Information on IBD
Links to the best resources for you and your family
The internet can provide a wealth of information, but it can often be difficult to sift through all of it. Here we have collated many of our most-used and trusted resources on IBD.
My IBD Care Book:
Stanford Children's Self-Management Handbook for Patients and Families with Inflammatory Bowel Disease (IBD). This contains useful information about IBD, your Stanford Children's care team, and templates that can be used to track your or your child's health.
Nuts and Bolts of IBD
- About the Diagnosis
- CCF: Facts about IBD
- Stanford Children's: Crohn's Disease
- Stanford Children's: Ulcerative Colitis
- CCF: IBS and IBD: Two Very Different Disorders
- IBD School with Peter Higgins: Inheriting IBD
About Diagnostic Tests
- For Kids: What to Expect From Endoscopy (video) and Cappy's Greatest Adventure (video, comic)!
- For Adults: What to Expect From Colonoscopy and About Colonoscopy
- Lab Tests Online: Understanding IBD labs
Treatments
At Stanford Children's IBD Center, we ascribe to an individualized approach for each patient when it comes to therapy. No two individual IBD patients are the same. Based on family- and disease-specific needs, our care team will work with you to find the right balance.
Trouble swallowing pills? Try CCF's Pill Swallowing Techniques for Kids and Teens
Need help remembering to take your pills? Here are some tips from Children's Mercy.
Medications
- CCF: Aminosalicylates (5-ASAs)
Sulfasalazine, Asacol®, Pentasa®, Lialda®, Apriso™, Delzicol™
- CCF: Biologics
Remicade®, Humira® (injection video here), Cimzia®, Simponi®, Tysabri®, Entyvio™
- CCF: Corticosteroids
Prednisone, Entocort, Uceris®
- CCF: Immunomodulators
Azathioprine, Mercaptopurine (6MP), Cyclosporine, Tacrolimus (Prograf), Methotrexate
- Cincinnati Children's: Medication Decision Cards
Drug Assistance Programs
- For Remicade: Janssen Prescription Assistance
- For Humira: AbbVie Patient Assistance
- For Humira: Humira Complete
- For Lialda or Pentasa: Shire Cares Patient Assistance & Support Program
Diets
- GIKids.org, IBD and Nutrition Podcast Series: Episode 2: Enteral Nutrition
- GIKids.org, IBD and Nutrition Podcast Series: Episode 3: Specific Carbohydrate Diet
- NASPGHAN: The Specific Carbohydrate Diet
- NASPGHAN: Enteral Nutrition Therapy
Complementary and Alternative Medicine (CAM)
- CCF: CAM Fact Sheet
Surgery
- ImproveCareNow: Ostomy Toolkit
Living with IBD
Diet/Nutrition
- NASPGHAN: IBD General Nutrition Information
- GIKids.org, IBD and Nutrition Podcast Series: Episode 1: Maintenance of Good Nutrition
- CCF: Diet and Nutrition Brochure
Non-Gastrointestinal Symptoms
- IBD School with Peter Higgins: Fatigue
Immunizations
- NASPGHAN: Immunizations and Immunosuppression
Stress and Behavioral Health
- Stanford Children's Health: Stress and IBD
- CCF: Emotional Factors
- CCF: Depression and Anxiety
Understanding Insurance and IBD
- Kaiser Family Foundation: Health Insurance Explained
- CCF: IBD Insurance Checklist
For Younger Children
- CCF: IBD & Me Activity Book
- CCF: Pete Learns All About Crohn's and Colitis
For Teens and Young Adults
- SickKids: My Health Passport
- Just Like Me! Teens With IBD
- CCF: Teen Guide
- CCF: Young Adults and IBD
- IBD U: Graduating to Independence
Social Networking Sites and Health Trackers
Events and Camps
- CCF: Northern California Chapter
- CCF: Take Steps for Crohn's and Colitis
- CCF: Team Challenge
- CCF: Camp Oasis
- CAMP GO BeYOND