News and Announcements

Stanford Interstitial Lung Disease Symposium:

"Diagnosing and Treating Fibrosing Interstitial Lung Diseases"

On February 29, 2020, Stanford University hosted an Interstitial Lung Disease CME conference for MDs, APPs, RNs, and other allied healthcare professionals, entitled: Diagnosing and Treating Fibrosing Interstitial Lung Diseases. The overall goal of this symposium was to provide clinicians an in-depth course on the critical aspects of care for patients with fibrotic ILDs. Our keynote speaker, Dr. Kevin Brown from National Jewish Health, addressed the role of anti-fibrotic therapies in non-IPF patients, and whether or not asymptomatic ILD patients should receive treatment. A case-based approach with a focus on radiologic interpretation was used to address management of ILD patients with connective tissue disease, unclassifiable disease, respiratory failure, hypoxemia, and familial lung fibrosis. The symposium attracted over 100 attendees and provided a unique opportunity for case-based discussions with leading experts in the field.

The symposium took place on Saturday February 29th, 2020 at Stanford University School of Medicine, Li Ka Shing Center for Learning and Knowledge.

Stanford ILD Monthly Support Group

"Drug Treatment for Interstitial Lung Disease:  What's Coming Down the Pike?"

Please join us for our next support group meeting on Friday, Sept. 11, 2020.  Dr. Joshua Mooney from Stanford's Interstitial Lung Disease and Lung Transplantation programs will review new medications in current or upcoming clinical trials and their mechanism of action to treat pulmonary fibrosis.  The meeting will be held virtually via Zoom.  Please contact Susan Jacobs if you have any questions or would like to be sent a Zoom invite  at 650 725 8083. Our annual support group meeting schedule can be found here.

Past Events

December 16, 2019

Stanford ILD Support Group Hosts Their 15th Annual Holiday Luncheon

Patients, family, and friends of Stanford's Center for Interstitial Lung Disease gathered for the Annual Holiday Support Group Luncheon on December 16, 2019. Guests enjoyed lunch, visiting, and a raffle highlighted with talks by Stanford  ILD Program clinicians and staff who presented what they felt were the significant accomplishments in interstitial lung disease from 2019.  This  support group meets every month  to provide education, resources, and support for patients with Interstitial Lung Disease and their  families, and caregivers.  At these meetings attendees spend time to visit and also share  and learn strategies from one another  to live well with ILD.  There is usually  a guest speaker address a topic of interest to the group including new research trials, exercise tips, nutrition, understanding breathing tests, and oxygen therapy.  The Stanford ILD program is under the direction of Dr. Rishi Raj, Pulmonary, Allergy and Critical Care Medicine.

For more information you can contact Susan Jacobs RN, MS at 650 725 8083.  You can also access our annual schedule.

 “2nd Annual Stanford Pulmonary Fibrosis Foundation Community Walk”

   Interstitial Lung Disease Program

 

"Team Stanford" patients, families, friends, and staff gathered  to celebrate "Pulmonary Fibrosis Awareness Day" sponsored by the Pulmonary Fibrosis Foundation (PFF). The Stanford Community Walk on the Stanford Campus started in the medical school courtyard and, led by ILD Program Director Rishi Raj MD, walked to the Cantor Museum where a docent met the group and talked about the significant pieces in the Rodin Sculpture Garden.  The event raised more than $3000 for the PFF. Pulmonary fibrosis is a deadly and complex disease that causes progressive scarring in the lungs. PF affects over 200,000 Americans annually and 50,000 people will be diagnosed this year alone. While there is still significant work to be done, progress in the fight against pulmonary fibrosis is being made. Your generosity allows the PFF to expand essential efforts for the PF community.

Thank you  for your generous support!  

 “Living Well With Pulmonary Fibrosis”

   Stanford University Medical Center Support Group

"Benefits of Pulmonary Rehabilitation" presented by Missy Von Luehrte, RN, BSN, Pulmonary Rehabilitation Nurse, El Camino Health, Mountain View, CA.

At our August 2019 Stanford Pulmonary Fibrosis Support Group meeting, Missy Von Luehrte reviewed the definition of Pulmonary Rehabilitation (PR) as a "multifaceted program for people with diseases that make breathing dificult".  The primary goals of PR are education, exercise and support and are provided by a multidisciplinary team of nurses, respiratory therapists, nutritionists, physical therapists and exercise physiologists.  Twice weekly sessions over about 8 weeks review understanding your diagnosis, airway clearance, medications and oxygen therapy, nutrition, energy conservation, stress and anxiety management, traveling with lung disease, and safe exercise.  Benefits of PR include improved shortness of breath, exercise and activity ability, muscle strength and endurance, and understanding of disease management and therapies.  Emotional benefits include better confidence, social interactions, and support all focused on enhancing quality of life.

