Stanford and UMCG Cannabinoid Survey

The Dermatology Departments at Stanford University School of Medicine and University Medical Center Groningen are conducting an anonymous online survey to learn more about how EB patients are using cannabis products to treat their EB symptoms.

This survey has completed data collection and is now closed.

We hope that by finding out more about how people with EB use cannabis already, we can develop new treatments and can better help people with EB.

For any questions about the survey, please contact Dr. Emily Gorell at or Dr. Nic Schrader at

For information about your rights as a research participant, please contact the Stanford Institutional Review Board (IRB) at 650-723-5244, or toll-free at 1-866-680-2906.