The PHACE Syndrome Registry has moved to Stanford University, Department of Dermatology!
The Genetic Study and Registry of Hemangiomas and the PHACE Syndrome Registry
Hemangiomas are birthmarks made up of blood vessels that grow during the first year of life. Often, they are benign but sometimes they may occur along with other developmental problems, like anomalies of the brain, eyes, heart or other organs. Two of these conditions are known as the PHACE and LUMBAR syndromes.