Alfred Lane
Characteristics of Adult Patients with Recessive Dystrophic Epidermolysis Bullosa
Contact Information
Stanford University School of Medicine 300 Pasteur Drive Stanford, CA 94305Brief
Recessive dystrophic epidermolysis bullosa (RDEB) is a severe inherited blistering disease caused by the absence of type VII collagen. Patients with RDEB develop large, severely painful blisters and open wounds from minor trauma to their skin. We are screening RDEB subjects to determine additional characteristics of patients who survive to adulthood.
Recruiting Status:
RecruitingStanford Recruiting Status:
RecruitingCondition(s):
Intervention(s):
Phase:
N/AEligibility
Ages Eligible for Study:
18 years to Any AgeGenders Eligible for Study:
Male and FemaleHealth of Volunteers:
People with the conditions listed in this trial can participate as controls.Key Inclusion Criteria:
1. Clinical diagnosis of RDEB by local dermatologist.
2. 18 years of age or more and willing to give consent.
Key Exclusion Criteria:
1. Medical instability limiting ability to travel to Stanford University Medical Center.
Additional Study Details
Official Title:
Characteristics of Adult Patients with Recessive Dystrophic Epidermolysis BullosaAnticipated start date:
4/23/2009Lead Sponsor:
Stanford UniversityCollaborator(s):
- None
Investigator(s):
Study Type:
ObservationalPurpose:
NOTNEEDEDDuration:
LongitudinalSelection:
Defined PopulationTiming:
ProspectiveTotal Number to be Enrolled:
12Total Number to be Enrolled at Stanford:
12More Information
Secondary ID(s):
- None
Locations & Contacts
Stanford Locations & Contacts:
Stanford University School of Medicine 300 Pasteur Drive Stanford, CA 94305Non-Stanford Locations:
The Stanford website does not have any locations outside of Stanford listed for this trial. You may want to check clinicaltrials.gov for posible additional locations.
This listing was last updated:
10/22/2009PLEASE NOTE:
Study Coordinators and Research Nurses cannot give medical advice over the phone. Telephone numbers are provided for obtaining additional information on specific clinical research trials only. If you have specific questions which require clinical expertise, please call your primary care physician. If you do not have a primary care physician please feel free to call the SHC Physician Referral Service at (800) 756-9000 or send an email.
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