Current ACHD Studies:

  • Ocular and Vision Problems in Patients After Fontan Operation: This survey study investigates the impact of increased venous pressure on eye health and vision in patients with Fontan circulation.
  • Approach IS-II: This international study with 84 sites around the world aims to collect information on the outcomes, experiences and healthcare needs as reported by patients with all types of congenital heart disease.
  • Non-Vitamin K Antagonist Oral Anticoagulants (NOAC) for Thromboembolic Prevention in Patients with Congenital Heart Disease: This study follows subjects with congenital heart disease who are currently prescribed non-vitamin K antagonist oral anticoagulants (NOACs) for thromboembolic prevention.

Upcoming ACHD Studies:

  • A Multi-Institutional Neurocognitive Discovery Study in Adult Congenital Heart Disease (MINDS-ACHD): This study is a multicenter cross-sectional pilot analysis of objective and subjective neurocognitive function and genetics in the ACHD population ages 18-30 years with moderate and severe CHD.