CurePSP Center of Care at Stanford

We will inform you as soon as we start any clinical trials and enrollments for research at the CurePSP Center.

Support Stanford research into the causes of Atypical Parkinsonism

Effective ways to diagnose and treat Atypical Parkinsonism —or at least delay its onset or progression—are needed desperately. Moreover, finding ways to improve patients' quality of life at every stage is also a priority. A gift to the CurePSP Center will support the work of Dr. Montaser Kouhsari to expand her research in cognitive impairment to Atypical Parkinsonism, aiming to identify a cognitive biomarker to improve diagnostic accuracy, predict clinical symptoms, or identify the underlying pathology. The underlying pathology of atypical Parkinsonism is vast; therefore, such a biomarker is critical to the success of future specific clinical trials, which are essential to developing potential therapies and a cure for Atypical Parkinsonism. If you’d like to make a donation for this purpose, choose from the following two options.

Donate online:

• Visit makeagift.stanford.edu
• Select Stanford Medicine from drop down menu
• Choose “Other Designation”, enter “CurePSP Research Fund”, enter dollar amount
• Fill in your information and your gift specifications
• Continue to payment form

Donate by mail:

• Make your check payable to Stanford University
• Add "CurePSP Research Fund" on the memo line of the check
• Mail your donation to:

Stanford Medicine
ATTN: Anne Longo
485 Broadway Street, U465
Redwood City, CA  94063

For questions about giving, please contact:

Medical Center Development
Phone: 650.725.2504
Email: medicalgiving@stanford.edu
Website: medicalgiving.stanford.edu

Stanford University is a non-profit organization and gifts are tax deductible.

PSP, CBD, and MSA - Best Local Resources

Bay Area PSP, CBD, and MSA Caregiver Support Group has caregiver-only support group meetings on a Sunday evening, from 5-7pm, usually the 2nd Sunday of each month, alternating between a San Francisco Bay Area restaurant in San Mateo, CA and virtual meetings for those in Northern and Central California.  An email list for updates on PSP, CBD, and MSA research and resources for coping with these disorders.  Plus, Brain Support Network helps PSP, CBD, and MSA group members donate a loved one's brain for research.  Contact group leader Robin Riddle by phone 650-814-0848 or email to be added to the email list or for meeting schedule.

Bay Area PSP/CBD Support Group has virtual support group meetings, usually from 2-3pm on the 2nd Sunday of odd months, for those with PSP or CBD in Northern and Central California.  An email list for updates on PSP and CBD research and resources for coping with these disorders.  Plus, Brain Support Network helps PSP and CBD group members donate their brain for research.  Contact group leader Robin Riddle by phone 650-814-0848 or email to be added to the email list or for meeting schedule.

Bay Area MSA Support Group has virtual support group meetings, usually from 3-4pm on the 2nd Sunday of odd months, for those with MSA in Northern and Central California.  An email list for updates on MSA research and resources for coping with these disorders.  Plus, Brain Support Network helps MSA group members donate their brain for research.  Contact group leader Robin Riddle by phone 650-814-0848 or email to be added to the email list or for meeting schedule.

Belmont, Daly City, Los Altos, and Menlo Park Parkinson's Caregiver Support Groups, organized by Stanford University.  These caregiver-only support group meetings are held on weekdays, generally from noon to 2pm, once a month.  While these groups are focused on caregivers for those with Parkinson's Disease (PD), caregivers coping with PSP, CBD, or MSA are also welcome.  Visit the Stanford Parkinson's webpage of PD caregiver-only support group meetings to learn the contact info for the group leaders.

Parkinson's Support Groups, in Northern and Central California.  While these groups are focused on Parkinson's Disease (PD), those with PSP, CBD, or MSA are also welcome.  Visit the Stanford Parkinson's webpage of PD support groups to learn the contact info for the group leaders.

PSP, CBD, and MSA - Best National Resources

Brain Support Network, based in California
Contact:  phone 650-814-0848, email

• lists of "Top Resources" for PSP, CBD, and MSA
• blog, including posts with webinar notes and important research
• email list for PSP, CBD, and MSA
• brain donation for those diagnosed with progressive supranuclear palsy, corticobasal degeneration, and multiple system atrophy around the US

CurePSP, based in NY.
Contact:  phone 800-457-4777

• downloadable publications and short videos on PSP, CBD, and MSA
• downloadable publications for healthcare professionals

MSA Coalition, based in VA.
Contact:  phone 866-737-4999

• national support hotline, phone 866-737-5999
• downloadable publications on MSA
• hosts annual national conference for the MSA community.  Recordings of the presentations are available online.

For more information please contact:
Robin Riddle, APDA Coordinator
email: rriddle@stanford.edu
phone 650-724-6090

The PSP COE are sponsored by CurePSP