News & Publications
CIRGE has a newsletter!
- Volume 3, Issue 1: Summer 2014
- Volume 2, Issue 4: Winter 2013-2014
- Volume 2, Issue 3: Summer 2013
- Volume 2, Issue 2: Winter 2012-2013
- Volume 2, Issue 1: Summer 2012
- Volume 1, Issue 4: Winter 2011-2012
- Volume 1, Issue 3: Summer 2011
- Volume 1, Issue 2: Winter 2010-2011
- Volume 1, Issue 1: Summer 2010
For CIRGE publications, please see Publications.
For CIRGE news, please see below.
2016
MAY 2016
- 05/04/16, STAT News
--New advances in growing human embryos could prompt ethical firestorm
Research teams from Rockefeller University and the University of Cambridge have developed embryos in a lab for two weeks, hoping to bring advancements to stem-cell therapeis and assisted reproduction. Henry Greely, with the Stanford Center for Biomedical Ethics, who was not part of the research is quoted here and in an article on Sky News.
https://www.statnews.com/2016/05/04/embryo-research-ethics/
http://news.sky.com/story/1690284/human-embryos-grown-in-lab-for-two-weeks
April 2016
- 04/07/16, Los Angeles Times
--Putting human stem cells in animal embryos? The NIH should get on board
This op-ed written by Hank Greely, with the Stanford Center for Biomedical Ethics, discusses the funding, ethics, and implications of growing human organs in pigs for transplant.
http://www.latimes.com/opinion/op-ed/la-oe-0407-greely-human-animal-stem-cell-research-20160407-story.html
March 2016
- 03/30/16, The Independent (U.K.)
--Sex will be made unnecessary by ‘designer babies’, Stanford professor says
Hank Greely, with the Stanford Center for Biomedical Ethics, has a new book called The End of Sex and the Future of Reproduction, which is previewed here.
http://www.independent.co.uk/news/science/sex-unnecessary-designer-babies-stanford-professor-says-a6957636.html
http://www.dailymail.co.uk/sciencetech/article-3512373/Will-designer-babies-end-need-sex-Humans-reproduce-using-skin-samples-20-years-claims-geneticist.html
February 2016
- 02/01/16, Scope
--Cautious green light for CRISPR use in embryos in the U.K.; Stanford's Hank Greely weighs in
Hank Greely, with the Stanford Center for Biomedical Ethics, provided analysis of the recent decision by the British Human Fertilisation and Embryology Authority in the U.K. to permit the limited use of CRISPR in human embryos.
http://scopeblog.stanford.edu/2016/02/01/cautious-green-light-for-crispr-use-in-human-embryos-in-the-u-k-stanfords-hank-greely-weighs-in/
January 2016
- 01/15/16, KQED (NPR)
--CRISPR patent war: Billions at stake for UC Berkeley
UC Berkeley and the Broad Institute are vying to hold the patent for CRISPR-Cas9, the powerful gene editing tool. Mildred Cho, professor of pediatrics and of medicine and associate director of the Stanford Center for Biomedical Ethics, is quoted here.
http://ww2.kqed.org/futureofyou/2016/01/15/crispr-patent-war-billions-at-stake-for-uc-berkeley/ - 01/11/16, San Jose Mercury News
--Bay Area biologist's gene-editing kit lets do-it-yourselfers play God at the kitchen table
This article discusses a DIY gene-editing kit that can be purchased by consumers for $120. David Relman and Hank Greely, with the Stanford Center for Biomedical Ethics, provide comment.
http://www.mercurynews.com/science/ci_29372452/bay-area-biologists-gene-editing-kit-lets-do
2015
December 2015
- Fast Company, 12/16/15
--FDA unveils new site to tailor medical treatment to an individual's DNA
A new website, PrecisionFDA, provides access to sequenced genomes and allows researchers to share related information. This piece quotes Hank Greely, with the Center for Biomedical Ethics.
http://www.fastcompany.com/3054754/elasticity/fda-unveils-new-site-to-tailor-medical-treatment-to-an-individuals-dna - USNews.com, 12/03/15
--Geneticists urge caution on breakthrough technology of gene editing
Last week, a high-profile group of researchers, ethicists and advocates convened in Washington, D.C., to discuss the ethics of editing human genes. Hank Greely, with the Stanford Center for Biomedical Ethics and a member of the organizing committee, is quoted here and in articles from Huffington Post and NationalGeographic.com.
http://www.usnews.com/…/geneticists-urge-caution-on-breakth…
http://www.huffingtonpost.com/…/crispr-human-genes-bioethic…
http://news.nationalgeographic.com/…/151203-gene-editing-t…/ - San Jose Mercury News, 12/03/15
--Gene editing: Don't use in human reproduction, prestigious panel says
The National Academy of Sciences cautioned researchers against using a gene editing technique called CRISPR for human reproduction, although it allowed for basic and preclinical research uses. Hank Greely, with the Stanford Center for Biomedical Ethics, and David Relman, the Thomas C. and Joan M. Merigan Professor and professor of microbiology and immunology, are quoted here. Relman is quoted in a piece by STAT News. A related journal edited by David Magnus, the Thomas A. Raffin Professor in Medicine and Biomedical Ethics, is the focus of a Scope blog post.
http://www.mercurynews.com/…/gene-editing-dont-use-human-re…
http://www.statnews.com/20…/…/03/gene-editing-human-embryos/
http://scopeblog.stanford.edu/…/crispr-critters-and-crispr…/
November 2015
- 11/30/15, Washington Examiner
--'Designer babies' worry both parties
Several spending bills under consideration in the House of Representatives would prohibit the Food and Drug Administration from spending money related to modifying genes in a human embryo. Hank Greely is quoted here.
- 11/29/15, San Jose Mercury News
--'Gene drive' toll can prevent epidemics — but should it?
A technology called "gene drive" makes it possible to alter a population's genetics, a technique that could help eliminate malaria and other insect-borne diseases. Hank Greely, with the Stanford Center for Biomedical Ethics, is quoted. - 11/27/15, New York Times
--Open season is seen in gene editing of animals
This piece looks at the rapid advent of gene-edited animals, and how new techniques have made previously impossible goals fast and inexpensive enough for many researchers to find worth pursuing. Hank Greely, with the Stanford Center for Biomedical Ethics, is quoted.
- 11/23/15, Huffington Post
--This technology can fight cancer and create adorable mini pigs. So why are scientists so worried?
The gene-editing technique CRISPR has made it relatively easy to change or delete genetic material, raising a host of ethical dilemmas. Hank Greely, with the Stanford Center for Biomedical Ethics, is quoted here.
- 11/23/15, Inside Stanford Medicine
--Bioethics team creates online repository of advice on ethical research practices
A team of bioethicists from across the nation has developed a standardized approach to collecting and sharing advice on conducting ethical human-subject research. The effort was led by Mildred Cho, professor of pediatrics and of medicine and associate director of the Stanford Center for Biomedical Ethics, and Benjamin Wilfond of the Seattle Children’s Research Institute and University of Washington. - 11/16/15, New Yorker
--The gene hackers
By using the molecular tools known as CRISPR, researchers can cut and paste genetic material, a technique that has numerous applications but also poses ethical challenges. Hank Greely, with the Stanford Center for Biomedical Ethics, is quoted in this article.
August 2015
- 08/08/15, San Jose Mercury News
--Designing life from scratch: A fledgling field is about to take off
Hank Greely, with the Stanford Center for Biomedical Ethics and director of the Stanford Center for Law and the Biosciences, provides comment in this article on commercial gene synthesis.
June 2015
- 06/18/15, Washington Post
--Genetic analysis says Kennewick Man is Native American after all
A new genetic analysis of an 8,500-year-old skeleton found in Washington in 1996 — long the subject of controversy — suggests the man was an ancestor of present-day Native Americans. The research was led by scientists from the University of Copenhagen and by Stanford postdoctoral research fellow Morten Rasmussen, who worked with Carlos Bustamante, professor of genetics. Rasmussen is quoted in articles by CBS News, Discovery News, Forbes, Huffington Post, Los Angeles Times, Popular Archaeology, Reuters and Smithsonian.com and in a Stanford Medicine press release. Hank Greely, with the Stanford Center for Biomedical Ethics, is quoted in articles from Nature News and The Scientist.
May 2015
- 05/18/15, San Jose Mercury News
--National academies will meet to guide "gene editing" research
Next fall, top international experts will meet to create voluntary standards to govern the use of controversial "gene editing" technology. This article quotes Hank Greely, with the Stanford Center for Biomedical Ethics.
