For Patients and Families
Stanford Patient Support Group
Upcoming Support Group Meeting
Stanford ILD Monthly Support Group- now on ZOOM!
Next Meeting Nov 3, 2025 , Zoom, Stanford University and Medical Center
Nov 3, 2025
Our next Stanford ILD Support Group meeting of 2025 is Monday 11/3/2025 from 11:30am-1:00pm and will be virtual on ZOOM. Our speaker will be Joshua Mooney MD, Stanford ILD and Lung Transplant Programs, to speak about "Results from the FIBRONEER and TETON-2 Studies". Dr. Mooney will review the results of these two studies and discuss how these new medications might be used to treat patients with pulmonary fibrosis. The meeting starts at 11:30am with a 'check in' and introductions and updates from attendees and at 12:15 our speaker will begin their presentation including times for Q & A until 1pm.
Please contact Susan Jacobs at ssjpulm@stanford.edu if you would like to be added to our ILD Support Group list and receive a Zoom invitation.
Stanford ILD Monthly Support Group- now on ZOOM!
October 6, 2025
Our Stanford ILD Support Group meeting on 10/6/2025 featured speaker Jonathan Cheong PA-C, Stanford Interstitial Lung Disease Program. He presented "Antifibrotic Medications Review" which reviewed the use of antifibrotic medications in a variety of different Interstitial Lung Diseases.
Please contact Susan Jacobs at ssjpulm@stanford.edu if you would like to be added to our ILD Support Group list and receive a Zoom invitation.
Stanford ILD Monthly Support Group- now on ZOOM!
September 8, 2025
Our September Stanford ILD Support Group meeting on 9/8/2025 featured speaker Rishi Raj MD, Director, Stanford Interstitial Lung Disease Program and Stephanie Chen MD. They presented "An Update on AI and Chest CT Scans" which reviewed the new use of language learning models (LLMs), maching learning processes, and how these technologies are used to review clinical information and extract important data. Combining machine-read patterns on chest CT scans in combination with clinical data can provide important tracking of the progression of ILDs.
Please contact Susan Jacobs at ssjpulm@stanford.edu if you would like to be added to our ILD Support Group list and receive a Zoom invitation.
Stanford ILD Monthly Support Group- now on ZOOM!
August 4, 2025
Our August Stanford ILD Support Group meeting of 2025 was Monday 8/4/2025 from 11:30am-1:00pm and will be virtual on ZOOM. Susan Jacobs RN, MS, Research Nurse Manager, Stanford, led this meeting which was an open session Q&A, with updates on oxygen, Stanford Clinical Trials, and the 9/6/25 PFF Walk Bay Area.
Please contact Susan Jacobs at ssjpulm@stanford.edu if you would like to be added to our ILD Support Group list and receive a Zoom invitation.
Stanford ILD Monthly Support Group- now on ZOOM!
July 14, 2025 Meeting , Zoom, Stanford University and Medical Center
July 14, 2025
Our July Stanford ILD Support Group meeting featured Dr. Shaun Pienkos who presented on "Getting the ILD Diagnosis Right and Why it Matters". Dr. Pienkos reviewed the different categories of Interstitial Lung Disease, which includes Pulmonary Fibrosis, and testing that confirms the type of ILD. Treatment regimens were reviewed that are based on what type of ILD is diagnosed.
Please contact Susan Jacobs at ssjpulm@stanford.edu if you would like to be added to our ILD Support Group list and receive a Zoom invitation.
Stanford ILD Monthly Support Group- now on ZOOM!
June 2, 2025 meeting, Zoom, Stanford University and Medical Center
June 2, 2025
Our June 2, 2025 Stanford ILD Support Group meeting featured Susan Jacobs RN, MS, Research Nurse Manager, Stanford, who presented on the highlights of the May 2025 International American Thoracic Society Conference in San Francisco. Over 15,000 attendees from around the world were able to go to numerous lectures, research abstract presentations, case study analysis and also to network around multiple lung disease topics.
Please contact Susan Jacobs at ssjpulm@stanford.edu if you would like to be added to our ILD Support Group list and receive a Zoom invitation.
Stanford ILD Monthly Support Group- now on ZOOM!
May 5, 2025 , Zoom, Stanford University and Medical Center
May 5, 2025
Our Stanford ILD Support Group meeting on Monday May 5, 2025 from 11:30am-1:00pm included Kate Yablonsky, who presented on “Addressing Quality of Life Issues when Trying to Live Well with ILD”, and all of the participants brought their questions to the meeting!
Please contact Susan Jacobs at ssjpulm@stanford.edu if you would like to be added to our ILD Support Group list and receive a Zoom invitation.
Stanford ILD Monthly Support Group- now on ZOOM!
