups.
> PD and PD Dementia Caregiver-Only Support Groups - Bay Area
> Atypical Parkinsonism Caregiver-Only Support Groups - Bay Area
> PD Caregiver-Only Support Groups - Northern And Central California (beyond the Bay Area)
Bay Area - LBD Caregiver-Only Support Group
Contact for meeting details: Robin Riddle, 650-814-0848, Brain Support Network
Facilitators: Caregivers whose loved ones have passed away and the Lewy body dementia diagnosis was confirmed through brain donation
Notes:
- 2024 meeting dates. 2nd Sunday of odd numbered months, except May, which is the 3rd Sunday
- For caregivers coping with Lewy body dementia, Parkinson's disease dementia, and dementia with Lewy bodies who live in Northern or Central California
Virtual meetings
2nd Sunday, odd months, 5-7pm
RSVP: Yes, required
Belmont - PD Caregivers Support Group
Location: Silverado Belmont Hills Memory Care, 1301 Ralston Ave, Belmont, CA 94002
Contact for meeting details: Denise Dagan, 650-867-7419, Stanford Parkinson’s Community Outreach
Facilitator: Ann Blick Hamer, LCSW
Notes:
- For caregivers living/working in the Belmont area - not just caregivers whose family members are Silverado residents.
In-person meetings, indoors
1st Thursday, 11:30am-1:30pm
Virtual meetings
3rd Thursday, 11:30am-1:30pm
RSVP: Yes, required
Berkeley - Adult Children of People with Parkinson’s Support Group
Contact and facilitator: Rachel Goldstone, MD
Contact for meeting details: PD Active, 510-479-6119
Notes:
- Open to those who are adult children of people with Parkinson's
Virtual meetings
4th Monday, 7-8:30pm
RSVP: No
Berkeley - Mild / Recently Diagnosed Care Partners Support Group
Contact for meeting details: PD Active, 510-479-6119
Notes:
- For caregivers of those who have been recently diagnosed or have mild PD symptoms
- Self-facilitated
Virtual meetings
3rd Wednesday, 3:30-5pm
RSVP: No
Berkeley - Moderate Care Partners Support Group
Contact for meeting details: PD Active, 510-479-6119
Notes:
- For caregivers of those with moderate PD symptoms
- Self-facilitated
Virtual meetings
2nd and 4th Wednesday,
3-5pm
RSVP: No
Brentwood - PD Caregivers Support Group
Location: various restaurants in the Brentwood area
Contact for meeting details: Sue Schnittker, 925-550-2756
Notes:
- In-person monthly lunches resumed January 2023
In-person meetings
3rd Thursday, 11:30am
RSVP: No
Daly City - PD Caregivers Support Group
Contact for meeting details: Denise Dagan, 650-867-7419 Stanford Parkinson’s Community Outreach
Facilitator: Ann Blick Hamer, LCSW
Notes:
- For caregivers living/working in the Daly City/San Francisco area
Virtual meetings
2nd Tuesday, 11:30am-1:30pm
RSVP: Yes, required
Los Altos - Adult Child PD Caregivers Support Group
Contact for meeting details: Denise Dagan, 650-867-7419, Stanford Parkinson’s Community Outreach
Facilitator: Alanah Rosenbloom, MSW
Notes:
- For adult child caregivers living/working on the San Francisco Peninsula or the South Bay, or whose parent lives/receives medical care here
Virtual meetings
4th Tuesday, 7-8:30pm
RSVP: Yes, required
Los Altos - PD Caregivers Support Group
Location: Los Altos United Methodist Church (LAUMC), 655 Magdalena Ave, Los Altos, CA 94024
