If this is your first visit here at the Adult Cystic Fibrosis Center, you probably have a lot of questions.  This quide will help you understand some of our clinic operations.

Location: Map

The clinic is located at 300 Pasteur Drive on the 1st floor of Boswell Building, located across from the water fountain.

Parking: The parking structure is located across from the water fountain (Pasteur Dr. and Blake Wilbur)

What to Bring: (helpful information for each clinic visit)

1. Insurance card
2. Authorization letter from your HMO or PPO (if available)
3. Name and number of at least one contact person
4. List of current medications with dosage and frequency of daily use
5. List of treatments (inhaled medications/mechanical airway clearance) currently performed.
6. Name and address of the pharmacy that you plan to use for your medications
7. Any pertinent test results from another center not included with your medical records
8. Your glucometer if you are using one
9. Your list of questions/concerns

• The Patient Coordinator will check you in and hand you relevant information about our clinic and let the nursing staff know you have arrived in clinic.
• The Medical Assistant will call you and check vital signs: height, weight, temperature, respirations, blood pressure, and oxygen saturation.
• The Respiratory Therapist will see you first to perform spirometry.  Spirometry is used to measure lung function, and will be interpreted by the MD during your clinic visit.
• The Nurse Coordinator will welcome you to our center and review your current medications, list allergies, and any tests that you had before coming to the center and orient you to the Adult Cystic Fibrosis Team members.
• The Pulmonary Fellow or Nurse Practitioner will take a detailed medical history, and perform a physical examination, collaborate with the attending physician and then will return to your room to discuss and then implement the plan of care.
• The dietician will visit and assess your nutrition needs and meal planning.
• The social worker will visit and assess your needs based on your current social supports and resources.
• Our attending  physician will oversee the plan of care through collaboration with the Cystic Fibrosis team members.
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• What to expect
• Depending on the last time you had a chest x-ray and baseline blood work, you may be asked to complete these on your first visit.
• A sputum culture will be collected
• You may be given new prescriptions.
• Vaccinations may be administered depending on if you are due for one.
• You will be advised when you should return to clinic for routine follow up.
• The respiratory therpist (RT) will talk to you about your airway clearance devices/methods (VEST, acapella, CPT, etc..)  The RT performs VEST fittings and orders new VEST's for patients.
• The nurse coordinator (RN) will speak with you again before you leave the clinic, review the plan of care, answer any final questions and direct you to check out.
• You will check out with the Patient Coordinator to schedule your follow up appointment.
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• Some tests that are usually done:
• Genotype testing
• Spirometry: lung function test
• Chest X-ray or CT Scan
• Sputum culture: a sample of sputum that you cough up will be sent to our microbiology lab.
• Blood tests: e.g. Serum lipids, liver function tests, vitamin levels, blood glucose tests
• We recommend: please sign up for My Health with the Patient Coordinator so that we can reach you via email and release some diagnostic tests after they have been reviewed by the attending physician.
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• CF Team Phone Numbers:
• Patient Call Line: 650-498-6840.  Use for all sick calls, requests for any medication or equipment.  Leave a message with your full name and contact information and a good time to have the call returned.  This patient line is checked regularly throughout the business day, Monday-Friday
• Clinic Appointments (new and exisiting  patients) 650-736-5400
• Adult Cystic Fibrosis Nurse Coordinators: Theresa Kinney and Kristel Fallon 650-498-6840
• After Hours and Weekends: 650-723-4000 Stanford University Hospital Main Number: Ask for the Adult Cystic Fibrosis Pager
  
• Respiratory Therapy (Gauri Pendharkar) 650-736-8892
• Social Services (Meg Dvorak/Kate Yablonsky) 650-723-6273
• Dietitian (Emily Yelencich) 650-529-5952
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• CF Team Responsibilities:
• Adult Nurse Coordinator: provides telephone triage and symptom assessment for all outpatient calls and works directly with the Attending MD to plan care, follows completion of home IV therapy, orders medication refills, orders nebulizers and compressors, makes appointments and referrals, renews feeding orders, renews oxygen orders, reviews labs and cultures results.  Works collaboratively with Primary care physicians, Endocrinology and ENT to facilitate patient care. 
• Respiratory Therapist: measures and orders Vests, provides CPT instruction for family members, provides instruction on acapella, flutter and other airway clearance devices.
• Social Worker:  psychological assessment and referral, disability petitions, financial resources, letters for employers.
• Dietician: follows all Cystic Fibrosis patients, available for consultation for concise diet and nutrition assessment and education, carb counting assistance and vitamin supplementation assessment.
• Nurse Practitioner: provides direct patient care through assessment, diagnosis and treament plan in collaboration with Attending MD.