Apr 7, 2025 , Zoom, Stanford University and Medical Center
April 7, 2025
Our Stanford ILD Support Group meeting of 2025 on Monday 4/7/2025 from 11:30am-1:00pm and was virtual on ZOOM. We had Emily Yelencich MS, RD, Clinical Dietitian, Stanford, who presented on "Maximizing Nutrition for Patients with Interstitial Lung Disease". It was an outstanding and informative session!
Please contact Susan Jacobs at ssjpulm@stanford.edu if you would like to be added to our ILD Support Group list and receive a Zoom invitation.
Stanford ILD Monthly Support Group- now on ZOOM!
Pulmonary Rehabilitation: In Person and Virtual Options
Mar 3, 2025
Our Stanford ILD Support Group meeting on Monday 3/3/2025 from 11:30am-1:00pm included Chris Garvey FNP, MSN, MPA who presented on "Pulmonary Rehabilitation: In Person and Virtual Options". Chris is a national expert on Pulmonary Rehabilitation outcomes and advocacy and made an outstanding presentation.
Please contact Susan Jacobs at ssjpulm@stanford.edu if you would like to be added to our ILD Support Group list and receive a Zoom invitation.
Stanford ILD Monthly Support Group- now on ZOOM!
Iman Mojadidi, RN, Christine Slaton, RN, and Teddy Simpson, RN, "Understanding Your Lab Bloodwork Results"
Feb 3, 2025
Our Stanford ILD Support Group met on Monday 2/3/2025 from 11:30am-1:00pm and was virtual on ZOOM. Our ILD Clinic's Registered Nurses - Iman Mojadidi, Christine Slaton, and Teddy Simpson - reviewed "Understanding Your Lab Bloodwork Results", and all of the participants brought their questions to the meeting!
Please contact Susan Jacobs at ssjpulm@stanford.edu if you would like to be added to our ILD Support Group list and receive a Zoom invitation.
Stanford ILD Monthly Support Group - Now on Zoom!
Kate Yablonsky, LCSW, "Life's Hacks" for patients living with Pulmonary Fibrosis.
January 6, 2025
Our Stanford ILD Support Group met on Monday 1/6/2025 from 11:30am-1:00pm and was virtual on ZOOM. We started the New Year with an Open Session with Kate Yablonsky LCSW leading a discussion on "life's hacks" to live well in the coming years. All of the participants contributed what they thought were their tips/ hacks for living well with ILD.
Please contact Susan Jacobs at ssjpulm@stanford.edu if you would like to be added to our ILD Support Group list and receive a Zoom invitation.
Stanford ILD Monthly Support Group - Now on Zoom!
Michelle Wilcox, Guide, Presenting the Anderson Collection, Stanford Museum
December 9, 2024
Our Stanford ILD Support Group meeting on Monday 12/9/2024 included a virtual tour of “An Expanded Lens Exhibition” from the Anderson Collection at Stanford. This is a year-long exhibition that invites viewers to reimagine their relationship to artwork in the Anderson Collection by providing new interpretations of the permanent collection through historic arrangements and contemporary pairings on loan from the Anderson family. Our guide let us through the wonderful collection and left man wanting to visit the collection in person.
Please contact Susan Jacobs at ssjpulm@stanford.edu if you would like to be added to our ILD Support Group list and receive a Zoom invitation.
Stanford ILD Monthly Support Group - Now on Zoom!
Susan Jacobs, RN, MS, Presenting on "Registries and Clinical Trials: All You Ever Wanted to Know"
November 4, 2024
Our Stanford ILD Support Group meeting was held on Monday 11/4/2024 from 11:30am-1:00pm on ZOOM. Our guest speaker was Susan Jacobs, RN, MS, Stanford University and Medical Center, from our Stanford ILD Program who reviewed current clinical trials and registries related to Interstitial Lung Disease.
Please contact Susan Jacobs at ssjpulm@stanford.edu if you would like to be added to our ILD Support Group list and receive a Zoom invitation.
View our annual support group meeting schedule (PDF).
Stanford ILD Monthly Support Group - Now on Zoom!
Jonathan Cheong, PA-C, Presenting on "Flu, Pneumonia, and RSV Vaccines"
October 7, 2024
Our Stanford ILD Support Group meeting was held on Monday 10/7/2024 with guest speaker Jonathan Cheong, PA-C, Stanford University and Medical Center, from our Stanford ILD Clinic. Jonathan reviewed current information on flu, RSV and pneumonia vaccines.
Please contact Susan Jacobs at ssjpulm@stanford.edu if you would like to be added to our ILD Support Group list and receive a Zoom invitation.
View our annual support group meeting schedule (PDF).
Stanford ILD Monthly Support Group - Now on Zoom!
Yelizaveta (Liza) Sher, MD, Clinical Professor of Psychiatry, Stanford University and Medical Center
September 9, 2024
Our Stanford ILD Support Group meeting was Monday 9/9/2024 from 11:30am-1:00pm meeting through Zoom. Our guest speaker was Yelizaveta (Liza) Sher MD, Clinical Professor of Psychiatry, Stanford University and Medical Center, from our Stanford CF and Lung Transplant Program. Dr. Sher discussed mental health living with chronic lung disease including how anxiety and dyspnea are related and potential therapies, medications, and behavioral interventions such as pulmonary rehabilitation and exercise.
