Patient Resources

What to Expect as a New Patient

As a new patient  referred to Stanford's Interstitial Lung Disease (ILD) clinic, you will receive a packet of information before your appointment. This information will include the time and location of your visit,  clinic directions, and a new patient questionnaire to complete and bring with you to your clinic appointment.  This provides our ILD team with details about your medical history, previous treatments and the reason for the referral to our clinic.  Our patient care coordinators will work closely with you and your physicians to obtain the necessary medical records for our ILD team to review in advance of your appointment.

Understanding ILD

Interstitial Lung Disease refers to a large group of lung disorders that cause inflammation or scarring in the lung tissue.  The term  “interstitial” refers to the area that surrounds the airsacs (alveoli) of the lung.  This interstitial space is where the oxygen that you breath in moves across the wall of the alveoli and  into the small blood vessels (capillaries). Once the oxygen crosses this alveolar-capillary membrane  into the blood stream, it is delivered to your brain, muscles, kidneys, and other vital organs. The interstial space around the alveoli can become inflamed, thickened or scarred because of a variety of insults or reactions in the lungs.

Other Resources

If you or a loved one is diagnosed with an Interstitial Lung Disease, you may be overwhelmed with new information related to all of the testing and new treatments that might be prescribed.  You may have many unanswered questions about how this will affect your life, what to expect for the future, and how to deal with the symptoms of your lung problem or side effects of medications and other treatments.  It is critical to have access to accurate information and support.  There are many resources available to you and your family that provide accurate and supportive information.