Contact for meeting details: Denise Dagan, 650-867-7419, Stanford Parkinson’s Community Outreach
Facilitator: Alanah Rosenbloom, MSW
Notes:
- For caregivers living/working in the Los Altos area
In-person meetings, indoors
2nd Tuesday, 10:30am-noon
RSVP: Yes, required
Menlo Park - PD Caregivers Support Group
Location: Outdoors of group member's home, Menlo Park, CA, 94025
Contact for meeting details: Robin Riddle, 650-724-6090, Stanford Parkinson’s Community Outreach
Facilitator: Susan Weisberg, LCSW
Notes:
- For caregivers living/working in the Menlo Park area
In-person meetings, outdoors
2nd Friday, Noon-2pm
RSVP: Yes, required
Menlo Park - PD Caregivers Support Group
Location: Outdoors of group member's home, Menlo Park, CA, 94025
Contact for meeting details: Robin Riddle, 650-724-6090, Stanford Parkinson’s Community Outreach
Facilitator: Stephne Lencioni, LCSW
Notes:
- For caregivers living/working in the Menlo Park area
In-person meetings, outdoors
3rd Tuesday, Noon-2pm
RSVP: Yes, required
Mill Valley PD Caregiver Support Group
Location: The Redwoods, 40 Camino Alto, Room 2/4 L, Mill Valley, CA 94941
Contact for meeting details: Debby Thurlow, 415-302-0362
Notes:
- Periodic guest speakers
- Parking is more available across the street at Safeway
- People with PD meet in a separate room at the same time
In-person meetings
1st Thursday,
11:30am-1:30pm
RSVP: No
Napa - PD Caregivers Support Group
Location: Napa Senior Center, Oak Room, 1500 Jefferson St., Napa, CA 94559
Contact for meeting details: Ellin Becker, cell 415-577-6000
Notes:
- RSVP required before each meeting
In-person meetings, indoors
3rd Thursday, 2:45-4:45pm
RSVP: Yes, required
San Francisco - Care Partner Support Group
Contact: Lisa Oei, PD-Connect, 415-604-2477
Notes:
- At the meeting time use this link to join
- Began March 2023
Virtual Meetings
2nd Monday, 2:30-3:30pm
In-Person Meetings
On hiatus
RSVP: No
San Jose (The Villages) - PD Caregivers Support Group
Location: 5000 Cribari Lane, San Jose, CA 95135, Cribari Center Forum Room
Contact for meeting details: Alice Pratte, 408-223-8033
- Tell staff at the entrance gate you are attending the Parkinson's Caregiver Support Group.
- Entrance gate staff and signage will direct attendees to the Cribari Center
In-person meetings
3rd Thursday, 10-11am
RSVP: No
San Jose (Willow Glen) - PD Caregivers Support Group
Location: St. Francis Episcopal Church, 1205 Pine Street, San Jose, CA 95125
Contact for meeting details: Charmaine Eng, 408-723-8116
Notes:
- For caregivers living/working in the San Jose area
In-person meetings
4th Wednesday, 1:30-3:30pm
RSVP: No
San Mateo - LBD Caregiver-Only Support Group
Location: Restaurant, San Mateo, CA 94401
Contact for meeting details: Robin Riddle, 650-814-0848, Brain Support Network
Facilitators: Caregivers whose loved ones have passed away and the Lewy body dementia diagnosis was confirmed through brain donation
Notes:
- 2024 meeting dates. 2nd Sunday of even numbered months, except February, which is the 3rd Sunday.
- Group meets on the outdoor patio of a restaurant. (Indoors, if poor weather.) Most attendees have dinner (separate checks).
