Research IT offers a suite of on-line self service tools to the Stanford Medicine research community. The availablity of and support for these tools is funded by the Dean's Office, Stanford Hospitals, Stanford Children's, and the CTSA.
REDCap is an online tool for building research study databases. Research IT hosts a secure, local installation of REDCap that is approved for use with High Risk data. Anyone in the Stanford research community with a valid SUNet ID can use the system free of charge.
The Cohort Discovery Tool provides an easy to use, self-service way for Stanford researchers to query the Clinical Data Warehouse (CDW) to answer the question "Does the CDW contain a cohort of patients with these characteristics?". Search criteria can include patient demographics, ICD coded diagnoses, ICD and CPT coded procedures, laboratory test results, inpatient pharmacy orders and text within clinical documents, including surgical pathology reports and radiology reports.
The Chart Review Tool provides an easy to use, self-service, way to review and refine a cohort identified using the Cohort Discovery tool.
The Chart Review Tool exposes all labs, pharmacy orders, billing codes, and clinical transcripts along with a continuously updated cohort demographics dashboard, the ability to hide/show defined categories of clinical data, and the ability to search an entire patient chart for specific keyword text or phrases.
The Secure Workbench is secure desktop environment to query, process, and analyze sensitive or restricted data. This service permits users to interact with restricted data using a 'virtual desktop' environment though a secure VPN channel.
When you need to ask patients for their health information, HIPAA compliance is easily achieved by building your survey with either REDCap Survey or with the Stanford Medicine instance of Qualtrics. Qualtrics is the more sophisticated of the two, but does not offer built-in study data management the way REDCap does.
If instead you need to collect patient outcomes in a clinical setting you can use CHOIR, the Collaborative Health Outcomes Information Registry developed in collaboration with the Stanford Systems and Neuroscience Pain Lab. CHOIR features an administrative interface pre-populated with the clinic appointment schedule for rapid but secure per-patient survey initialization on shared touch-screen tablets, perfectly balancing ease of use with data security.
Secure Internal Document Sharing
Stanford Medicine runs a secure, HIPAA compliant installation of Box at https://stanfordmedicine.box.com/ for all your internal secure document sharing needs. For support please contact the IRT Web Help Desk at http://med.stanford.edu/irt/help/.
Stanford Medicine also runs a secure, HIPAA compliant installation of Atlassian Confluence. Like Box, this can be used to collaborate internally and share PHI as needed. You can find out more by consulting the official support site at http://med.stanford.edu/irt/web/site_tools/wikis.html
Secure External Document Sharing
When you need to share PHI with IRB approved collaborators who do not have a SUNet ID, Stanford Medicine offers Med Secure Send, a secure way of transmitting sensitive documents off campus. You can find out more by going to the official support site at http://med.stanford.edu/irt/security/mss.html
i2b2 (Informatics for Integrating Biology and the Bedside) is an NIH-funded National Center for Biomedical Computing based at Partners HealthCare System. Research IT runs an operational SHRINE/I2B2 instance in support of Accrual to Clinical Trials (ACT).