Follow-up for Breast Cancer Family Registry Study

New Follow-Up Launched in May 2019

In the Spring of 2018, the National Cancer Institute awarded new funding to maintain and enhance the data and biospecimen resources at each of the six international sites of the Breast Cancer Family Registry.

This funding allows us to conduct active follow-up with all of our participants and update family history and other important risk factor information through questionnaires. By collecting data from the same families and individuals over time, we will be able to examine how certain factors affect breast cancer risk throughout the different stages of life.

In May 2019, we launched a new follow-up questionnaire (available by mail and online) that will collect updates to medical history, lifestyle behaviors, and personal and family cancer history. The follow-up data will be collected over the next 2-3 years.

Young Women's Study

We have also begun to  expand the Family Registry by inviting additional young female family members between the ages of 18 and 39 years who have not yet joined.

Why young women?  Risk factors for breast cancer may be different for younger women, yet younger women are often not included in research studies in large enough numbers. We are recruiting young women between the ages of 18 and 39 to become the ‘next generation’ of women who will play a powerful role in speeding up novel research on breast cancer! Learn more about this new 'Young Women's Study' in the brief video. 

For more information, please visit our info page on the 'Young Women's Study'.



Keep us updated!

Have you recently moved? If you are planning to move, or recently changed your address, please let us know by calling our toll-free number 1-888-441-2643 or e-mail us at 

Save a tree!

Our latest follow-up questionnaire is now available online! If you would like to complete the questionnaire online, please email us at  and we will send you the secure link to your personalized questionnaire. 

For the latest study news and developments from all six Breast Cancer Family Registry sites please visit