- 05/06/15, Scope
--Stanford panel: Big issues will loom when everyone has their genomic sequence on a thumb drive
The cost and timing of genetic sequencing has dropped significantly in recent years, raising many questions. This entry highlights a panel discussion titled "Genetic privacy: The right (not) to know" as part of an Alumni Day event. Panelists included Mildred Cho, professor of pediatrics and associate director of the SCBE; Hank Greely, with the SCBE and director of the Stanford Center for Law and the Biosciences; and Michael Snyder, the Stanford W. Ascherman Professor, chair of the Department of Genetics, and director of the Center for Genomics and Personalized Medicine at Stanford. - 05/04/15, Vox
--A guide to CRISPR, the human gene-editing tool that has scientists excited — and terrified
This article, which explains the gene-editing technology, includes a quote from Hank Greely, chair of Stanford Center for Biomedical Ethics and director of the Center for Law and the Biosciences.
April 2015
- 04/30/15, Scope
--Genetic testing, autism, and "fixing" the pathological body
Kelly Ormond, professor of genetics, spoke at a recent panel discussion at the University of California-Santa Cruz that focused on the distinction between pathological and normal.
- 04/27/15 - Former CIRGE program manager, Colleen Berryessa, Lauren Milner, Nanibaa' Garrison, and CIRGE PI Mildred Cho had their article Impact of Psychiatric Information on Potential Jurors in Evaluating High Functioning Autism Spectrum Disorders (hfASD) accepted by the Journal of Mental Health Research in Intellectual Disabilities!
- 04/13/15, Stanford Medicine press release
--Recruiting patients for research? Simple explanations, queries from doctors are best
Potential medical study participants always want to be asked permission to participate in research that compares standard treatment options and that involves reviews of medical records, according to a new study. Mildred Cho, professor of pediatrics and associate director of the Stanford Center for Biomedical Ethics (SCBE), is lead author, and David Magnus, the Thomas A. Raffin Professor and director of the SCBE is co-author of the research.
- 04/06/15, TheScientist.com
--Ancestry.com adds new genetics service
Ancestry.com is advertising a new DNA test that can reportedly connect users to their ancestors back to the 1700s. Hank Greely, with the Stanford Center for Biomedical Ethics and director of the Center for Law and the Biosciences, is quoted.
MARCH 2015
- 03/21/15, San Francisco Chronicle
--New gene-altering technique worries scientists
A group of 20 scientists and ethicists, including Stanford's Paul Berg and Hank Greely, signed a letter published in Science Express calling for guidelines to regulate genome editing tools. Berg, the Vivian K. and Robert W. Cahill Professor in Cancer Research, Emeritus, and Greely, with the Stanford Center for Biomedical Ethics and director of the Center for Law and the Biosciences, are quoted in this article. - 03/19/15, MIT Technology Review
--Scientists call for a summit on gene-edited babies
A group of 20 scientists and ethicists, including Stanford's Paul Berg and Hank Greely, signed a letter published in Science Express calling for guidelines to regulate genome editing tools. Berg, the Vivian K. and Robert W. Cahill Professor in Cancer Research, Emeritus, is quoted in this article. The letter is also discussed in a Scope blog entry that mentions Greely, with the Stanford Center for Biomedical Ethics and director of the Center for Law and the Biosciences. - 03/05/15, MIT Technology Review
--Engineering the perfect baby
Scientists are learning how to edit the DNA of germ line cells and embryos. Hank Greely, with the Stanford Center for Biomedical Ethics and director of the Center for Law and the Biosciences, is quoted in this piece.
February 2015
- 02/06/15, Forum (KQED-FM)
After a parliamentary vote last week, the United Kingdom is set to become the first country to legalize making a baby with DNA from three parents. Hank Greely, with the Stanford Center for Biomedical Ethics and director of the Stanford Center for Law and the Biosciences, was part of a panel that discussed the technology and explored whether the U.S. and other countries may follow Britain's lead.
- 02/05/15, San Jose Mercury News
--California politicians urge repeal of 'opt out' provision of vaccination law
All eligible children should be vaccinated, several California state senators say. David Magnus, the Thomas A. Raffin Professor in Medicine and Biomedical Ethics and director of the Stanford Center for Biomedical Ethics, is quoted in this article.
January 2015
- 01/24/15, San Jose Mercury News
--Testing for mortality: A way to measure our bodies' risk of disease
This piece discusses telomere testing as a way to predict age-related diseases. Hank Greely, with the Stanford Center for Biomedical Ethics and director of Stanford's Center for Law and the Biosciences, comments on the growing concern among federal regulators. - 01/21/15, CBS News
--Growing human kidneys in rats sparks ethical debate
As scientists strive to grow human fetal kidneys in rats, it raises important ethical questions, said Hank Greely, with the Stanford Center for Biomedical Ethics and director of the Center for Law and the Biosciences.
- 01/21/15, Vox.com
--Obama singled out personalized medicine as the future. But what exactly is that?
In his State of the Union address last night, President Obama mentioned launching a new Precision Medicine Initiative. Hank Greely, with the Stanford Center for Biomedical Ethics, provides comment in this article.
- 1/14/15, Think Out Loud (Oregon Public Broadcasting)
This segment focused on the legal and ethical concerns surrounding genome sequencing, as well as the issues of informed consent, privacy and data security. Kelly Ormond, professor of genetics, was interviewed.
- 01/06/15, Forbes.com
--Surprise! With $60 million Genentech deal, 23andMe has a business plan
Genentech will sequence the whole genomes of 3,000 people from 23andMe's Parkinson's disease community in an effort to identify drug targets, the companies announced yesterday. Hank Greely, with the Stanford Center for Biomedical Ethics (SCBE) and director of the Center for Law and the Biosciences at Stanford University, is quoted in this piece. - 01/02/15, San Francisco Chronicle
--Most parents want their babies' genome sequenced, study finds
The majority of parents surveyed in a new study said they would be interested in having some - or all - of their newborn’s genome sequenced. This article discusses how some researchers raise ethical questions about how much families should know about the results. Mildred Cho, associate director of the SCBE and an associate professor of pediatrics and genetics, provides comment.
2014
October 2014
- 10/21/14, ScientificAmerican.com
--Does your average scientist need an ethicist on call?
This piece discusses how bioethicists are setting up consultancies for research, but some scientists question whether they are a necessity. Mildred Cho, professor of pediatrics and associate director of the Stanford Center for Biomedical Ethics, provides comment here. - 10/22/14, Inside Stanford Medicine (online)
--A conversation with a cancer patient about palliative care
Palliative care expert Timothy Quill recently held an intimate conversation with Paul Kalanithi, a Stanford neurosurgeon, suffering from advanced lung cancer and discussed how physicians should talk to patients with serious illnesses about quality-of-life care during the 24th annual Jonathan J. King Lecture presented by the Stanford Center for Biomedical Ethics. - 10/06/14, New York Times
--Sprinter Dutee Chand fights ban over her testosterone level
Dutee Chand, India’s 100-meter champion in the 18-and-under category, was barred from competing against women because of naturally elevated testosterone levels. Katrina Karkazis, senior research scholar at the Stanford Center for Biomedical Ethics, is quoted in this piece.
September 2014
- Time.com, 09/23/14
--If synthetic biology lets us play God, we need rules
This piece looks at the emerging field of synthetic biology and what can be done to prevent certain technologies from falling into the wrong hands. Sandra Soo-Jin Lee, a senior research scholar at the Stanford Center for Biomedical Ethics, is featured here. - Inside Stanford Medicine, 09/22/14
--Videos explain concepts of clinical research
Bioethicists are releasing videos and policy guidelines that aim to promote more ethical comparative-effectiveness research within medical practices. David Magnus, the Thomas A. Raffin Professor and director of the Stanford Center for Biomedical Ethics (SCBE), is leading a study that explores the ethical implications of this kind of research. Mildred Cho, professor of pediatrics and associate director of the SCBE; senior scholar Sandra Soo-Jin Lee; Philip Lavori, professor and chair of health research and policy; Steven Alexander, professor of pediatrics; David Rosenthal, professor of pediatrics; and Glenn Chertow, professor of medicine, are also mentioned in this piece. - Slate.com, 09/12/14
--A new study supports female athletes unfairly excluded from sport
This piece discusses the ongoing debate over sex verification in sports. The work of Katrina Karkazis, senior research scholar at the Stanford Center for Biomedical Ethics, is referenced here. - 9/3/14 aeon.com
--Precognitive police
Article discussing the complexities of predictive policing. Colleen Berryessa, former CIRGE program manager, and Hank Greely, with the Stanford Center for Biomedical Ethics, provide comments.