- For caregivers coping with Lewy body dementia, Parkinson's disease dementia, and dementia with Lewy bodies who live in Northern or Central California
In-person meetings, outdoors
2nd Sunday, even months, 5-7pm
RSVP: Yes, required
Santa Cruz - PD Caregivers Support Group
Contact for meeting details: Audrey Trautwein, cell 831-419-2995
Notes:
- There's also a 2nd/4th Wednesday (2-3:30pm) virtual group that is closed to new members
Virtual meetings
3rd Wednesday, 1-2:30pm
RSVP: No
Santa Rosa - PD Care Partners Support Group
Contact for meeting details: Meg Alexander
Notes:
- Self-facilitated
Virtual meetings
1st and 3rd Friday, 10:45am-12:15pm
RSVP: No
Victorville ("High Desert") PD Caregivers Support Group
Contact for meeting details: Inland Caregiver Resource Center, 800-675-6694
Facilitator: Stephanie Hensley, MSG
Virtual meetings
2nd Thursday, 10am-noon
RSVP: Yes, required
Walnut Creek - PD Caregivers Support Group
Contact for meeting details, and Facilitators: Lorie McGuinness, 925-980-4011, and Donna Campo, 925-324-0998
Notes:
- For caregivers living/working in the Walnut Creek area
Virtual meetings
1st Friday, 1-2:15pm
RSVP: No
Walnut Creek - PD Caregivers Support Group
Location: Grace Presbyterian Church, 2100 Tice Valley Blvd., Walnut Creek, CA 94595
Contact for meeting details, and Facilitators: Jan Browne, 925-899-6685, and Linda Leong, 925-944-3582
In-person meetings
3rd Saturday, 10-11:15am
RSVP: No
Bay Area - MSA Caregiver-Only Support Group
Contact for meeting details: Robin Riddle, 650-814-0848, Brain Support Network
Facilitators: Caregivers whose loved ones have passed away and the multiple system atrophy diagnosis was confirmed through brain donation
Notes:
- 2024 meeting dates. 2nd Sunday, except in May, which is the 3rd Sunday
- For caregivers coping with multiple system atrophy, atypical parkinsonism, or Parkinson's Plus who live in Northern or Central California
Virtual meetings
2nd Sunday, odd months, 5-7pm
RSVP: Yes, required
Bay Area - PSP and CBD Caregiver-Only Support Group
Contact for meeting details: Robin Riddle, 650-814-0848, Brain Support Network
Facilitators: Caregivers whose loved ones have passed away and the progressive supranuclear palsy or corticobasal degeneration diagnosis was confirmed through brain donation
Notes:
- 2024 meeting dates. 2nd Sunday, except in May, which is the 3rd Sunday
- For caregivers coping with progressive supranuclear palsy, corticobasal degeneration, or corticobasal syndrome who live in Northern or Central California
Virtual meetings
2nd Sunday, odd months, 5-7pm
RSVP: Yes, required
Morgan Hill - LBD Caregiver-Only Support Group
Location: Centennial Recreation Center, 171 W. Edmundson Ave., Morgan Hill, CA 95037
Email: caregivers@berghoff-foundation.org
Facilitator: a licensed geriatric nurse practitioner who is also an experienced LBD caregiver
Notes:
- Interested caregivers MUST email before attending the first time
- For family members who are caring for a loved one with Lewy body dementia (LBD)
- Offered by the Susan & Charles Berghoff Foundation
In-person meetings
4th Sunday,
2:30-4pm
RSVP: Yes, required
San Mateo - MSA Caregiver-Only Support Group
Location: Restaurant, San Mateo, CA 94401
Contact for meeting details: Robin Riddle, 650-814-0848, Brain Support Network
Facilitators: Caregivers whose loved ones have passed away and the multiple system atrophy diagnosis was confirmed through brain donation
Notes:
- 2024 meeting dates. 2nd Sunday of even numbered months, except February, which is the 3rd Sunday
- Group meets on the outdoor patio of a restaurant. (Indoors, if poor weather.) Most attendees have dinner (separate checks).
