Northern California Parkinson's Caregiver-Only Support Groups

Caregivers need to have their own support group meetings or gatherings because they need to vent, share, learn tips and resources, and receive support from others walking the same path. Ideally, a caregiver to someone with Parkinson's Disease can attend a PD-specific caregiver support group. Or someone dealing with Lewy Body Dementia can attend an LBD-specific caregiver support group. And so on.

With the pandemic, many support groups have moved to meet virtually while others have gone on hiatus until in-person meetings can occur once again. Some groups have expanded the number of virtual meetings to provide more support.  Most virtual meetings are using video.  Of course you’ll need to contact the group leader for information on joining the meeting.  Most likely, groups will restrict attendees to the local area.

If you don't see a PD caregiver-only support group in your area, you might look for a caregiver support group.  We have a list of caregiver-only support groups for those dealing with dementia, though most attendees are likely dealing with Alzheimer's Disease.


PD Caregiver-Only Support Groups - Bay Area | Atypical Parkinsonism Caregiver-Only Support Groups - Bay Area | PD Caregiver-Only Support Groups - Northern And Central California (beyond the Bay Area)


PD CAREGIVER-ONLY SUPPORT GROUPS - BAY AREA

Belmont – PD Caregivers Support Group 

Virtual meetings via video

Group contact: Steven Russell, 650-995-6379, Stanford Parkinson’s Community Outreach

Facilitator: Ann Blick Hamer, LCSW

Notes: 

  • Contact group leader to join meeting reminder email list 

1st and 3rd Thursday, 11:30am-1:30pm

RSVP: Yes


Daly City – PD Caregivers Support Group 

Virtual meetings via video

Group contact: Steven Russell, 650-995-6379, Stanford Parkinson’s Community Outreach

Facilitator: Carley Rencher Chen, LCSW

Notes: 

  • Contact group leader to join meeting reminder email list 

2nd and 4th Tuesday, 11:30am-1:30pm

RSVP: Yes


Berkeley – Mild/Moderate Care Partners Support Group 

Virtual meetings via video

Group contact: PD Active, 510-479-6119

Facilitator: Roslyn Kleinsinger, LCSW

2nd Wednesday, 3-5pm


Berkeley – PD Care Partners Support Group 

Virtual meetings via video

Group contact: Joyce Sakai, 510-525-5166

2nd Thursday, 2:30-4:30pm


Brentwood

Group contact: Sue Schnittker, 925-550-2756

Currently on hiatus


Los Altos – PD Caregivers Support Group 

Virtual meetings via video

Group contact: Denise Dagan, 650-867-7419, Stanford Parkinson’s Community Outreach

Facilitator: Susan Weisberg, LCSW  

Notes: 

  • Contact group leader to join meeting reminder email list 

2nd Tuesday, 10:30am-noon

1st, 3rd, and 4th Thursday, 10:30am-noon


Menlo Park – PD Caregivers Support Group 

Virtual meetings via phone or video

Group contact: Robin RiddleStanford Parkinson’s Community Outreach, phone 650-724-6090

Facilitator: Natalie McKelvey, LCSW  

Notes: 

  • Contact group leader to join meeting reminder email list 

1st and 3rd Tuesday, 12:15-1:45pm

RSVP: Yes


Menlo Park – PD Caregivers Support Group 

Virtual meetings via phone or possibly video

Group contact: Robin RiddleStanford Parkinson’s Community Outreach, phone 650-724-6090

Facilitator: Susan Weisberg, LCSW 

Notes: 

  • Contact group leader to join meeting reminder email list 

2nd and 4th Friday, 12:15-1:45pm

RSVP: Yes


Mill Valley – PD Caregivers Break-out Session

Possibly holding virtual meetings via video

Facilitator and group contact: Joann Katz, MFT

4th Friday, 2-3pm


San Jose (The Villages)

Group contact: Alice Pratte, 408-223-8033 

Currently on hiatus


San Jose (Willow Glen) – PD Caregivers Support Group

Virtual meetings via video

Group contact: Charmaine Eng, 408-723-8116 

4th Wednesday, 1:30-3:30pm


Walnut Creek – PD Caregivers Support Group

Group contact: Jan Alioto, 925-890-8937, or Janice Ransley, 925-944-0162

Currently on hiatus


ATYPICAL PARKINSONISM CAREGIVER-ONLY SUPPORT GROUPS - BAY AREA

Lewy Body Dementia Caregiver-Only Support Group 

Virtual meetings via video or phone

Group contact: Robin RiddleBrain Support Network, 650-814-0848

Facilitators: Caregivers whose loved ones have passed away and the Lewy body dementia diagnosis was confirmed through brain donation

Notes: 

Occasional Sundays, 5-7pm

RSVP: Yes


Progressive Supranuclear Palsy and Corticobasal Degeneration Caregiver-Only Support Group

Virtual meetings via video or phone

Group contact: Robin RiddleBrain Support Network, 650-814-0848

Facilitators: Caregivers whose loved ones have passed away and the progressive supranuclear palsy or corticobasal degeneration diagnosis was confirmed through brain donation

Notes: 

Occasional Sundays, 5-7pm

RSVP: Yes


Multiple System Atrophy Caregiver-Only Support Group

Virtual meetings via video or phone

Group contact: Robin RiddleBrain Support Network, 650-814-0848

Facilitators: Caregivers whose loved ones have passed away and the multiple system atrophy diagnosis was confirmed through brain donation

Notes: 

Occasional Sundays, 5-7pm

RSVP: Yes


PD CAREGIVER-ONLY SUPPORT GROUPS - NORTHERN AND CENTRAL CALIFORNIA (beyond the Bay Area)

Auburn

Group contact: Karen Hancock, 530-885-0950 

Currently on hiatus


Davis – PD Care Partners Support Group

Virtual meetings via video

Group contact: Karen Eagan, 530-564-4323 

2nd and 4th Thursdays, 1:30-3pm


Lodi

Group contact: Jean Whitted, 209-368-2809 

Currently on hiatus


Sacramento – PD Caregivers Lunch Bunch

Virtual meetings via video

Group contact: Anne Spaller, MFT, 916-728-9333  

3rd Tuesday, 11am-1pm


Santa Rosa

Virtual meetings via video

Group contact: Marie Kay Hansen, 209-836-5494   

2nd Tuesday, 9:30-11am


Santa Rosa

Virtual meetings via video

Group contact: Marie Kay Hansen, 209-836-5494   

4th Thursday, 11:30am-1pm



Last updated July 2020 by Stanford Parkinson's Community Outreach. Are you a support group leader who would like to contact us about this page? Email Steven Russell