August 2014
- 08/26/14, Scientific American
--Multitasking gene may help drone operators control robotic swarms
Mildred Cho, professor of pediatrics and associate director at the Stanford Center for Biomedical Ethics, is quoted in this article describing how a genetic variant that elevates dopamaine levels could lead to better performance in complex multitasking scenarios. - 08/12/14, Scope
--Film documents rise and fall of a genome matching service – and poses tough ethical questions
This blog entry highlights “The Perfect 46," a film about a geneticist who creates a website that pairs an individual with their ideal genetic partner for children. The movie, which was recently screened at Stanford, included a panel discussion featuring Michael Snyder, the Stanford W. Ascherman, MD, FACS, Professor and chair of the Department of Genetics, and Sandra Lee, a senior researcher at the Stanford Center for Biomedical Ethics. - 08/07/14, California Healthline
--More live organ donations needed to address gap in California
This piece highlights the latest Stanford Health Policy Forum, which focused on ways to end our country’s organ-donor shortage. David Magnus, the Thomas A. Raffin Professor of Medicine and Biomedical Ethics, professor of pediatrics and director of the Stanford Center for Biomedical Ethics, is quoted here. - 08/05/14, San Francisco Chronicle
--Organ shortage prompts debate over compensating donors
This piece highlights the latest Stanford Health Policy Forum, which focused on ways to end our country’s organ-donor shortage. David Magnus, the Thomas A. Raffin Professor of Medicine and Biomedical Ethics, professor of pediatrics and director of the Stanford Center for Biomedical Ethics, is quoted here. A video of the panel discussion is also now available online. - 08/04/14 - SCBE's Kate Darling, Angie Boyce, CIRGE PI Mildred Cho, and Pamela Sankar published “What is the FDA Going to Think?”: Negotiating Values through Reflective and Strategic Category Work in Microbiome Science in Science, Technology & Human Values!
July 2014
- 07/31/14 - CIRGE Program Manager Colleen Berryessa published Judiciary Views on Criminal Behaviour and Intention of Offenders with High-Functioning Autism in the Journal of Intellectual Disabilities and Offending Behaviour!
- Time.com, 07/28/14 --Google seeks human guinea pigs for health project. Most biomedical research is focused on disease and specific treatments for illness, rather than on understanding what it means to be healthy. Now researchers at Stanford, in collaboration with Duke University and Google X, are planning a comprehensive initiative to understand the molecular markers that are key to health and the changes in those biomarkers that may lead to disease. This article mentions the work, as do a Newsweek.com article and a PasteMagazine.com piece that quotes Sanjiv Sam Gambhir, professor and chair of radiology and director of the Canary Center at Stanford for Cancer Early Detection. Hank Greely, with the Stanford Center for Biomedical Ethics, also provides comment in an opinion piece on the project from Re/code.
- 07/08/14 - CLB Fellow Jake Sherkow and CIRGE Co-PI Chris Scott published Myriad stands alone in Nature Biotechnology!
- San Francisco Chronicle, 07/02/14
--Minna Life's kGoal device raises ethical questions
The kGoal device helps women exercise their pelvic muscles and links to a smartphone to give feedback on the effectiveness of their exercise regimen. The device has raised more than $32,000 on Kickstarter, even though the crowdfunding site prohibits raising money for medical projects. Hank Greely, with the Stanford Center for Biomedical Ethics, is quoted.
June 2014
Slate.com, 06/10/14
--Politics in your DNA
This piece discusses how chimerism and genetic mosaicism complicate the "personhood movement." Hank Greely, with the Stanford Center for Biomedical Ethics, provides comment.
May 2014
- Mendelspod.com, 05/21/14
--Stanford's Big Data in Biomedicine conference turns two
This blog piece highlights the Big Data in Biomedicine Conference, held on campus May 21-23. Stephen Quake, the Lee Otterson Professor in the School of Engineering and a professor of bioengineering; Julia Salzman, assistant professor of biochemistry; Michael Snyder, the Stanford W. Ascherman, MD, FACS, Professor and chair of the Department of Genetics; and Hank Greely, with the Stanford Center for Biomedical Ethics, are mentioned here.
- Inside Stanford Medicine, 05/19/14
--Employee recognition award winners announced
The Stanford School of Medicine recently announced this year's winners of the Spirit Award and the Inspiring Change Leadership Award. The Spirit Award, given to staff members who show outstanding performance, dedication and positive attitude, went to Christopher Dolph, the Willed Body Program coordinator and lab coordinator in the Division of Clinical Anatomy, and to Anne Crowe, assistant director of the Stanford Center for Biomedical Ethics.
- Inside Stanford Medicine, 05/19/14 --Network launched to connect musicians, music lovers
The new Stanford Music Network will connect faculty, staff and student musicians for group practices, and organize chamber music and string quartet groups. Dean Lloyd Minor; Steve Goodman, associate dean for research and translational science; Audrey Shafer, professor of anesthesiology and director of the Medicine and Muse Program, and Ben Robison, a medical student and professional violinist; are featured in this story.
- 05/02/14 - CIRGE PI Mildred Cho published Open-Label Extension Studies: Are They Really Research? in the American Journal of Bioethics!
- MIT Technology Review, May/June 2014
--10 breakthrough technologies
This issue highlights the 10 most important technology milestones of the past year; brain mapping is included. Karl Deisseroth, the D.H Chen Professor, professor of bioengineering and of psychiatry and behavioral sciences, is featured for pioneering the technique CLARITY, which can convert biological systems into a fully transparent form, allowing researchers to visualize and study the brain's 3-D structure and circuitry using standard molecular probes. The piece also lists genome editing as one of the top breakthroughs; Hank Greely, with the Stanford Center for Biomedical Ethics, provides comment.
April 2014
- Scope, 04/30/14
--"Drastic, unnecessary and irreversible medical interventions" imposed upon some female athletes
Four female athletes were coerced into "partial clitorectomies" and gonadectomies (removal of gonads) as a result of the current gender-policing polices of major sports governing bodies, according to an article published this week in the British Medical Journal. The article was co-written by Katrina Karkazis, senior research scholar at the Stanford Center for Biomedical Ethics.
- 04/30-14 - CIRGE Co-PI Kelly Ormond and CIRGE PI Mildred Cho published Translating personalized medicine using new genetic technologies in clinical practice: the ethical issues in Personalized Medicine!
- 04/28/14 - SCBE Senior Research Scholar Katrina Karkazis and her colleagues published Sex, health, and athletes in BMJ!
- Scope, 04/24/14
--Medical students and author Khaled Hosseini share their muse with Stanford community
This blog entry provides a recap of Stanford's annual Medicine and the Muse symposium, which brought together medical student art, music, photography and literature in a series of performances and exhibits, and featured a talk with bestselling author Khaled Hosseini.
- 04/15/14 - Former CIRGE Post-Bacc Jessica Erickson, CIRGE PI Mildred Cho, CIRGE Co-PI's Kelly Ormond and Douglas Levinson, and their colleagues punlished Genetic Testing of Children for Predisposition to Mood Disorders: Anticipating the Clinical Issues in the Journal of Genetic Counseling!
- 04/10/14 - SCBE Senior Research Scholar Katrina Karkazis co-authored the op-ed The Trouble With Too Much T in the New York Times!
- 04/10/14 - SCBE Senior Research Scholars Chris Scott and Sandra Lee and Former SCBE Project Manager Emily Borgelt published The Time is Ripe for an Ethics of Entrepreneurship in Nature Biotechnology!
- 04/09/14 - Former CIRGE Post-Doc Megan Allyse and her colleagues from Duke University published Noninvasive Prenatal Testing Goes Global in Science Translational Medicine!
- 04/09/14 - Former CIRGE Post-Bacc Lauren Sayres, Former CIRGE Post-Doc Megan Allyse, SCBE's Taylor Goodspeed, and CIRGE PI Mildred Cho published Demographic and Experiential Correlates of Public Attitudes Towards Cell-Free Fetal DNA Screening in Journal of Genetic Counseling!
