New Patient Information
Thank you for your interest in the Stanford Children’s Health Immune Behavioral Health (formerly PANS) Clinic.
As a result of the high volume of patients seeking our clinical services, and the limited staff in the PANS clinic, we have created clinical research goals, which we think will expedite finding the causes and cures of PANS so that in the future more clinicians and academic centers will care for patients with PANS.
For the purposes of accelerating PANS research, only patients who meet the criteria for a PANS clinical observational or interventional study will qualify for entry into our clinic. As we get more funds to support our clinic and research, we will be able to open our clinic to more patients.
For outpatient PANS AND IBH referrals provide the following:
PLEASE DO NOT START NSAIDS, STEROIDS, or other anti-inflammatories, this will obscure the diagnosis and treatment. Patients who are NEW-ONSET, HYPER-ACUTE onset, and UNTREATED will have priority and their entry into the clinic will be expedited.
1. Complete SCH Referral Request Form *Process as urgent if the case is NEW-ONSET
2. Include Relevant Notes and a Copy of the patient’s insurance information
4. Fax all forms to 650-721-2884 or submit via email to mdportal.stanfordchildrens.org
5. Please also email the patient’s name/DOB/parent's name and contact number to the IBH Clinic at ImmuneBehavioralHealthClinic@stanfordchildrens.org
Clinic staff may contact the family and solicit an intake questionnaire while the referral is processed.
**acute onset, untreated cases will be processed urgently, please reach out via email ASAP and avoid the use of Advil, naproxen, steroids, anti-inflammatories, etc**
Both our clinical and basic science research programs are focused on discovering the early events leading up to the presentations of PANS, because we believe that understanding the triggers combined with biochemical and immunological profiles will lead to insights that will inform the development of treatment strategies.
As our program procures more funding, we hope to expand our clinical services and research missions to include children with chronic impairment. Unfortunately, we cannot take on this patient population at this time due to lack of resources and clinical expertise with regards to these clinical syndromes. We know that this particular group of children is suffering the most, thus we are actively seeking funding to expand our program to include these children. In the future, we hope to hire a behavior medicine specialist to offer clinical services and develop a research agenda around these vulnerable pediatric populations.
We also recommend visiting the following websites, which may be helpful to you:
- NIMH PANS/PANDAS
- PANS/PANDAS Physician Network
- The Neuroimmune Foundation
- Revised Treatment Guidelines Released for Pediatric Acute-onset Neuropsychiatric Syndrome (PANS/PANDAS) - published July 2017 in Journal of Child & Adolescent Psychopharmacology (JCAP Release).