Parkinson's Caregiver-Only Support Groups in Northern and Central California

Caregivers need to have their own private support group meetings  because they need to vent, share, learn tips and resources, and receive support from others walking the same path.   

With the pandemic, many support groups have moved to virtual meetings with video while others have gone on hiatus until in-person meetings can occur once again. Some groups have expanded the number of virtual meetings to provide more support.  Most groups restrict attendees to the local area.  

Are you in the SF Bay Area but don't see a PD caregiver group near you?  We have a list of caregiver-only support groups for those dealing with dementia.  Note that most attendees are likely dealing with Alzheimer's Disease.    

Are the meeting days/times below not ideal for you?  Or do you live outside of Northern and Central California?  Check out our lists of online support groups (meeting any time) and scheduled virtual nationwide support groups.


> PD and PD Dementia Caregiver-Only Support Groups - Bay Area
> Atypical Parkinsonism Caregiver-Only Support Groups - Bay Area
> PD Caregiver-Only Support Groups - Northern And Central California (beyond the Bay Area)


PD AND PD DEMENTIA CAREGIVER-ONLY SUPPORT GROUPS - BAY AREA

Bay Area Lewy Body Dementia Caregiver-Only Support Group 

Group contact: Robin RiddleBrain Support Network, 650-814-0848

Facilitators: Caregivers whose loved ones have passed away and the Lewy body dementia diagnosis was confirmed through brain donation

Notes: 

  • 2021 meeting dates
  • For caregivers coping with Lewy body dementia, Parkinson's disease dementia, and dementia with Lewy bodies who live in Northern or Central California
  • Phone/email "group contact" to join meeting reminder email list and obtain meeting link

Virtual meetings via video or phone

Occasional Sundays, 5-7pm

RSVP: Yes


Belmont PD Caregivers Support Group 

Group contact: Steven Russell, 650-995-6379, Stanford Parkinson’s Community Outreach

Facilitator: Ann Blick Hamer, LCSW

Notes: 

  • For caregivers living/working in the Belmont area
  • Phone/email "group contact" to join meeting reminder email list and obtain meeting link

Virtual meetings via video

1st and 3rd Thursday, 11:30am-1:30pm

RSVP: Yes


Berkeley Care Partners Support Group - Mild-to-Moderate PD

Group contact: PD Active, 510-479-6119

Facilitator: Roslyn Kleinsinger, LCSW

Notes: 

  • For caregivers of those with mild-to-moderate PD symptoms
  • Phone/email "group contact" to obtain meeting link

Virtual meetings via video

2nd Wednesday, 3-5pm


Berkeley Care Partners Support Group - Moderate-to-Advanced PD

Group contact: Donna Mickelson, PD Active, 510-479-6119

Facilitator: Roslyn Kleinsinger, LCSW

Notes: 

  • For caregivers of those with moderate-to-advanced PD symptoms
  • Phone/email "group contact" to join meeting link

Virtual meetings via video

3rd Wednesday, 2:30-4:30pm


Brentwood PD Caregivers Support Group

Group contact: Sue Schnittker, 925-550-2756

Notes: 

  • For caregivers living/working in the Brentwood area
  • Phone/email "group contact" to join meeting reminder email list and obtain meeting link

Virtual meetings via video

No fixed schedule


Daly City PD Caregivers Support Group 

Group contact: Steven Russell, 650-995-6379, Stanford Parkinson’s Community Outreach

Facilitator: Carley Rencher Chen, LCSW

Notes: 

  • For caregivers living/working in the Daly City/San Francisco area
  • Phone/email "group contact" to join meeting reminder email list and obtain meeting link

Virtual meetings via video

2nd and 4th Tuesday, 11:30am-1:30pm

RSVP: Yes


Los Altos PD Caregivers Support Group 

Group contact: Denise Dagan, 650-867-7419, Stanford Parkinson’s Community Outreach

Facilitator: Susan Weisberg, LCSW  

Notes: 

  • For caregivers living/working in the Los Altos area
  • Phone/email "group contact" to join meeting reminder email list and obtain meeting link

Virtual meetings via video

2nd Tuesday, 10:30am-noon

1st, 3rd, and 4th Thursday, 10:30am-noon

RSVP: No


Menlo Park PD Caregivers Support Group 

Group contact: Robin RiddleStanford Parkinson’s Community Outreach, phone 650-724-6090

Facilitator: Susan Weisberg, LCSW 

Notes: 

  • For caregivers living/working in the Menlo Park area
  • Phone/email "group contact" to join meeting reminder email list and obtain meeting link

Virtual meetings via video or phone

2nd Friday, 12:15-1:45pm

Occasional 4th Friday, 12:15-1:45pm

RSVP: Yes


Menlo Park PD Caregivers Support Group 

Group contact: Robin RiddleStanford Parkinson’s Community Outreach, phone 650-724-6090

Facilitator: Natalie McKelvey, LCSW  

Notes: 

  • For caregivers living/working in the Menlo Park area
  • Phone/email "group contact" to join meeting reminder email list and obtain meeting link

Virtual meetings via video or phone

3rd Tuesday, 12:15-1:45pm

Occasional 1st Tuesday, 12:15-1:45pm

RSVP: Yes


Napa PD Caregivers Support Group

Group contact:  Teri Sandison, phone 707-318-7010

Notes: 

  • Phone/email "group contact" to join meeting reminder email list and obtain meeting location.  (Location varies among group members' patios.)