March 2014
- 03/07/14 - CIRGE and SCBE's Megan Allyse, Lauren Sayres, Taylor Goodspeed and Mildred Cho published Attitudes towards non-invasive prenatal testing for aneuploidy among US adults of reproductive age in the Journal of Perinatology!
- VICE (Motherboard), 03/05/14
CIRGE Program Manager Colleen Berryessa was featured in the article "Genetic Profiling and Predictive Policing Are Taking Us to the Pre-Crime Future" on VICE's science and technology blog.
February 2014
- Boston Globe, 02/26/14
--New study suggests prenatal genetic tests could be offered to all pregnant women
A new blood test offers pregnant women a safe and much more accurate way to screen for Down syndrome. Hank Greely, with the Stanford Center for Biomedical Ethics, provides comment here and in a piece on Shots (NPR.org).
- NBCNews.com, 02/05/14
--To catch a killer gene: Sisters race to stop mystery disease
This piece focuses on two sisters suffering from an unidentified, incurable genetic disorder, which also claimed several generations of family members. Hank Greely, with the Stanford Center for Biomedical Ethics (SCBE), provides comment.
- Inside Stanford Medicine (online), 02/05/14
--5 Questions: David Magnus on understanding brain death
In this Q&A, David Magnus explains why he believes that the laws and ethics governing brain death should not be changed. Magnus is the Thomas A. Raffin Professor and director of the SCBE.
- 02/04-14 - CIRGE Program Manager Colleen Berryessa published Judicial Perceptions of Media Portrayals of Offenders with High Functioning Autistic Spectrum Disorders in the International Journal of Criminology and Sociology!
- 02/03/14 - CIRGE Post-Bacc Emily Liu and SCBE Senior Research Scholar Christopher Scott published Great Expectations: Autism Spectrum Disorder and Induced Pluripotent Stem Cell Technologies in Stem Cell Reviews and Reports!
January 2014
- VICE (Motherboard), 01/31/14
Hank Greely and Sandra Lee were featured in the article "Should the FDA Take a More Libertarian Stance Towards Personal Genomics?" on VICE's science and technology blog.
- KTVU-TV, 01/30/14
This segment looked at how decisions are made about who does and does not get onto the wait list for a life-saving organ transplant. David Magnus, the Thomas A. Raffin Professor and director of the Stanford Center for Biomedical Ethics, was interviewed. - 01/16/14 - SCBE Senior Research Scholar Christopher Scott and his colleagues published Fit to Print? Media Accounts of Unproven Medical Treatments Across Time in AJOB Empirical Bioethics!
- Time.com, 01/09/14
--Ariel Sharon: Lessons from his years in a coma
Former Israeli Prime Minister Ariel Sharon died Saturday after 8 years in a coma. This piece explores the line between what’s reasonable and what’s excessive when it comes to medical care for patients in vegetative states and quotes David Magnus, the Thomas A. Raffin Professor and director of the Stanford Center for Biomedical Ethics.
- New York Times, 01/04/14
--A brain is dead, a heart beats on
This piece discusses the legal battle involving Jahi McMath, a 13-year-old Oakland girl who was declared brain dead after undergoing a tonsillectomy. David Magnus, the Thomas A. Raffin Professor in Medicine and director of the Stanford Center for Biomedical Ethics, provides comment here and in articles from CBSNews.com and the San Francisco Chronicle. Paul Graham Fisher was appointed by Alameda County to be an independent reviewer into the case and is quoted in numerous articles, including the Los Angeles Times, NBCBayArea.com and USAToday.com. Fisher is the Beirne Family Professor of Pediatric Neuro-Oncology and chief of pediatric neurology.
- Time.com, 01/03/14
--Brain death really is death
This piece co-written by David Magnus discusses the definition of brain death. Magnus is the Thomas A. Raffin Professor in Medicine and director of the Stanford Center for Biomedical Ethics.
December 2015
- 12/03/15, USNews.com
--Geneticists urge caution on breakthrough technology of gene editing
Last week, a high-profile group of researchers, ethicists and advocates convened in Washington, D.C., to discuss the ethics of editing human genes. Hank Greely, with the Stanford Center for Biomedical Ethics and a member of the organizing committee, is quoted here and in articles from Huffington Post and NationalGeographic.com.
http://www.usnews.com/news/articles/2015/12/03/geneticists-urge-caution-on-breakthrough-technology-of-gene-editing
http://www.huffingtonpost.com/entry/crispr-human-genes-bioethicists_566099d7e4b079b2818db09a
http://news.nationalgeographic.com/2015/12/151203-gene-editing-terrific-terrifying-science/ - 12/03/15, San Jose Mercury News
--Gene editing: Don't use in human reproduction, prestigious panel says
The National Academy of Sciences cautioned researchers against using a gene editing technique called CRISPR for human reproduction, although it allowed for basic and preclinical research uses. Hank Greely, with the Stanford Center for Biomedical Ethics, and David Relman, the Thomas C. and Joan M. Merigan Professor and professor of microbiology and immunology, are quoted here. Relman is quoted in a piece by STAT News. A related journal edited by David Magnus, the Thomas A. Raffin Professor in Medicine and Biomedical Ethics, is the focus of a Scope blog post.
http://www.mercurynews.com/science/ci_29198345/gene-editing-dont-use-human-reproduction-says-panel
http://www.statnews.com/2015/12/03/gene-editing-human-embryos/
http://scopeblog.stanford.edu/2015/12/03/crispr-critters-and-crispr-conundrums/
2013
December 2013
- VentureBeat.com, 12/31/13
--Stanford prof: Why I won't waste my money on a DNA test in 2014
In this piece, Hank Greely, with the Stanford Center for Biomedical Ethics, weighs in on the future of genetic testing.
- Forum (KQED-FM), 12/30/13
During this segment, physicians and ethicists, including David Magnus, discussed the Jahi McMath case and the definition of brain death.
November 2013
- Forum (KQED-FM), 11/26/13
The FDA has ordered 23andMe to halt all sales and marketing of its gene testing kits because of concerns that inaccurate results from the direct-to-consumer tests, or results that are not adequately understood by patients, could lead to dangerous decisions. Hank Greely, with the Stanford Center for Biomedical Ethics, was among the guests who discussed the FDA's orders and the future of personal gene tests.
- Time.com, 11/12/13
--Boy, girl or intersex?
On Nov. 1, the German parliament passed a law that gives parents the option of leaving the gender blank on a child’s birth certificate. Katrina Karkazis, senior research scholar in the Stanford Center for Biomedical Ethics, provides comment in this story.
- 11/06/13 - CIRGE PI Mildred Cho co-authored Reflections on the Cost of "Low-Cost" Whole Genome Sequencing: Framing the Health Policy Debate in PLoS Biology!
- Morning Edition (NPR), 11/04/13
This piece discussed privacy issues related to getting your microbes analyzed. Hank Greely, with the Stanford Center for Biomedical Ethics, was interviewed.
October 2013
- United Academics Magazine, October 2013
--"Genes, Therapy & Identity: When We Cease Being Us?"
A paper by CIRGE Program Manager Colleen Berryessa and CIRGE PI Mildred Cho was featured in the article "Genes, Therapy & Identity: When We Cease Being Us?" in United Academics Magazine.
- 10/16/13 - SCBE Senior Research Scholar Sandra Lee, SCBE Alumna Simone Vernez, CIRGE Co-Investigator Kelly Ormond, and Mark Granovetter published Attitudes towards Social Networking and Sharing Behaviors among Consumers of Direct-to-Consumer Personal Genomics in the Journal of Personalized Medicine!
- 10/02/13 - CIRGE Co-Investigator Hank Greely and CIRGE PI Mildred Cho published The Henrietta Lacks legacy grows in EMBO Reports!
September 2013
- 09/12/13 - Former CIRGE post-doc Lauren Milner, CIRGE post-bacc Emily Liu, and former CIRGE post-doc Nanibaa' Garrsion published Relationships Matter: Ethical Considerations for Returning Results to Family Members of Deceased Subjects in the American Journal of Bioethics!
- San Jose Mercury News, 09/05/13
--Long-frozen embryo brings joy to adoptive parents
Hank Greely, with the Stanford Center for Biomedical Ethics, provides comment in this story on the cryopreservation of embryos.
- Forum (KQED-FM), 09/03/13
-- The first hour of this morning’s program focused on the revival of extinct species and featured Hank Greely, with the Stanford Center for Biomedical Ethics. On Monday’s program, playwright and actress Anna Deavere Smith discussed her one-woman show "Let Me Down Easy,” and how her many interviews at Stanford’s medical school helped shape the production.