For our upcoming schedule of our support groups, click here.

March 2, 2019

Stanford Hosts Successful Patient and Family Interstitial Lung Disease Seminar! " Pulmonary Fibrosis:  The Journey from Diagnosis to Treatment - An All-Day Seminar for Patients, Caregivers, and Families" 

The University of California at San Francisco (UCSF), University of California at Davis (UCD) and Stanford University have collaborated every other year since 2009 to provide a multi-disciplinary seminar for patients, family members, and caregivers. In March 2019, Stanford University  hosted the event with over 200  participants who heard from experts on topics related to the ‘journey’ from receiving a diagnosis of ILD through all potential treatment options. Multiple exhibitors had information and personnel available to interact with patients, families and caregivers to provide them information on local and online patient support groups, palliative care and hospice services, choices of oxygen equipment, caregiver support, clinical research trials, and local pulmonary rehabilitation programs.

Lectures are available at the following links: Overview of Interstitial Lung Disease: ILD 101; The Multidisciplinary Approach-Case #1Non-Pharmacologic Management: Palliative Care, Oxygen, Pulmonary Rehabilitation and Support Groups; The Multidisciplinary Approach-Case #2; Lung Transplant Evaluation; Lung Transplant Surgery and Recovery;   and Prospects for Stem Cell-Based Therapies.

 

 


December 12, 2018

"On Diagnosing Interstitial Lung Disease"


Rishi Raj MD, Director, Stanford Interstitial Lung Disease Program, presents School of Medicine Grand Rounds Lecture


December 10, 2018

Stanford ILD Support Group Hosts Their 14th Annual Holiday Luncheon

Patients, family, and friends of the Stanford 'Center for Interstitial Lung Disease' held their Annual Holiday Support Group Luncheon on December 10. The event was their largest yet with over 50 patients and family members from the Stanford Interstitial Lung Disease (ILD) program.  Dr. Rishi Raj gave a talk to the group on the importance of using a multi-disciplinary approach to make an accurate diagnosis of ILD. Guests enjoyed lunch, visiting, and a raffle.  This  support group meets every month or two to provide education, resources, and support for patients with Interstitial Lung Disease and their  families, and caregivers.  At these meetings attendees spend time to visit and also share  and learn strategies from one another  to live well with ILD.  There is usually  a guest speaker address a topic of interest to the group including new research trials, exercise tips, nutrition, understanding breathing tests, and oxygen therapy.  The Stanford ILD program is under the direction of Dr. Rishi Raj, Pulmonary and Critical Care Medicine.

For more information you can contact Susan Jacobs RN, MS at 650 725 8083.  You can also access our annual schedule.


September 15, 2018

"ILD Team Stanford" Hosts its First Annual Pulmonary Fibrosis Foundation Walk  

The  Stanford Interstitial Lung Disease (ILD) program,  within the Center for Advanced Lung Disease, held its first annual Pulmonary Fibrosis Foundation (PFF) Walk at Stanford on Saturday 9/15/18  to celebrate National Pulmonary Fibrosis Awareness Day.  Patients, family members, friends and staff from Stanford's ILD Program gathered together at the Alway Courtyard and walked over to the Cantor Center.  They were met by an outstanding and knowledgeable docent who toured the group through the Rodin Sculpture Garden.  PCCM physicians Dr. Rishi Raj,  Director of the Stanford ILD program, and Dr. Joshua Mooney , Director of the Stanford  PFF Care Center Network (CCN) site, led the group walk .  The event raised $2000  for the PFF to support research targeting the development of more effective  treatments of this challenging group of lung diseases that result in scarring of the lung from a variety of causes, including for idiopathic pulmonary fibrosis whose cause is unknown.  It was a successful day for raising awareness and research funds for patients with ILD.

Stanford’s ILD Clinic is one of 60  PFF Care Center Network’s  sites in the United States. The PFF CCN is a group of medical centers with expertise in accurately diagnosing and treating people living with pulmonary fibrosis (PF). 


March 2, 2019

Stanford ILD Program Presents First CME ILD Symposium for Healthcare Professionals

The Stanford ILD program held its first CME conference in San Jose, CA on February 10, 2018 at the San Jose Marriott.  Aproximately 70 healthcare professionals from around the San Francisco Bay Area attended the conference " Stanford Interstitial Lung Disease Symposium:  An Image-Centered Approach to Early Diagnosis and Treatment".  Keynote lecturer David Lynch MD, Professor in the Department of Radiology, National Jewish Health in Denver, Colorado reviewed the key hallmarks of making a radiologic diagnosis of fibrosing interstitial pneumonias.  Other topics covered were autoimmune-related ILDs, pathologic findings, patient management, non-pharmacologic treatments, lung transplantation, and stem cell research.