Links & Resources
Conferences
- Centers for Disease Control and Prevention - Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Stakeholder Engagement and Communication (MECFS-SEC)
- Chronic Fatigue Syndrome Advisory Committee (CFSAC) Upcoming Meetings
- IACFS/ME Biennial Conference
- NIH – ME/CFS Working Group
Forums & Blogs
The following are resources for ME/CFS patients. We hope these provide further information about ME/CFS and the opportunity to connect with other patients and organizations.
Please note that we do not endorse or take responsibility for the content of any of these forums, but want to make the links available to those who are interested.
#MEAction – an international network of patients fighting for health equality for ME
Solve ME/CFS Initiative – a research and advocacy organization dedicated to ME/CFS
HHV-6 Foundation – an organization dedicated to promoting and funding research on HHV-6, a virus linked to ME/CFS
Health Rising – an organization providing information to people with ME/CFS and fibromyalgia
ProHealth – a website providing numerous resources for ME/CFS patients
Science for ME – Where Science and the ME/CFS Community Meet
Self Help
https://cfsselfhelp.org/ – CFIDS & Fibromyalgia Self Help (online courses, library, store)
Videos
Patient Stories:
· Suspended Animation, story of college student Mia Anderson with ME/CFS
· Voices from the Shadows, a film on ME/CFS
Clinical and Research Information:
· Dr. A Martin Lerner speaking on Chronic Fatigue Syndrome
· Day 1: State of the Knowledge Workshop on ME/CFS Research Day, 2011
· Day 2: State of the Knowledge Workshop on ME/CFS Research Day, 2011
· 10th Annual International Association for CFS/ME Research and Clinical Conference in Ottawa, Canada, 2011