August 2013
- Washington Post, 08/26/13
--Baby boy is the first to result from new embryo screening technique
This story discusses the first child to be born after his parents screened the genomes of a batch of embryos for abnormalities, in an effort to pick the healthiest for implantation. Hank Greely, with the Stanford Center for Biomedical Ethics, is quoted.
- Palo Alto Weekly, 08/02/13
--Entering the brave new world of genomics
Stanford's work in genomics is the focus of this lengthy cover story. Michael Snyder, the Stanford W. Ascherman, MD, FACS, Professor in Genetics and director of the Stanford Center for Genomics and Personalized Medicine; Stephen Galli, the Mary Hewitt Loveless, M.D. Professor and center co-director; Atul Butte, associate professor of pediatrics and of genetics; David Magnus, the Thomas A. Raffin Professor and director of the Center for Biomedical Ethics, are all quoted, with Galli saying he's "never seen a more exciting time in medicine than now."
July 2013
- 07/22/13 - CIRGE program manager Colleen Berryessa, Nicole Martinez-Martin and CIRGE post-doc Megan Allyse published Ethical, Legal and Social Issues Surrounding Research on Genetic Contributions to Anti-Social Behavior in Aggression and Violent Behavior!
- 07/09/13 - Just out in Nature Biotechnology, with shout-outs to SCBE, including quotes, citations, and adaptations of the work featured in Prenatal Diagnosis! Plus a nice summary of the ELSI issues by CIRGE post-doc Megan Allyse and SCBE Senior Research Scholar Chris Scott! Allison M. Genomic testing reaches into the womb. Nature Biotechnology 31(7):595-601.
- Discover, July/August 2013
--Faroe Islands aim to sequence genes of entire country
The Faroe Islands is offering whole genome sequencing to every citizen who wants it. Hank Greely, with the Stanford Center for Biomedical Ethics (SCBE), provides comment in this magazine piece.
June 2013
- 06/19/13 - CIRGE Post-Doc Lauren Milner and CIRGE PI Mildred Cho published Focusing on Cause or Cure? Priorities and Stakeholder Presence in Childhood Psychiatry Research in AJOB Primary Research!
- TheScientist.com, 06/18/13
--Gene patents decision: Everybody wins
This piece discusses the Supreme Court's recent decision on gene patenting and features Hank Greely, with the Stanford Center for Biomedical Ethics (SCBE). An Inside Stanford Medicine story also delves into the ruling and what it means for patient care; Greely; Douglas Blayney, the Ann and John Doerr Medical Director of the Stanford Cancer Institute and professor of medicine at the school; Mark Pegram, the Susy Yuan-Huey Hung Professor; Mildred Cho, professor of pediatrics and associate director of the SCBE; Michael Snyder, the Stanford W. Ascherman, MD, FACS, Professor in Genetics and director of Stanford's Center for Genomics and Personalized Medicine; Atul Butte, associate professor of pediatrics and of genetics; and Christopher Scott, senior research scholar in the SCBE and director of Stanford's Program on Stem Cells in Society, are all featured.
- --Independent Lens (PBS), 06/17/13
The Revolutionary Optimists, a documentary co-directed and co-produced by Maren Grainger-Monsen and Nicole Newnham, will air on the Emmy Award-winning series Independent Lens, hosted by Stanley Tucci, tonight at 10 p.m. on KQED. Grainger-Monsen is founder and director of the Program in Bioethics in Film at the Stanford Center for Biomedical Ethics. Newnham is an independent documentary filmmaker, currently a filmmaker-in-residence with the program.
http://med.stanford.edu/ism/2013/june/brief-optimists-0610.html - NationalGeographic.com, 06/14/13
--7 takeaways from Supreme Court's gene patent decision
This piece discusses the Supreme Court’s recent decision on gene patenting and what it means for patients and the biotech industry. Hank Greely, with the Stanford Center for Biomedical Ethics, is featured here.
- Los Angeles Times, 06/14/13
--Researchers hail Supreme Court decision on gene patent
The U.S. Supreme Court yesterday issued their anxiously awaited decision in a case that raised the issue of whether companies like Salt Lake City-based Myriad Genetics, Inc. can patent genes, in this case, the BRCA1 and BRCA2 genes. The Court ruled that naturally isolated DNA is not patentable, but that synthetic DNA (such as the cDNA for the BRCA1 and 2 genes) is patentable. Euan Ashley, assistant professor of cardiovascular medicine, is quoted in this article. The decision is also discussed in stories from MIT Technology review, which quotes Hank Greely; Wired.com, which quotes Drew Endy, assistant professor of bioengineering; and entries on the Stanford blog Scope, which feature Carlos Bustamante, professor of genetics, and Jake Sherkow, a fellow at the Stanford Center for Law and Biosciences.
http://scopeblog.stanford.edu/2013/06/13/reaction-on-gene-patenting-ruling-from-around-the-web/
http://scopeblog.stanford.edu/2013/06/13/a-closer-look-at-supreme-courts-decision-on-gene-patenting/ - Forum (KQED), 06/14/13
This segment discussed the Supreme Court's decision on gene patenting. Mildred Cho, professor of pediatrics and associate director of the SCBE, talked about the decision and its implications.
- Science Friday (NPR), 06/07/13
This segment discussed the issue of genetic disclosures and just how much might be too much information for patients and doctors. Hank Greely, with the Stanford Center for Biomedical Ethics, and Kelly Ormond, director of the genetic counseling training program at Stanford, were featured on the program.
- 06/07/13 - "Bioethicists say criticisms of preemie oxygen study could have "chilling effect" on clinical research" -- The federal Office for Human Research Protections (OHRP) has decided to suspend sanctions it imposed earlier this year on a study of blood oxygen levels used to treat premature infants. Last week, a group of more than 40 of the country’s top bioethicists, including David Magnus, the Thomas A. Raffin Professor and director of the Stanford Center for Biomedical Ethics (SCBE), and Mildred Cho, professor of pediatrics and associate director of the SCBE, sent a letter to OHRP stating that the sanctions could have a chilling effect on much-needed clinical research.
- 06/07/13 - "Second child placed on adult transplant list" -- Debate over the age restriction for lung transplants intensifies, as a second child is temporarily placed on the waiting list for adult lung recipients. David Magnus, director of the Center for Biomedical Ethics at Stanford University, and Howard M. Nathan of the Gift of Life Donor program discuss.
- 06/06/13 - SCBE Project Manager Emily Borgelt, SCBE Senior Research Scholar Chris Scott, and UBC's Shafik Dharamsi published Dear Student: Stem Cell Scientists' Advice to the Next Generation in Cell Stem Cell!
- Today Show (NBC), 06/05/13
A ten-year old girl is waiting for a lung transplant while struggling with cystic fibrosis. This segment discussed how national transplant rules don't allow children under the age of 12 to receive adult lungs. David Magnus, the Thomas A. Raffin Professor and director of the SCBE, was featured.
- Forum (KQED-FM), 06/04/13
--On Monday the U.S. Supreme Court ruled that police may take DNA from people arrested in connection with serious crimes. Hank Greely, with the Stanford Center for Biomedical Ethics, was interviewed during this segment.
- 06/04/13 - CIRGE Post-Doc Nanibaa' Garrison and two of her colleagues at UC Berkeley and University of Washington published Forensic familial searching: scientific and social implications in Nature Reviews Genetics!
- 06/04/13 - CIRGE PI Mildred Cho, former CIRGE Post-Bacc Lauren Sayres, and their colleagues from Duke published Commercial landscape of noninvasive prenatal testing in the United States in Prenatal Diagnosis!
- 06/04/13 - Stanford Genetic Counselor Megan Grove and SCBE's Maya Wolpert, Mildred Cho, Sandra Lee, and Kelly Ormond published Views of Genetics Health Professionals on the Return of Genomic Results in the Journal of Genetic Counseling!
- Los Angeles Times, 06/03/13
--Supreme Court allows police to take DNA sample after an arrest
On Monday the U.S. Supreme Court ruled that police may take DNA from people arrested in connection with serious crimes. Hank Greely, with the Stanford Center for Biomedical Ethics (SCBE), provides comment in this story.
