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Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry
Recruiting
I'm InterestedTrial ID: NCT02249923
Purpose
Patients are being asked to be in this research study because medical researchers hope that
by gathering information about a large number of children with pulmonary hypertension over
time, their understanding of the disease process will increase and lead to better treatment.
Investigators believe that pulmonary hypertension in children is different than pulmonary
hypertension in adults and this study will help us understand those differences.
Official Title
Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry
Eligibility
Inclusion Criteria:
- The subject's age of onset of pulmonary hypertension must be prior to age 18 years
- The person providing consent must be able to read either Spanish or English.
- The subject (and/or parent/legal guardian) must be able to provide informed consent
Exclusion Criteria:
- Diagnosed with pulmonary hypertension after age 18
- Refusal to sign informed consent
Recruiting
I'm InterestedContact Information
Stanford University
School of Medicine
300 Pasteur Drive
Stanford,
CA
94305
Jeffrey Feinstein, MD