Patient Resources

There is information available on the internet, and if you wish, you may research the medical literature. We would like to caution you that some sources on the internet may contain misinformation. In addition, it is important that you read information carefully because it may not be relevant to your situation. For example, early stage Mycosis Fungoides differ greatly from late stage Mycosis Fungoides, so care must be taken when trying to understand your disease. Some publicly accessible resources are listed below.

Patient Support Organization

  1. The Cutaneous Lymphoma Foundation is an independent, non-profit patient advocacy organization dedicated to supporting patients with cutaneous lymphomas by promoting awareness and education, advancing patient care, and facilitating research. See
  2. The National Comprehensive Cancer Network® (NCCN®) is a not-for-profit alliance of 31 leading cancer centers devoted to patient care, research, and education. NCCN is dedicated to improving and facilitating quality, effective, efficient, and accessible cancer care so patients can live better lives. See patient guidelines.