Physically-distanced, outdoor meetings

3rd or 4th Thursday, 2-4pm

RSVP: Yes


San Jose (The Villages) PD Caregivers Support Group

Group contact: Alice Pratte, 408-223-8033 

Currently on hiatus


San Jose (Willow Glen) PD Caregivers Support Group

Group contact: Charmaine Eng, 408-723-8116 

Notes: 

  • For caregivers living/working in the San Jose area
  • Phone "group contact" to join meeting reminder email list and obtain meeting link

Virtual meetings via video

4th Wednesday, 1:30-3:30pm


Santa Cruz PD Caregivers Support Group

Group contact: Audrey Trautwein, cell 831-419-2995

Notes: 

  • To be added to monthly meeting reminder list and obtain meeting link, provide email address to Audrey Trautwein

Virtual meetings via video

3rd Wednesday, 2-3:30pm


Santa Rosa PD Caregivers Support Group

Group contact: Marie Kay Hansen, 209-836-5494   

Notes: 

  • Email/phone "group contact" to join obtain meeting link

Virtual meetings via video

2nd Tuesday, 9:30-11am

4th Thursday, 11:30am-1pm


Walnut Creek PD Caregivers Support Group

Group contact: Janice Ransley, 925-944-0162

Facilitators:  Jan Alioto, 925-890-8937, and Janice Ransley, 925-944-0162

Notes: 

  • For caregivers living/working in the Walnut Creek area
  • Phone/email "group contact" to join meeting reminder email list and obtain meeting link

Virtual meetings via video

3rd Saturday, 9:30-11am


ATYPICAL PARKINSONISM CAREGIVER-ONLY SUPPORT GROUPS - BAY AREA

Bay Area Lewy Body Dementia Caregiver-Only Support Group 

Group contact: Robin RiddleBrain Support Network, 650-814-0848

Facilitators: Caregivers whose loved ones have passed away and the Lewy body dementia diagnosis was confirmed through brain donation

Notes: 

  • 2021 meeting dates
  • For caregivers coping with Lewy body dementia, Parkinson's disease dementia, and dementia with Lewy bodies who live in Northern or Central California
  • Phone/email "group contact" to join meeting reminder email list and obtain meeting link

Virtual meetings via video or phone

Occasional Sundays, 5-7pm

RSVP: Yes


Bay Area Multiple System Atrophy Caregiver-Only Support Group

Group contact: Robin RiddleBrain Support Network, 650-814-0848

Facilitators: Caregivers whose loved ones have passed away and the multiple system atrophy diagnosis was confirmed through brain donation

Notes: 

  • 2021 meeting dates
  • For caregivers coping with multiple system atrophy, atypical parkinsonism, or Parkinson's Plus who live in Northern or Central California
  • Phone/email "group contact" to join meeting reminder email list and obtain meeting link

Virtual meetings via video or phone

Occasional Sundays, 5-7pm

RSVP: Yes


Bay Area Progressive Supranuclear Palsy and Corticobasal Degeneration Caregiver-Only Support Group

Group contact: Robin RiddleBrain Support Network, 650-814-0848

Facilitators: Caregivers whose loved ones have passed away and the progressive supranuclear palsy or corticobasal degeneration diagnosis was confirmed through brain donation

Notes: 

  • 2021 meeting dates
  • For caregivers coping with progressive supranuclear palsy, corticobasal degeneration, or corticobasal syndrome who live in Northern or Central California
  • Phone/email "group contact" to join meeting reminder email list and obtain meeting link

Virtual meetings via video or phone

Occasional Sundays, 5-7pm

RSVP: Yes


PD CAREGIVER-ONLY SUPPORT GROUPS - NORTHERN AND CENTRAL CALIFORNIA (beyond the Bay Area)

Arroyo Grande Caregivers Only ("North County")

Contact: Kiersten Arnaudin, Coast Caregiver Resource Center, 805-451-2450

Notes:

  • Open discussion over lunch
  • Sponsored by Coast Caregiver Resource Center

Virtual meetings via video

Last Wednesday, 10-11:30am

RSVP: Yes


Auburn PD Caregivers Support Group

Group contact: Karen Hancock, 530-885-0950 

Currently on hiatus


Davis PD Care Partners Support Group

Location: Willow Creek Park, Davis

Contact: Karen Eagan, 530-564-4323

Notes:

  • Masks required

Physically-distanced, outdoor meetings

2nd and 4th Thursdays, 10:30-11:30am


Lodi PD Caregivers Support Group

Group contact: Jean Whitted, cell 209-329-7075

Location:  Grace Point Church, 801 S. Lower Sacramento Rd., Lodi 95242

Physically-distanced meetings

3rd Monday, 10-11am

RSVP: Yes


Sacramento PD Caregivers Lunch Bunch

Contact: Gain Saetern, Del Oro Caregiver Resource Center, 916-728-9333, ext. 109

Virtual meetings via video

3rd Tuesday, 11am-1pm


Santa Barbara Caregivers - Grief Group

Contact: Parkinson Association Santa Barbara, 805-683-1326

Notes:

  • For those who have lost loved ones

Virtual meetings via video

Tuesdays, 11am


Santa Barbara Caregivers Only

Contact: Parkinson Association Santa Barbara, 805-683-1326

Notes:

  • Open discussion

Virtual meetings via video

Tuesdays, 1-2pm



Last updated March 2021 by Stanford Parkinson's Community Outreach. Are you a support group leader who would like to contact us about this page? Email Robin Riddle