In-person meetings, outdoors
2nd Sunday, even months, 5-7pm
RSVP: Yes, required
San Mateo - PSP and CBD Caregiver-Only Support Group
Location: Restaurant, San Mateo, CA 94401
Contact for meeting details: Robin Riddle, 650-814-0848, Brain Support Network
Facilitators: Caregivers whose loved ones have passed away and the progressive supranuclear palsy or corticobasal degeneration diagnosis was confirmed through brain donation
Notes:
- 2024 meeting dates. 2nd Sunday of even numbered months, except February, which is the 3rd Sunday
- Group meets on the outdoor patio of a restaurant. (Indoors, if poor weather.) Most attendees have dinner (separate checks).
In-person meetings, outdoors
2nd Sunday, even months, 5-7pm
RSVP: Yes, required
Auburn - Caregivers Only Lunch
Location: Club Car Restaurant, 836 Lincoln Way, Auburn, CA 95603
Contact for meeting details: Karen Hancock, 530-885-0950
In-person meetings
3rd Tuesday, 11:30am
RSVP: No
Davis caregivers
Location: Davis Senior Center, 646 A Street, Davis, CA 95616
Contact for meeting details: Karen Eagan, 530-564-4323
Notes:
- Masks required
In-person meetings
2nd and 4th Thursday, 11am-12:30pm
RSVP: No
El Dorado Hills / Folsom - Caregiver Lunch
Location: Round Table Pizza, 2793 E. Bidwell Street, #100, Folsom, CA 95630
Contact for meeting details: Larry Alver, 916-933-2465
In-person meetings
1st and 3rd Friday, 11:30am-1pm
RSVP: No
Eureka (“Humboldt County”) - PD Caregivers Support Group
Contact for meeting details: Rose Bond, 707-826-7764
Virtual meetings
1st and 3rd Wednesday, 11am-Noon
RSVP: No
Lodi - PD Caregivers Support Group
Location: GracePoint Church, Room 132, 801 S. Lower Sacramento Rd., Lodi, CA 95242
Contact for meeting details: Charlene Martin, 916-600-5769
In-person meetings
3rd Monday, 10am-Noon
RSVP: Yes, required
Virtual meetings
2nd Wednesday,
1:30-3pm
RSVP: Yes, required
Nevada City/Grass Valley - Carepartners Group
Location: Location: The Communal Cafe, 233 Broad St., Nevada City, CA 95959
Contact for meeting details: Jennifer Westoby, 408-313-3524 or 530-268-2563
In-person meetings
4th Thursday, 11am
RSVP: No
Sacramento / Gold River - Lewy Body Dementia Care Partner Group
Contact for meeting details: Denise Davis, 916-930-9080, Alzheimer's Association
Virtual meetings
2nd Thursday, 10-11:30am
RSVP: No
Sacramento - PD Caregivers Lunch Bunch
Contact for meeting details: Gain Saetern, 916-728-9333, ext. 109, Del Oro Caregiver Resource Center
Virtual meetings
3rd Tuesday, 11am-1pm
RSVP: No
San Luis Obispo and Northern Santa Barbara County - PD Caregivers Support Group
Contact for meeting details: Coast Caregiver Resource Center (CCRC), 805-569-8950
Notes:
- In collaboration with Central Coast Parkinson Association
Virtual meetings
Last Wednesday, 10-11:30am
RSVP: Yes, required
Santa Barbara - PD Caregivers Grief Group
Contact for meeting details: Parkinson Association Santa Barbara, 805-683-1326
- Meets at group member's home
- For those who have lost loved ones
In-person meetings
Tuesdays, 11am
RSVP: No
Santa Barbara - PD Care Partners
Location: St. Andrews Presbyterian Church, 4575 Auhay Drive at Arroyo, Santa Barbara, CA 93110
Contact for meeting details: Parkinson Association Santa Barbara, 805-683-1326
- Discussion facilitated by counselors from the Center for Successful Aging
In-person meetings
Tuesday, 1-2:15pm
Virtual meetings
Tuesday, 2:30-4pm
RSVP: No
Last updated August 2023 by Stanford Parkinson's Community Outreach. Are you a support group leader who would like to contact us about this page? Email Robin Riddle
