Major Bioethics Reports
- AAAS and The Hastings Center: Behavioral Genetics Project Publications (2004, 2005)
http://www.aaas.org/spp/bgenes/publications.shtml
- The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research (1979)
http://www.hhs.gov/ohrp/humansubjects/guidance/belmont.html
- CDC: Genomics and Population Health: United States 2003
http://www.cdc.gov/genomics/about/file/print/2003report/2003Full.pdf
(Please see Chapter 8 for ELSI discussion)
- International Bioethics Committee: Bioethics and Human Population Genetics Research (1995)
http://portal.unesco.org/shs/en/ev.php-URL_ID=2303&URL_DO=DO_TOPIC&URL_SECTION=201.html
- International Bioethics Committee: Human Genetic Data: Preliminary Study by the IBC on its Collection, Processing, Storage and Use (2002)
http://portal.unesco.org/shs/en/ev.php-URL_ID=2138&URL_DO=DO_TOPIC&URL_SECTION=201.html
- NHGRI: Genetic Information and the Workplace (1998)
http://www.genome.gov/10001732
- NHGRI: Promoting Safe and Effective Genetic Testing in the United States: Final Report of the Task Force on Genetic Testing (1997)
http://www.genome.gov/10001733
- NHGRI: Protecting Human Research Subjects (1993)
http://www.genome.gov/10001752
- NHGRI: Report on The Joint NIH/DOE Committee to Evaluate the Ethical, Legal, and Social Implications Program of the Human Genome Project (Committee Appointed 1996)
http://www.genome.gov/10001745
- NHGRI: Studying Interactions Among Social, Behavioral and Genetic Factors in Health (2001)
http://www.genome.gov/10001662
- NHGRI: A Vision for the Future of Genomics Research (2003)
http://www.genome.gov/11007524
- Nuffield Council on Bioethics: the Ethics of Patenting DNA (2002)
http://nuffieldbioethics.org/wp-content/uploads/2014/07/The-ethics-of-patenting-DNA-a-discussion-paper.pdf
- Nuffield Council on Bioethics: Genetic Screening: Ethical Issues (1993)
http://nuffieldbioethics.org/wp-content/uploads/2014/07/Genetic_screening_report.pdf
- Nuffield Council on Bioethics: Genetics and Human Behaviour: the Ethical Context (2002)
http://nuffieldbioethics.org/wp-content/uploads/2014/07/Genetics-and-human-behaviour.pdf
- Nuffield Council on Bioethics: Mental Disorders and Genetics: the Ethical Context (1998)
http://nuffieldbioethics.org/wp-content/uploads/2014/07/Mental-disorders-and-genetics-the-ethical-context.pdf
- The Nuremberg Code (1949)
http://www.hhs.gov/ohrp/archive/nurcode.html
- Secretary's Advisory Committee on Genetic Testing: A Public Consultation on Oversight of Genetics Tests (2000)
http://osp.od.nih.gov/sites/default/files/Public%20Consultation%20Summary_0.pdf
- The World Medical Association Declaration of Helsinki (Note of Clarification Added 2004)
http://www.wma.net/en/30publications/10policies/b3/