Links & Resources


Forums & Blogs

The following are resources for ME/CFS patients. We hope these provide further information about ME/CFS and the opportunity to connect with other patients and organizations.

Please note that we do not endorse or take responsibility for the content of any of these forums, but want to make the links available to those who are interested.

#MEAction – an international network of patients fighting for health equality for ME

Solve ME/CFS Initiative – a research and advocacy organization dedicated to ME/CFS

HHV-6 Foundation – an organization dedicated to promoting and funding research on HHV-6, a virus linked to ME/CFS

Health Rising – an organization providing information to people with ME/CFS and fibromyalgia

ProHealth – a website providing numerous resources for ME/CFS patients 

Science for ME –  Where Science and the ME/CFS Community Meet

Self Help – CFIDS & Fibromyalgia Self Help (online courses, library, store) 


Patient Stories:

·        Suspended Animation, story of college student Mia Anderson with ME/CFS

·        Voices from the Shadows, a film on ME/CFS

Clinical and Research Information:

·        Dr. A Martin Lerner speaking on Chronic Fatigue Syndrome

·        Day 1: State of the Knowledge Workshop on ME/CFS Research Day, 2011

·        Day 2: State of the Knowledge Workshop on ME/CFS Research Day, 2011

·        10th Annual International Association for CFS/ME Research and Clinical Conference in Ottawa, Canada, 2011


Phoenix Rising ME/CFS blog

Pro Health ME/CFS Research and News