For Patients and Families
Stanford Patient Support Group
Upcoming Support Group Meeting
Stanford ILD Monthly Support Group- now on ZOOM!
Next Meeting Feb 3, 2025 , Zoom, Stanford University and Medical Center
Feb 3, 2025
Our next Stanford ILD Support Group meeting of 2025 is Monday 2/3/2025 from 11:30am-1:00pm and will be virtual on ZOOM. We will have our ILD Clinic RNs review "Understanding Your Lab Bloodwork Results", so bring your questions and join us for an informative session!
Please contact Susan Jacobs at ssjpulm@stanford.edu if you would like to be added to our ILD Support Group list and receive a Zoom invitation. View our annual support group meeting schedule (PDF).
Stanford ILD Monthly Support Group - Now on Zoom!
Kate Yablonsky, LCSW, "Life's Hacks" for patients living with Pulmonary Fibrosis.
January 6, 2025
Our Stanford ILD Support Group meeting on Monday 1/6/2025 from 11:30am-1:00pm and was virtual on ZOOM. We started the New Year with an Open Session with Kate Yablonsky LCSW leading a discussion on "life's hacks" to live well in the coming years.
Please contact Susan Jacobs at ssjpulm@stanford.edu if you would like to be added to our ILD Support Group list and receive a Zoom invitation. View our annual support group meeting schedule (PDF).
Stanford ILD Monthly Support Group - Now on Zoom!
Michelle Wilcox, Guide, Presenting the Anderson Collection, Stanford Museum
December 9, 2024
Our last Stanford ILD Support Group meeting of 2024 was Monday 12/9/2024 from 11:30am-1:00pm and will be virtual on ZOOM. We are in for a holiday treat- we had a virtual tour of “An Expanded Lens Exhibition” from the Anderson Collection at Stanford. This is a year-long exhibition that invites viewers to reimagine their relationship to artwork in the Anderson Collection by providing new interpretations of the permanent collection through historic arrangements and contemporary pairings on loan from the Anderson family
Please contact Susan Jacobs at ssjpulm@stanford.edu if you would like to be added to our ILD Support Group list and receive a Zoom invitation. View our annual support group meeting schedule (PDF).
Stanford ILD Monthly Support Group - Now on Zoom!
Susan Jacobs, RN, MS, Presenting on "Registries and Clinical Trials: All You Ever Wanted to Know"
November 4, 2024
Our Stanford ILD Support Group meeting was held on Monday 11/4/2024 from 11:30am-1:00pm and will be virtual on ZOOM. Our guest speaker was Susan Jacobs, RN, MS, Stanford University and Medical Center, from our Stanford ILD Program.
Please contact Susan Jacobs at ssjpulm@stanford.edu if you would like to be added to our ILD Support Group list and receive a Zoom invitation.
View our annual support group meeting schedule (PDF).
Stanford ILD Monthly Support Group - Now on Zoom!
Jonathan Cheong, PA-C, Presenting on "Flu, Pneumonia, and RSV Vaccines"
October 7, 2024
Our Stanford ILD Support Group meeting was held on Monday 10/7/2024 from 11:30am-1:00pm and will be virtual on ZOOM. Our guest speaker was Jonathan Cheong, PA-C, Stanford University and Medical Center, from our Stanford ILD Clinic.
Please contact Susan Jacobs at ssjpulm@stanford.edu if you would like to be added to our ILD Support Group list and receive a Zoom invitation.
View our annual support group meeting schedule (PDF).
Stanford ILD Monthly Support Group - Now on Zoom!
Yelizaveta (Liza) Sher, MD, Clinical Professor of Psychiatry, Stanford University and Medical Center
September 9, 2024
Our Stanford ILD Support Group meeting was Monday 9/9/2024 from 11:30am-1:00pm meeting through Zoom. Our guest speaker was Yelizaveta (Liza) Sher MD, Clinical Professor of Psychiatry, Stanford University and Medical Center, from our Stanford CF and Lung Transplant Program. Dr. Sher discussed mental health living with chronic lung disease including how anxiety and dyspnea are related and potential therapies, medications, and behavioral interventions such as pulmonary rehabilitation and exercise.
Please contact Susan Jacobs at ssjpulm@stanford.edu if you would like to be added to our ILD Support Group list and receive a Zoom invitation.
View our annual support group meeting schedule (PDF).