Please contact Susan Jacobs at ssjpulm@stanford.edu if you would like to be added to our ILD Support Group list and receive a Zoom invitation.
View our annual support group meeting schedule (PDF).
Upcoming Educational Seminars
PFF Summit
Pulmonary Fibrosis Foundation Summit 2025
November 13-15, 2025, Chicago
The Pulmonary Fibrosis Foundation Summit is coming to Chicago on November 13-15, 2025.
Learn more about the Summit and register to view the sessions
Stanford ILD Seminar for Patients and Families
Previous Seminar - Pulmonary Fibrosis:The Journey from Diagnosis to Treatment -An All-Day Seminar for Patients, Caregivers, and Families
Stanford University Hosts Successful Patient and Family Interstitial Lung Disease Seminar!
March 3, 2019
The University of California at San Francisco (UCSF), University of California at Davis (UCD) and Stanford University have collaborated every other year since 2009 to provide a multi-disciplinary seminar for patients, family members, and caregivers. In March 2019, Stanford University hosted the event with over 200 participants who heard from experts on topics related to the ‘journey’ from receiving a diagnosis of ILD through all potential treatment options. Multiple exhibitors had information and personnel available to interact with patients, families and caregivers to provide them information on local and online patient support groups, palliative care and hospice services, choices of oxygen equipment, caregiver support, clinical research trials, and local pulmonary rehabilitation programs.
Lectures are available at the following links:
- Overview of Interstitial Lung Disease: ILD 101 (PDF)
- The Multidisciplinary Approach-Case #1 (PDF)
- Non-Pharmacologic Management: Palliative Care, Oxygen, Pulmonary Rehabilitation and Support Groups (PDF)
- The Multidisciplinary Approach-Case #2 (PDF)
- LungTransplant Evaluation (PDF)
- Lung Transplant Surgery and Recovery (PDF)
- Prospects for Stem Cell-Based Therapies (PDF)
Events
Annual Stanford Pulmonary Fibrosis Foundation Community Walk 2024 raises $8,700 for the PFF!
September 7, 2024
On Saturday, September 7, "Team Stanford" patients, families, friends, and staff gathered in-person at LIttle Marina Green in S.F. to join other Bay Area supporters to celebrate "Pulmonary Fibrosis Awareness Month" sponsored by the Pulmonary Fibrosis Foundation (PFF). Team Stanford placed 3rd out of 23 Bay Area teams and raised nearly $8,700 for the PFF to expedite research, enhance care for individuals affected by the disease, and offer exceptional support and educational resources for patients, caregivers, family members, and healthcare professionals.
Pulmonary fibrosis is a deadly and complex disease that causes progressive scarring in the lungs, and it affects over 200,000 Americans annually with 50,000 people estimated to be diagnosed this year alone. While there is still significant work to be done, progress in the fight against pulmonary fibrosis is being made and your generosity allowed the PFF to expand essential efforts for the PF community. Thank you to all of our supporters!
3rd Annual Stanford Pulmonary Fibrosis Foundation Community Walk raises $2500 for the PFF!
September 19, 2020
Team Stanford" patients, families, friends, and staff gathered virtuallythis year to celebrate "Pulmonary Fibrosis Awareness Month" sponsored by the Pulmonary Fibrosis Foundation (PFF). We raised more than $2,500 for the PFF. Pulmonary fibrosis is a deadly and complex disease that causes progressive scarring in the lungs. PF affects over 200,000 Americans annually and 50,000 people will be diagnosed this year alone. While there is still significant work to be done, progress in the fight against pulmonary fibrosis is being made. Your generosity allowed the PFF to expand essential efforts for the PF community. Thank you!
2nd Annual Stanford Pulmonary Fibrosis Foundation Community Walk
Interstitial Lung Disease Program
September 14, 2019
"Team Stanford" patients, families, friends, and staff gathered to celebrate "Pulmonary Fibrosis Awareness Day" sponsored by the Pulmonary Fibrosis Foundation (PFF). The Stanford Community Walk on the Stanford Campus started in the medical school courtyard and, led by ILD Program Director Rishi Raj MD, walked to the Cantor Museum where a docent met the group and talked about the significant pieces in the Rodin Sculpture Garden. The event raised more than $3000 for the PFF. Pulmonary fibrosis is a deadly and complex disease that causes progressive scarring in the lungs. PF affects over 200,000 Americans annually and 50,000 people will be diagnosed this year alone. While there is still significant work to be done, progress in the fight against pulmonary fibrosis is being made. Your generosity allows the PFF to expand essential efforts for the PF community. Thank you for your generous support.