May 2013
- AAMC Reporter, May 2013
Audrey Shafer was quoted in this article about work life balance. - Stanford Arts Institute, 05/29/13
-Music and Medicine: An Interdisciplinary Approach to Beethoven - 05/22/13 - SCBE's Megan Allyse, Lauren Sayres, Molly Havard, Jaime King, Hank Greely, Louanne Hudgens, J. Taylor, Mary Norton, Mildred Cho, David Magnus and Kelly Ormond published Best ethical practices for clinicians and laboratories in the provision of noninvasive prenatal testing in Prenatal Diagnosis!
- Morning Edition (NPR), 05/16/13
--The news that Ohio scientists have successfully cloned human embryos could lead to more legislation involving stem cell research. Hank Greely, with the Stanford Center for Biomedical Ethics, was interviewed for this segment.
- Genetic Engineering & Biotechnology News, 05/09/13
--Your genes, your choice?
Some critics say the American College of Medical Genetics and Genomics’ recent recommendations for reporting incidental clinical sequencing results undermine patient autonomy. Posdoctoral scholars Megan Allyse and Marsha Michie provide comment in this article.
- 05/09/13 - CIRGE Post-Docs Megan Allyse and Marsha Michie published Not-so-incidental findings: the ACMG recommendations on the reporting of incidental findings in clinical whole genome and whole exome sequencing in Trends in Biotechnology!
April 2013
- MIT Technology Review, 04/23/13
--Prenatal DNA sequencing
This piece explores prenatal DNA sequencing, which is being featured as one of the 10 breakthrough technologies of 2013. Stephen Quake, the Lee Otterson Professor in the School of Engineering and professor of bioengineering, and Hank Greely, with the Stanford Center for Biomedical Ethics, are quoted.
- SCBE Senior Research Scholar Katrina Karkazis and Stanford medical student Katie Miller published Health Beliefs and Practices in an Isolated Polygamist Community of Southern Utah in the Journal of Religion and Health!
- NPR, 04/19/13
The Supreme Court is currently hearing arguments on whether or not human genes can be patented. Mildred Cho, associate director of the Stanford Center for Biomedical Ethics, discussed the case against Myriad Genetics during this segment. - CIRGE Post-Doc Lauren Milner and SCBE Director David Magnus published Can Informed Consent Go Too Far? Balancing Consent and Public Benefit in Research in the American Journal of Bioethics!
- Stanford Report, 4/8/13
--Hank Greely on the ethics of resurrecting extinct species
Scientists predict that within 15 years they will be able to revive some recently extinct species, such as the dodo or the passenger pigeon, raising the question of whether or not they should – just because they can. Law Professor Hank Greely weighs in.
March 2013
- Seattle Times, 03/28/13
--'The Revolutionary Optimists': A story of hope in Indian slums
“The Revolutionary Optimists," an award-winning documentary by Maren Grainger-Monsen and Nicole Newnham, is reviewed in this piece. The film chronicles the story of a lawyer-turned-social entrepreneur working to empower children living in Calcutta’s poorest neighborhood to become leaders in improving health and sanitation. Grainger-Monsen is director of the Program in Bioethics at the Stanford Center for Biomedical Ethics, and Nicole Newnham is a filmmaker and writer in the program.
- CIRGE Program Manager Colleen Berryessa and CIRGE PI Mildred Cho published Ethical, Legal, Social, and Policy Implications of Behavioral Genetics in the Annual Review of Genomics and Human Genetics
February 2013
- Stanford Daily, 02/01/13
--Hank Greely wins prestigious Lyman award
Hank Greely, with the Stanford Center for Biomedical Ethics, is the recipient of the Lyman Award, a prestigious honor given in recognition of faculty service by the Stanford Alumni Association.
January 2013
- 01/31/13 - CIRGE post-doc Nanibaa' Garrison and CIRGE PI Mildred Cho published Awareness and Acceptable Practices: IRB and Researcher Reflections on the Havasupai Lawsuit in AJOB Primary Research!
- Los Angeles Times, 01/18/13
--If your genome is public, so are you, researchers find
Using public websites, a team of researchers from the Whitehead Institute has uncovered the names of supposedly anonymous people who had their DNA analyzed for research purposes. Mildred Cho, professor of pediatrics, associate director of the Stanford Center for Biomedical Ethics and principal investigator of the Stanford Center for Integration of Research on Genetics and Ethics, provides comment in this article, which also appeared in the Chicago Tribune.
- 01/16/2013 -- CIRGE Post-Doc Nanibaa' Garrison was featured in "Shifting Roles, Shifting Research: Collaborative Genetic Studies with Indigenous Communities!" in Society for Advancement of Chicanos and Native Americans in Science Winter Magazine, Winter/Spring 2013, Vol. 15, No. 2!
- 01/16/13 - CIRGE post-doc Marsha Michie and her colleagues from UNC Chapel Hill and Wake Forest published "What Research Ethics Should Learn from Genomics and Society Research: Lessons from the ELSI Congress of 2011" in the Journal of Law, Medicine & Ethics!
- 01/08/13 - CIRGE post-doc Nanibaa' Garrison published "Genomic Justice for Native Americans: Impact of the Havasupai Case on Genetic Research" in Science, Technology & Human Values!
2012
December 2012
- 12/13/12 - CIRGE post-doc Megan Allyse published 23 and Me, We, and You: direct-to-consumer genetics, intellectual property, and informed consent in Trends in Biotechnology!
November 2012
- Forum (KQED), 11/26/12
--The UC Davis School of Medicine is the focus of several investigations after two of its doctors were found to have conducted experimental treatments on dying cancer patients without proper approval. David Magnus, the Thomas A. Raffin Professor in Medicine and Biomedical Ethics and director of the Stanford Center for Biomedical Ethics (SCBE) was part of a panel that discussed safe and ethical approaches to medical research involving the terminally ill. Link>>
- 11/01/12 - CIRGE collaborator Jaime King published Politics and Fetal Diagnostics Collide in Nature!
October 2012
- 10/16/12 - CIRGE Post-Doc Nanibaa' Garrison and SCBE Director David Magnus published The Instrumental Role of Hospital Ethics Committees in Policy Work in the American Journal of Bioethics!
- 10/09/12 - CIRGE Scholars Taylor A. Goodspeed, Megan Allyse, Lauren C. Sayres, Mary E. Norton, and Mildred K. Cho published Translating cell-free fetal DNA technology: structural lessons from non-invasive RhD blood typing in Trends in Biotechnology!
- Des Moines Register, 10/08/12
--Another view: Candidates' silence on science is troubling
In this opinion piece, Christopher Scott discusses presidential candidate Mitt Romney's stance on stem cell research. Scott is director of Stanford’s Program on Stem Cells and Society and a senior research scholar at the Stanford Center for Biomedical Ethics.
- Los Angeles Times, 10/05/12
--Mouse stem cells used to produce eggs, Japanese scientists say
Researchers in Japan say they used mouse stem cells to create eggs and sperm, producing healthy offspring. The discovery could eventually aid human fertility. Renee Reijo Pera,
professor of obstetrics and gynecology and director of the Stanford Center for Reproductive and Stem Cell Biology, provides comment in this article. The research is also discussed in a piece from the Daily Telegraph (U.K.), which quotes Hank Greely from the Stanford Center for Biomedical Ethics.
- 10/1/12 - Former CIRGE Post-Bacc Fellow Jessica Erickson and CIRGE PI Mildred Cho publishedInterest, rationale, and potential clinical applications of genetic testing for mood disorders: A survey of stakeholders in the Journal of Affective Disorders!
September 2012
- 9/28/12 - Missed Duke Professor Robert Cook-Deegan's Sept. 28th CIRGE Speaking Event? A recording can be found HERE!
- Morning Edition (NPR), 09/25/12
--This segment discussed a family's experience with whole-genome sequencing. Hank Greely, with the Stanford Center for Biomedical Ethics, was featured.
August 2012
- 8/30/12 - CIRGE post-doc Marsha Michie and scholars from UNC and Duke have published "Am I a control?: Genotype-driven research recruitment and self-understandings of study participants" in Genetics in Medicine!
- Reuters, 8/29/12
--Neuroscience in court: My brain made me do it
This piece discusses how neuroscientific evidence is increasingly being used in court. Hank Greely, with the Stanford Center for Biomedical Ethics, provides comment.
- MIT Technology Review, 8/29/12
--New tests could divine a baby's genome before birth
Scientists can now sequence the entire genome of a fetus from samples of a pregnant woman’s blood, several recent studies have shown. Mildred Cho, associate director of the SCBE, is quoted in this article.
