Sleep Toolkits Developed by Community-Based Participatory Research
Community-Based Participatory Research
Community-Based Participatory Research (CBPR) is a collaborative approach to research that equitably involved all partners in the research process and recognizes the unique strengths that each brings. CBPR begins with a research topic of importance to the community and has the aim of combining knowledge with action and achieving social change.
The Center for Sleep in Autism will form a Community-Academic Partnership (CAP) to:
- Co-design methods of dissemination of known research related to sleep in individuals on the autism spectrum.
- Co-design methods of dissemination of new research findings from the CSASD.
- Co-determine the outreach strategies to all community stakeholder groups.
The CAP will create sleep toolkits for physicians, parents/care providers, and autistic adults.
The tentative membership of the CAP will include 5 parents, 3 adolescents, 3 autistic adults, 8 community providers, and CSASD investigators.
The length of the term of each working group member is 1 year (renewable up to total of ~5 years). Total number of meetings will be approximately 1 per month. Working group members will be compensated for their time serving in the working group ($50 per 90-minute meeting).
Members of the Sleep and Neurodiversity Outreach for Research and Education (SNORE) Working Group:
Candace Adeszko, Thwisha Anantasagar, Cristina Chadalavada, Uli K. Chettipall, MD, Anlor Davin, Erica Detemmerman, Sarah Doyle, Lawrence Fung, MD, PhD, Greg Garoppolo, Elizabeth Grady, MD, Juliette Gudknecht, Beth Hankoff, Kerensa Hardesty, Char Houben, Maxfield Michael Sparrow Jones, Anna Leith, Cassidy Miller, Alberto Navarro, Kate Nowell-Smith, Kristina Okun, Grace Peterson, Ramya Ramakrishnan, Patrick Ryan, Heather Satterwhite, Victoria Sigaroudi, Dana Won, MD, Lydia Yaiser, Yoyo Yuang, and Lyrid Zhao