Research IT offers a suite of on-line self service tools to the Stanford Medicine research community. The availablity of and support for these tools is funded by the Dean's Office, Stanford Hospitals, Stanford Children's, and the CTSA.
The Cohort Discovery Tool provides an easy to use, self-service way for Stanford researchers to query the Clinical Data Warehouse (CDW) to answer the question "Does the CDW contain a cohort of patients with these characteristics?". Search criteria can include patient demographics, ICD coded diagnoses, ICD and CPT coded procedures, laboratory test results, inpatient pharmacy orders and text within clinical documents, including surgical pathology reports and radiology reports.
The Chart Review Tool provides an easy to use, self-service, way to review and refine a cohort identified using the Cohort Discovery tool.
The Chart Review Tool exposes all labs, pharmacy orders, billing codes, and clinical transcripts along with a continuously updated cohort demographics dashboard, the ability to hide/show defined categories of clinical data, and the ability to search an entire patient chart for specific keyword text or phrases.
When you need to ask patients for their health information, HIPAA compliance is easily achieved by building your survey with either REDCap Survey or with the Stanford Medicine instance of Qualtrics. Qualtrics is the more sophisticated of the two, but does not offer built-in study data management the way REDCap does.
If instead you need to collect patient outcomes in a clinical setting you can use CHOIR. CHOIR features an administrative interface pre-populated with the clinic appointment schedule for rapid but secure per-patient survey initialization on shared touch-screen tablets, perfectly balancing ease of use with data security.
i2b2 (Informatics for Integrating Biology and the Bedside) is an NIH-funded National Center for Biomedical Computing based at Partners HealthCare System. Research IT runs an operational SHRINE/I2B2 instance in support of Clinical and Translational Science Award (CTSA) Accrual to Clinical Trials (ACT).