- Los Angeles Times,08/23/12
--Children of older fathers prone to certain disorders, study says
Men who become fathers later in life pass on more new genetic mutations to their children, increasing the risk of autism and schizophrenia, according to new research from the University of Iceland. Hank Greely, of SCBE and CIRGE, provides comment in this article! - NY Times, 8/16/12
--Study of Judges Finds Evidence From Brain Scans Led to Lighter Sentences
The findings of the study “The Double-Edged Sword: Does Biomechanism Increase or Decrease Judges' Sentencing of Psychopaths?” done by CIRGE Alum Teneille Brown and her colleagues at the University of Utah are discussed by the NY Times in this article!
July 2012
- Booster Shots (LATimes.com), 07/25/12
--Fetal DNA tests: Will patents work against patients?
This article discusses how patenting and licensing for fetal DNA testing could have serious consequences for technology advances and benefits to public health. The issue was the subject of a paper co-authored by Mildred Cho, associate director of the SCBE, and Megan Allyse. - Huffington Post, 07/26/12
--Optogenetics: A novel technology with questions old and new
This piece focuses on some of the questions posed by optogenetics, a technique that combines genetic engineering of brain cells with fiber optics. Karl Deisseroth, associate professor of bioengineering and of psychiatry and behavioral sciences, pioneered the technology and is quoted here. Lauren Milner and Megan Allyse, postdoctoral scholars in the Stanford Center for Biomedical Ethics (SCBE), also provide comment.
- Former, CIRGE Post-Baccalaureate fellow Lauren Sayres, CIRGE Post-Doctoral Fellow Megan Allyse. CIRGE PI Midred Cho, and Taylor A. Godspeed published In the Public Interest? in Science Translational Medicine.
June 2012
- CIRGE Post-Doctoral Fellow Nanibaa' Garrison contributed to a genetics resource through the American Indian & Alaska Native Genetics Resource Center. Click here for her section on cases involving tribes and genetics research.
- CIRGE PI Mildred Cho and CIRGE Alumnae Jennifer McCormick, Angie Boyce, and Jennifer Ladd published Barriers to Considering Ethical and Societal Implications of Research: Perceptions of Life Scientists in the American Journal of Bioethics Primary Research.
- CIRGE Scholars published Customers or Research Participants? Guidance for Research Practices in Commercialization of Personal Genomics in Genetics in Medicine.
May 2012
- CIRGE Scholars, Lauren Sayres and David Magnus, published Duty-Free: The Non-Obligatory Nature of Preimplantation Genetic Diagnosis in the American Journal of Bioethics.
- CIRGE Scholars, Sandra Lee and Simone Vernez, published Assessing the Pedagogical Goals of Self-Testing in Evaluating the Consultation Needs of Different Student Populations in the American Journal of Bioethics.
March 2012
- CIRGE PI, Mildred Cho, co-authored Managing Incidental Findings and Research Results in Genomic Research Involving Biobanks and Archived Data Sets in Genetics in Medicine.
February 2012
- CIRGE PI, Mildred Cho, and Henry Richardson published Secondary Researchers' Duties to Return Incidental Findings and Individual Research Results: a Partial-Entrustment Account in Genetics in Medicine.
- CIRGE Scholar Joanna Fanos published New "first families": the psychosocial impact of new genetic technologies in Genetics in Medicine.
- CIRGE Scholar Chris Scott and co-authors published Personal Medicine - the New Banking Crisis in Nature Biotechnology.
- Congratulations to Ellen Farrelly on publishing her Master's project! Genetic Counseling for Prenatal Testing: Where is the Discussion about Disability? has been published in Journal of Genetic Counseling.
- CIRGE PI, Mildred Cho, co-authored Human Evolutionary Genomics: Ethical and Interpretive Issues, published in Trends in Genetics.
January 2012
- Congratulations to Reana Tischler on publishing her Master's project! Noninvasive Prenatal Diagnosis: Pregnant Women's Interest and Expected Uptake has been published in Prenatal Diagnosis.
- CIRGE Scholars Molly Havard, Mildred Cho, and David Magnus published Triggers for Research Ethics Consultation in Science and Translational Medicine.
2011
December 2011
- CIRGE Post-Baccalaureate Fellow, Jessica Erickson, and PI Mildred Cho published Ethical Considerations and Risks in Psychiatric Genetics: Preliminary Findings of a Study on Psychiatric Genetic Researchers in AJOB Primary Research.
November 2011
- CIRGE Post-Doctoral Fellows Megan Allyse and Lauren Milner were cited in The Military's DNA in Genome Technology.
September 2011
- CIRGE Post-Baccalaureate Fellow, Lauren Sayres, and PI Mildred Cho published Cell-Free Fetal Nucleic Acid Testing: A Review of the Technology and its Applications in Obstetrical and Gynecological Survey.
August 2011
- CIRGE Scholars Megan Allyse, Lauren Milner, and Mildred Cho published The G.I. Genome: Ethical Implications of Genome Sequencing in the Military in Nature Reviews Genetics.
July 2011
- CIRGE Scholars Lauren Sayres, Megan Allyse, Mildred Cho, and Laura Roberts published Cell-free fetal DNA testing: a pilot study of obstetric healthcare provider attitudes toward clinical implementation in Prenatal Diagnosis.
- CIRGE Collaborator Joachim Hallmayer and colleagues published Genetic Heritability and Shared Environmental Factors Among Twin Pairs with Autism in Archives of General Psychiatry.
- Hallmayer and co-authors provided comment on NPR's Forum program. Click here to listen.
June 2011
- Please welcome our new CIRGE summer research assistants: Seanan Fong, Taylor Goodspeed, Catherine Nguyen, and Alex Whitford.
- CIRGE Scholar Chris Scott and CIRGE Alumna Jennifer McCormick and colleagues published Democracy Derived? New Trajectories in Pluripotent Stem Cell Research in Cell.
May 2011
- CIRGE PI Mildred Cho and CIRGE Scholars Kelly Ormond, Louanne Hudgins, Jenn Ladd, David Magnus, and Hank Greely published Medical and Graduate Students' Attitudes Towards Personal Genomics in Genetics in Medicine.
April 2011
- All CIRGE Fellows presented their research at the ELSI Congress in Chapel Hill, NC. A full conference program can be found here.
January 2011
- CIRGE Scholar Hank Greely published Get Ready for the Flood of Fetal Gene Screening in Nature.
2010
November 2010
- CIRGE PI Mildred Cho and Program Manager Maya Wolpert published Not Yet in Sequence: Clinical, technical, ethical questions linger over personal genomics in Modern Healthcare.
October 2010
- CIRGE Alumna Teneille Brown and Kelly Lowenberg published Biobanks, Privacy, and the Subpoena Power in the Stanford Journal of Law, Science, and Policy.
- CIRGE PI Mildred Cho published Patently unpatentable: implications of the Myriad court decision on genetic diagnostics in Trends in Biotechnology.
- Post-Doctoral Scholar Nanibaa' Garrison moderated a panel on Native American views of Genetic Research at the ACMG Clinical Genetics Meeting in March. Her report is available here.
September 2010
- CIRGE is pleased to welcome new Post-Doctoral Fellow, Lauren Milner.
- CIRGE scholar Chris Scott commented on the use of human tissue created from stem cells to identify potentially dangerous side-effects from drugs under development before undergoing expensive human trials. Click here to read more.
August 2010
- CIRGE is pleased to welcome new Post-Baccalaureate Fellow, Jessica Erickson.
- CIRGE scholar Hank Greely discussed UC Berkeley's Genetic Testing Program on National Public Radio.
July 2010
- The Coming Revolution in Prenatal Genetic Testing, by CIRGE scholars Hank Greely and Jaime King, has been published in the Professional Ethics Report, a publication of the American Association for the Advancement of Science.
- Synthetic "Life," Ethics, National Security, and Public Discourse, by CIRGE scholar Mildred Cho and David Relman, has been published in Science.
June 2010
- CIRGE is pleased to welcome new fellows and staff!
- Post-Doctoral Fellow Megan Allyse will receive her Ph.D. in Sociology and Social Policy from the University of Nottingham. Her research interests include inter-cultural normative dialogue and the socio-cultural impacts of emerging technologies.
- Post-Baccalaureate Fellow Lauren Sayres graduated from Stanford with a BA in Human Biology.
- Program Manager Maya Wolpert graduated from Stanford with a BA in Human Biology.