Upcoming Educational Seminars
PFF Summit
Pulmonary Fibrosis Foundation Summit 2025
November 13-15, 2025, Chicago
The Pulmonary Fibrosis Foundation Summit is coming to Chicago on November 13-15, 2025.
Learn more about the Summit and register to view the sessions
Stanford ILD Seminar for Patients and Families
Previous Seminar - Pulmonary Fibrosis:The Journey from Diagnosis to Treatment -An All-Day Seminar for Patients, Caregivers, and Families
Stanford University Hosts Successful Patient and Family Interstitial Lung Disease Seminar!
March 3, 2019
The University of California at San Francisco (UCSF), University of California at Davis (UCD) and Stanford University have collaborated every other year since 2009 to provide a multi-disciplinary seminar for patients, family members, and caregivers. In March 2019, Stanford University hosted the event with over 200 participants who heard from experts on topics related to the ‘journey’ from receiving a diagnosis of ILD through all potential treatment options. Multiple exhibitors had information and personnel available to interact with patients, families and caregivers to provide them information on local and online patient support groups, palliative care and hospice services, choices of oxygen equipment, caregiver support, clinical research trials, and local pulmonary rehabilitation programs.
Lectures are available at the following links:
- Overview of Interstitial Lung Disease: ILD 101 (PDF)
- The Multidisciplinary Approach-Case #1 (PDF)
- Non-Pharmacologic Management: Palliative Care, Oxygen, Pulmonary Rehabilitation and Support Groups (PDF)
- The Multidisciplinary Approach-Case #2 (PDF)
- LungTransplant Evaluation (PDF)
- Lung Transplant Surgery and Recovery (PDF)
- Prospects for Stem Cell-Based Therapies (PDF)
Events
Annual Stanford Pulmonary Fibrosis Foundation Community Walk 2024 raises $8,700 for the PFF!
September 7, 2024
On Saturday, September 7, "Team Stanford" patients, families, friends, and staff gathered in-person at LIttle Marina Green in S.F. to join other Bay Area supporters to celebrate "Pulmonary Fibrosis Awareness Month" sponsored by the Pulmonary Fibrosis Foundation (PFF). Team Stanford placed 3rd out of 23 Bay Area teams and raised nearly $8,700 for the PFF to expedite research, enhance care for individuals affected by the disease, and offer exceptional support and educational resources for patients, caregivers, family members, and healthcare professionals.
Pulmonary fibrosis is a deadly and complex disease that causes progressive scarring in the lungs, and it affects over 200,000 Americans annually with 50,000 people estimated to be diagnosed this year alone. While there is still significant work to be done, progress in the fight against pulmonary fibrosis is being made and your generosity allowed the PFF to expand essential efforts for the PF community. Thank you to all of our supporters!
3rd Annual Stanford Pulmonary Fibrosis Foundation Community Walk raises $2500 for the PFF!
September 19, 2020
Team Stanford" patients, families, friends, and staff gathered virtuallythis year to celebrate "Pulmonary Fibrosis Awareness Month" sponsored by the Pulmonary Fibrosis Foundation (PFF). We raised more than $2,500 for the PFF. Pulmonary fibrosis is a deadly and complex disease that causes progressive scarring in the lungs. PF affects over 200,000 Americans annually and 50,000 people will be diagnosed this year alone. While there is still significant work to be done, progress in the fight against pulmonary fibrosis is being made. Your generosity allowed the PFF to expand essential efforts for the PF community. Thank you!
2nd Annual Stanford Pulmonary Fibrosis Foundation Community Walk
Interstitial Lung Disease Program
September 14, 2019
"Team Stanford" patients, families, friends, and staff gathered to celebrate "Pulmonary Fibrosis Awareness Day" sponsored by the Pulmonary Fibrosis Foundation (PFF). The Stanford Community Walk on the Stanford Campus started in the medical school courtyard and, led by ILD Program Director Rishi Raj MD, walked to the Cantor Museum where a docent met the group and talked about the significant pieces in the Rodin Sculpture Garden. The event raised more than $3000 for the PFF. Pulmonary fibrosis is a deadly and complex disease that causes progressive scarring in the lungs. PF affects over 200,000 Americans annually and 50,000 people will be diagnosed this year alone. While there is still significant work to be done, progress in the fight against pulmonary fibrosis is being made. Your generosity allows the PFF to expand essential efforts for the PF community. Thank you for your generous support.