New Patient Information
Thank you for your interest in the Stanford Children’s Health Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) Clinic.
As a result of the high volume of patients seeking our clinical services, and the limited staff in the PANS clinic, we have created clinical research goals, which we think will expedite finding the causes and cures of PANS so that in the future more clinicians and academic centers will care for patients with PANS.
For the purposes of accelerating PANS research, only patients who meet criteria for a PANS clinical observational or interventional study will qualify for entry into our clinic. As we get more funds to support our clinic and research, we will be able to open our clinic to more patients.
For outpatient PANS AND IBH referrals provide the following:
PLEASE DO NOT START NSAIDS, STEROIDS, or other anti-inflammatories, this will obscure the diagnosis and treatment. Patients who are NEW-ONSET, HYPER-ACUTE onset, and UNTREATED will have priority and their entry into clinic will be expedited.
1. Complete SCH Referral Request Form *Process as urgent if case is NEW-ONSET
2. Include Relevant Notes and a Copy of patient’s insurance information
4. Fax all forms to 650-721-2884 or submit via email to mdportal.stanfordchildrens.org
5. Please also email the patient’s name/DOB/parents name and contact number to the IBH Clinic at ImmuneBehavioralHealthClinic@stanfordchildrens.org
Clinic staff may contact the family and solicit an intake questionnaire while the referral is processed.
**acute onset, untreated cases will be processed urgently, please reach out via email ASAP and avoid use of advil, naproxen, steroids, anti inflammatories, etc**
Both our clinical and basic science research programs are focused on discovering the early events leading up to the presentations of PANS, because we believe that understanding the triggers combined with biochemical and immunological profiles will lead to insights that will inform the development of treatment strategies.
As our program procures more funding, we hope to expand our clinical services and research missions to include children with chronic impairment. Unfortunately, we cannot take on this patient population at this time due to lack of resources and clinical expertise with regards to these clinical syndromes. We know that this particular group of children is suffering the most, thus we are actively seeking funding to expand our program to include these children. In the future, we hope to hire a behavior medicine specialist so that we can offer clinical services and develop a research agenda around these vulnerable pediatric populations.
As a result of limited staff, we are currently only seeing patients who live in 1 of the 7 counties (Contra Costa, Alameda, San Francisco, Marin, San Mateo, Santa Clara, or Santa Cruz) in California. In order to qualify for entry into our clinic, the patient must be established with their primary doctor for at least 3 years within this service area. Rarely, we make exceptions to this rule if a patient’s case is: 1) unique/rare and meets criteria for a funded observational study, or 2) meets criteria for a funded interventional study.
Stanford Children’s Health recognizes the difficulty in securing treatment for children with PANS, as this disorder is quite disabling, and there is a limited number of PANS providers. We are working diligently to expand our ability to care for more children afflicted with PANS.
We also recommend visiting the following websites, which may be helpful to you:
• NIMH PANS/PANDAS
• PANS/PANDAS Physician Network
• PANDAS Network
• Revised Treament Guidelines Released for Pediatric Acute-onset Neuropsychiatric Syndrome (PANS/PANDAS) - published July 2017 in Journal of Child & Adolescent Psychopharmacology (JCAP Release).