- CIRGE Scholars Sally Tobin, Sandra Lee, Hank Greely, Kelly Ormond, and Mildred Cho published a response to a PLoS Genetics article (Web-Based, Participant-Driven Studies Yield Novel Genetic Associations for Common Traits) and editorial (Consent and Intrenet-Enabled Human Genomics). Their response is entitled Not a Loophole: Commercial Exploitation of an IRB Error.
May 2010
- The CIRGE/CLB Conference was a success. Audio recordings and select speaker PowerPoint presentations are posted here.
- CIRGE Scholar Hank Greely discussed direct-to-consumer personal genetic tests on MSNBC Nightly News and in the StarTribune.
- Stem cell tourism and the power of hope by CIRGE Scholars CJ Murdoch and Chris Scott has been published in the American Journal of Bioethics.
- CIRGE scholars Atul Butte, Kelly Ormond, Louanne Hudgins, Hank Greely, Russ Altman and others published Clinical Evaluation Incorporating a Personal Genome in Lancet.
April 2010
- CIRGE has moved! Please note the change in our address to 1215 Welch Road, Modular A, Stanford, CA 94305-5417. All phone numbers will remain the same.
March 2010
- CIRGE Postdoctoral Fellow Nanibaa' Garrison was interviewed on the Native America Calling radio station about genetic testing in Native America on March 31.
- CIRGE is pleased to welcome applications for a new Program Manager, two Postbaccalaureate Fellows and two Postdoctoral Fellows. For more information, please visit our Employment Opportunities page under "Center Activities."
- Predicting Phenotype from Genotype: Normal Pigmentation* by CIRGE Scholar Nanibaa' Garrison has been published in the Journal of Forensic Sciences.
2009
December 2009
- The "how" and "whys" of research: life scientists' views of accountability by CIRGE Scholars Jennifer Ladd, Martine Lappé, Jennifer McCormick, Angie Boyce and Mildred Cho has been published in the Journal of Medical Ethics.
November 2009
- CIRGE Scholars Mildred Cho and Jennifer Ladd presented Maren Grainger-Monsen's new film Citizen Scientists at the November 2009 Public Responsibility in Research & Medicine advancing ethical research conference.
October 2009
- CIRGE would like to welcome new postdoctoral fellow Nanibaa' Garrison. Nanibaa's research interests include personal genomics, human genetic ancestry and evolutionary history, and issues with privacy and confidentiality.
September 2009
- CIRGE would like to welcome new postdoctoral fellow CJ Murdoch. CJ is also part of the SCBE Program on Stem Cells in Society and the Stanford Law School Center for Law and the Biosciences. CJ will work on ethical and legal issues in stem cell research and behavioral genomics.
August 2009
- CIRGE Scholar David Magnus discussed the necessity for health care reform in a recent Stanford Medicine podcast.
July 2009
- CIRGE wishes former postdoctoral fellow Teneille Brown much luck and success in her new position as Associate Professor of Law at S.J. Quinney College of Law, University of Utah.
- CIRGE Scholars Kelly Ormond and Hank Greely voiced cautions about direct-to-consumer genetic testing in the ACP Internist.
- In an article for Politics Daily, CIRGE Scholar Mildred Cho commented on the complexity of the health care system.
- CIRGE Scholar Sandra Lee presented her work on social networking and direct-to-consumer genomics at the July 2009 Genetics & Ethics in the 21st Century conference.
- In a local paper, CIRGE Scholar Sandra Lee commented on the need for federal regulations for companies offering direct-to-consumer genetic testing.
- CIRGE Scholar Hank Greely commented on the practice of banking newborn blood samples in The Baltimore Sun.
- The Illusive Gold Standard in Genetic Ancestry Testing has been published by CIRGE Scholar Sandra Lee in Science.
June 2009
- Research 2.0: Social Networking and Direct-to-Consumer (DTC) Genomics has been published by CIRGE Scholars Sandra Lee and LaVera Crawley in the American Journal of Bioethics.
- Revisiting Race in a Genomic Age, edited by CIRGE Scholar Sandra Lee along with Barbara Koenig and Sarah Richardson, received high praise in a recent Science book review.
April 2009
- "Biobanks, privacy, and the subpoena power" by CIRGE Scholar Teneille Brown, with Kelly Lowenberg, has been accepted for publication in the Stanford Journal of Science Policy and Law.
- "Through A Scanner Darkly – functional neuroimaging as evidence of a criminal defendant’s past mental states" by CIRGE Scholar Teneille Brown, with Emily Murphy, has been accepted for publication in Volume 62 of the Stanford Law Review.
March 2009
- Biomedical scientists' perceptions of ethical and social implications: is there a role for research ethics consultation? by CIRGE Scholars Jennifer McCormick, Angie Boyce and Mildred Cho has been published online at PLoS ONE.
February 2009
- The "etiome": identification and clustering of human disease etiological factors by CIRGE Scholars Paul Wise and Atul Butte, with Yueyi Liu, has been published in BMC Bioinformatics.
- CIRGE Scholar David Magnus has commented on the birth of the CA octuplets in The Washington Post and in Telegraph.co.uk.
- Direct-to-consumer genetic tests: beyond medical regulation? by CIRGE Scholars David Magnus and Mildred Cho, with Robert Cook-Deegan, has been published in Genome Medicine.
January 2009
- Translating genomics into the clinic: moving to the post-Mendelian world by CIRGE Scholar Mildred Cho has been published in Genome Medicine.
- Assessing the Understanding of Biobank Participants by CIRGE Scholar Kelly Ormond, et al. has been published in the American Journal of Medical Genetics Part A.
- Racing forward: the Genomics and Personalized Medicine Act by CIRGE Scholar Sandra Lee and HumBio student Ashwin Mudaliar has been published in Science.
- Race and ancestry in biomedical research: exploring the challenges by CIRGE Scholar Sandra Lee and others has been published in Genome Medicine.
2008
December 2008
- Several presentations from the CIRGE 2006 Interpreting Complexity and 2008 Capturing Complexity Symposia are now featured on Nature Precedings as highlighted collections. Videos of the presentations are also linked from Nature Precedings to GoogleVideo.
- Professor and CIRGE scholar Hank Greely commented on the issue of cognitive enhancement in a December 8, 2008 USNews.com article. He was also the coauthor of a December 7, 2008Nature commentary on the topic.
November 2008
- Research ethics consultation: the Stanford experience, by CIRGE scholars Mildred Cho, Sally Tobin, Hank Greely, Jen McCormick, Angie Boyce and David Magnus, was published in IRB: Ethics & Human Research.
October 2008
- CIRGE scholars Mildred Cho, Hank Greely and Teneille Brown were all quoted in the WSJ article entitled Gene Screen: Will we Vote Against a Candidate's DNA?
- CIRGE scholar Dr. Maren Grainger-Monsen presents her newest documentary film entitled Citizen Scientists at the ASBH 10th Annual Meeting.
- Professor Hank Greely comments on the use of neuroscience and brain imaging in the court system in an October 17th article in the San Francisco Chronicle.
August 2008
- Videos and transcripts from the 2008 Capturing Complexity Symposium are now available here.
- Recent publications by CIRGE scholars include:
Perceived Medical Discrimination and Cancer Screening Behaviors of Racial and Ethnic Minority Adults
2007
August 2007
- CIRGE is pleased to welcome a new postdoctoral fellow, Teneille Brown, to the Center. Teneille graduated from the University of Michigan law school in 2004 and then practiced law at Latham & Watkins, LLP in Washington DC. Her work at the Center will focus on the intersection between behavioral genetics and the law, including the admissibility of genetics data in the courtroom.
May 2007
- CIRGE's Bio-Medical Ethics Reference Server (BMERS) is now live. BMERS is a tool for collecting, annotating, and sharing references and research on bio-medical ethics. If you are a researcher in biomedical ethics and would like an account, please contact the Center for more information.
March 2007
- All presentations from the CIRGE 2006 Symposium entitled Interpreting Complexity: the Scientific and Social Meaning of Behavioral Genetics are now available as streaming video (Quicktime player needed). Start by viewing the introduction by Dr. Mildred Cho.
February 2007
- Jennifer Singh, Joachim Hallmayer, and Judy Illes have published a paper entitled Interacting and Paradoxical Forces in Neuroscience and Society in Nature Reviews Neuroscience. This paper discusses autism in the context of other case studies in the history of neuroscience.