Information on IBD

Links to the best resources for you and your family

The internet can provide a wealth of information, but it can often be difficult to sift through all of it. Here we have collated many of our most-used and trusted resources on IBD.

 

Nuts and Bolts of IBD

My IBD Care Book:

Stanford Children's Self-Management Handbook for Patients and Families with Inflammatory Bowel Disease (IBD). This contains useful information about IBD, your Stanford Children's care team, and templates that can be used to track your or your child's health.

  • About the Diagnosis

 

About Diagnostic Tests

Treatments

At Stanford Children's IBD Center, we ascribe to an individualized approach for each patient when it comes to therapy. No two individual IBD patients are the same. Based on family- and disease-specific needs, our care team will work with you to find the right balance.

Trouble swallowing pills? Try CCF's Pill Swallowing Techniques for Kids and Teens

Need help remembering to take your pills? Here are some tips from Children's Mercy.

Medications

Sulfasalazine, Asacol®, Pentasa®, Lialda®, Apriso™, Delzicol™

Remicade®, Humira® (injection video here), Cimzia®, Simponi®, Tysabri®, Entyvio™

Prednisone, Entocort, Uceris®

Azathioprine, Mercaptopurine (6MP), Cyclosporine, Tacrolimus (Prograf), Methotrexate

 

Drug Assistance Programs

 

Diets

 

Complementary and Alternative Medicine (CAM)

  • CCF: CAM Fact Sheet

 

Surgery

Living with IBD

Diet/Nutrition

 

Non-Gastrointestinal Symptoms

  • IBD School with Peter Higgins: Fatigue

 

Immunizations

 

Stress and Behavioral Health

 

Understanding Insurance and IBD

For Younger Children

 

For Teens and Young Adults

 

Social Networking Sites and Health Trackers

 

Events and Camps

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