David Cornfield
Cystic Fibrosis Registry
Contact Information
Stanford University School of Medicine 300 Pasteur Drive Stanford, CA 94305Brief
The purpose of this observational study, entitled "The Cystic Fibrosis Database and Specimen Banking", is to collect, maintain clinical information such as Height, Weight, PFT, Sputum data, medication, etc. and store patients' specimen (blood and mucus) of cystic fibrosis patients in a central bank for analysis of effectiveness of treatment and characteristics that may influence outcomes.
Recruiting Status:
RecruitingStanford Recruiting Status:
RecruitingCondition(s):
Intervention(s):
Phase:
N/AEligibility
Ages Eligible for Study:
Any Age to Any AgeGenders Eligible for Study:
Male and FemaleHealth of Volunteers:
People with the conditions listed in this trial can participate as controls.Key Inclusion Criteria:
Subjects will be males and females of all ages. Subjects will have a confirmed diagnosis of cystic fibrosis, based on clinical criteria and positive testing by either sweat chloride testing, genotype testing or nasal potential difference analysis.
Key Exclusion Criteria:
There are no exclusion criteria.
Additional Study Details
Official Title:
Cystic Fibrosis Clinical Database and Specimen BankingAnticipated start date:
7/1/2007Lead Sponsor:
Cystic Fibrosis FoundationInvestigator(s):
- David N Cornfield
- Richard B Moss
- Paul K Mohabir
- Terry Earl Robinson
- Carol K. Conrad
- Dr Nanci Yuan
- Lauren J Witcoff
- John David Mark
- Colleen Dunn RCP
- Zoe Davies RN
- Yan Ki Angela Leung
- Cathy A Hernandez
- Andrea Core
Study Type:
ObservationalPurpose:
NOTNEEDEDDuration:
LongitudinalSelection:
Defined PopulationTiming:
ProspectiveTotal Number to be Enrolled:
200Total Number to be Enrolled at Stanford:
200More Information
Locations & Contacts
Stanford Locations & Contacts:
Stanford University School of Medicine 300 Pasteur Drive Stanford, CA 94305Non-Stanford Locations:
The Stanford website does not have any locations outside of Stanford listed for this trial. You may want to check clinicaltrials.gov for posible additional locations.
This listing was last updated:
8/24/2009PLEASE NOTE:
Study Coordinators and Research Nurses cannot give medical advice over the phone. Telephone numbers are provided for obtaining additional information on specific clinical research trials only. If you have specific questions which require clinical expertise, please call your primary care physician. If you do not have a primary care physician please feel free to call the SHC Physician Referral Service at (800) 756-9000 or send an email.
Help