Heart Transplant and Lung & Heart Transplant Patient & Family Partner Support Programs
Stanford Health Care's Patient & Family Partner Program (PFPP) is comprised of volunteers who advise, consult, speak, and participate in hundreds of patient experience improvement and marketing engagements each year. The goal of the PFPP is to bring the patient and family voice into design and improvement work aimed at improving patient care at Stanford. Participation in the PFPP varies regularly and can feature engagement in activities like: sitting on a council, committee, or workgroup, participating in a focus group or improvement event, speaking at trainings or conferences, featuring in marketing campaigns, sharing patient experience stories, content design/review, and general feedback/advising.
Stanford Patient & Family Advisory Council
The Stanford Patient & Family Advisory Council (PFAC) provides resources for our Heart Transplant and Lung & Heart-Lung Transplant Patients. A few of our resources include:
- PFAC membership includes both patients and members of the medical staff. Patient members are all lung transplant recipients, and many are Peer-2-Peer mentors, offering support and mentorship to other transplant patients.
- Heart and Heart & Lung Transplant Patient and Caregiver Support Group (monthly meetings via Zoom)
- Bi-yearly newsletter publications
- Annual Stanford Health Care Heart Transplant Symposium
Watch the Heart Transplant Symposium which occurred on October 21, 2021. This one-hour event features Drs. Jeff Teuteberg, Eldrin Lewis, and Aruna Subramaniam.
Symposium agenda:
- Current State of our Transplant Program | Dr. Jeff Teuteberg
- Welcome from the Heart Transplant Patient and Family Advisory Council (PFAC) | Michael Vollstedt, PFAC Chair
- Greetings! | Dr. Eldrin Lewis, Chief of CV Medicine
- COVID-19 Treatments, Vaccines, Boosters, and Impacts on Heart Transplant Recipients | Dr. Aruna Subramanian
- But I’m a Cyclist. | Tom Pugh
The Heart Transplant Patient and Family Advisory Council's purpose is to provide a way for patients and families to work together with members of the healthcare system, advising leaders and the healthcare team about a variety of topics, including:
- Representing patient and family perspectives about the overall patient care experience.
- Identifying patient and family-centered care strategies, reviewing and revising patient education materials, influencing and participating in the education of staff, and acting as a sounding board for the implementation or improvement of new and existing programs and facility design.
- Building community within the Stanford patient and caregiver population through activities or publications, such as the Heart Transplant Symposium & Reunion and the Heart Transplant Newsletter.
- Providing continued engagement and education with post-transplant patients.
- Working in an advisory and advocacy role to enhance care specific to the heart transplant population. The PFAC holds one seat as an active member of the Heart Transplant Quality Council—a multi-disciplinary group responsible for the Heart Transplant program.
- Nearly all PFAC Members are Peer-2-Peer mentors, offering support and mentorship to other transplant patients.
The Heart Transplant PFAC strives to make important contributions within Stanford Health Care toward improving patient care, services, and resources.
Visit the Heart Transplant PFAC website for more information and to join the Heart Transplant patient support services and Heart Transplant Patient and Caregiver Support Group (monthly meetings via Zoom)
The Heart Transplant Patient and Family Advisory Council seeks to enhance the patient care experience by ensuring that the voices of patients and families are represented. The PFAC is committed to providing support and guidance to Stanford’s heart transplant program, its patients, and their families.
The Lung & Heart-Lung Transplant PFAC seeks to ensure that the patient and family perspective is represented in all discussions with the healthcare team through a variety of initiatives:
- Providing patient and family perspectives on the overall lung transplant patient care experience
- Identifying patient and family-centered care improvement strategies
- Reviewing and providing feedback on patient education materials
- Acting as a sounding board for the implementation or improvement of new and existing programs and facility design
- Building community within the Stanford patient and caregiver population through activities or publications, such as the Lung & Heart-Lung Transplant Education/Reunion Day, and the Lung & Heart-Lung Transplant Newsletter
- Providing continued engagement and education with post-transplant patients
- Working in an advisory and advocacy role to enhance care specific to the Lung & Heart-Lung transplant population
The Lung & Heart-Lung Transplant PFAC is proud to be one of many PFACs contributing to improvements in patient care, services, and resources at Stanford Health Care.
Visit the Lung & Heart-Lung Transplant PFAC website for more information and to join the Lung & Heart Transplant support services and Lung & Heart Transplant Patient and Caregiver Support Group (monthly meetings via Zoom).
Contact info:
Stanford Health Care
Lung & Heart-Lung Transplant Program
900 Welch Road, Suite 200
Palo Alto, CA 94304-5322
Tel: 650-723-3633
The Lung & Heart-Lung Transplant Patient and Family Advisory Council serves as the voice of patients and families, and works in partnership with the transplant medical staff to continually improve the patient experience in the Stanford Heart-Lung Transplant Program.