Northern California Parkinson's Caregiver-Only Support Groups

Caregivers need to have their own support group meetings or gatherings because they need to vent, share, learn tips and resources, and receive support from others walking the same path. Ideally, a caregiver to someone with Parkinson's Disease can attend a PD-specific caregiver support group. Or someone dealing with Lewy Body Dementia can attend an LBD-specific caregiver support group. And so on.

With the pandemic, many support groups have moved to meet virtually while others have gone on hiatus until in-person meetings can occur once again. Some groups have expanded the number of virtual meetings to provide more support.  Most virtual meetings are using video.  Of course you’ll need to contact the group leader for information on joining the meeting.  Most likely, groups will restrict attendees to the local area.

If you don't see a PD caregiver-only support group in your area, you might look for a caregiver support group.  We have a list of caregiver-only support groups for those dealing with dementia, though most attendees are likely dealing with Alzheimer's Disease.

PD CAREGIVER-ONLY SUPPORT GROUPS - BAY AREA

Belmont – PD Caregivers Support Group
1st and 3rd Thursday, 11:30am-1:30pm
Virtual meetings via video
RSVP required before each meeting
Contact group leader to join meeting reminder email list 
Group contactSteven Russell, 650-995-6379, Stanford Parkinson’s Community Outreach
Facilitator: Ann Blick Hamer, LCSW


Daly City – PD Caregivers Support Group
2nd and 4th Tuesday, 11:30am-1:30pm
Virtual meetings via video
RSVP required before each meeting
Contact group leader to join meeting reminder email list
Group contactSteven Russell, 650-995-6379, Stanford Parkinson’s Community Outreach
Facilitator: Carley Rencher Chen, LCSW


Berkeley – Mild/Moderate Care Partners Support Group
2nd Wednesday, 3-5pm
Virtual meetings via video
Group contactPD Active, 510-479-6119
Facilitator: Roslyn Kleinsinger, LCSW  


Berkeley – PD Care Partners Support Group
2nd Thursday, 2:30-4:30pm
Virtual meetings via video
Group contactJoyce Sakai, 510-525-5166


Brentwood
Currently on hiatus
Group contactSue Schnittker, 925-550-2756


Los Altos – PD Caregivers Support Group 
2nd Tuesday, 10:30am-noon    
1st, 3rd, and 4th Thursday, 10:30am-noon
Virtual meetings via video
Please contact group leader to join meeting reminder email list
Group contactDenise Dagan, 650-867-7419, Stanford Parkinson’s Community Outreach
Facilitator: Susan Weisberg, LCSW  


Menlo Park – PD Caregivers Support Group 
1st and 3rd Tuesday, 12:15-1:45pm
Virtual meetings via phone or video
RSVP required before each meeting
Contact group leader to join meeting reminder email list
Group contactRobin Riddle, Stanford Parkinson’s Community Outreach, phone 650-724-6090
Facilitator: Natalie McKelvey, LCSW


Menlo Park – PD Caregivers Support Group
2nd and 4th Friday, 12:15-1:45pm
Virtual meetings via phone or possibly video
RSVP required before each meeting
Contact group leader to join meeting reminder email list
Group contact: Robin Riddle, Stanford Parkinson’s Community Outreach, phone 650-724-6090
Facilitator: Susan Weisberg, LCSW 


Mill Valley – PD Caregivers Break-out Session
4th Friday, 2-3pm
Possibly holding virtual meetings via video
Facilitator and group contact: Joann Katz, MFT


San Jose (The Villages)
Currently on hiatus
Group contact: Alice Pratte, 408-223-8033 


San Jose (Willow Glen) – PD Caregivers Support Group
4th Wednesday, 1:30-3:30pm
Virtual meetings via video
Group contact: Charmaine Eng, 408-723-8116 


Walnut Creek – PD Caregivers Support Group
Currently on hiatus
Group contactJan Alioto, 925-890-8937, or Janice Ransley, 925-944-0162


ATYPICAL PARKINSONISM CAREGIVER-ONLY SUPPORT GROUPS - BAY AREA

Lewy Body Dementia Caregiver-Only Support Group 
Occasional Sundays, 5-7pm.  2020 meeting dates 
Virtual meetings via video or phone
RSVP required before each meeting
Contact group leader to join meeting reminder email list
Group contact: Robin RiddleBrain Support Network, 650-814-0848
Facilitators: Caregivers whose loved ones have passed away and the Lewy body dementia diagnosis was confirmed through brain donation


Progressive Supranuclear Palsy and Corticobasal Degeneration Caregiver-Only Support Group
Occasional Sundays, 5-7pm.  2020 meeting dates 
Virtual meetings via phone or video
RSVP required before each meeting
Contact group leader to join meeting reminder email list
Group contact: Robin RiddleBrain Support Network, 650-814-0848
Facilitators: Caregivers whose loved ones have passed away and the progressive supranuclear palsy or corticobasal degeneration diagnosis was confirmed through brain donation


Multiple System Atrophy Caregiver-Only Support Group
Occasional Sundays, 5-7pm.  2020 meeting dates
Virtual meetings via phone or video
RSVP required before each meeting
Contact group leader to join meeting reminder email list
Group contact:Robin RiddleBrain Support Network, 650-814-0848
Facilitators: Caregivers whose loved ones have passed away and the multiple system atrophy diagnosis was confirmed through brain donation

 

PD CAREGIVER-ONLY SUPPORT GROUPS - NORTHERN AND CENTRAL CALIFORNIA (beyond the Bay Area)

Auburn 
Group on hiatus
Group contactKaren Hancock, 530-885-0950 


Davis – PD Care Partners Support Group
2nd and 4th Thursdays, 1:30-3pm
Virtual meetings via video
Group contactKaren Eagan, 530-564-4323 


Lodi 
Group on hiatus 
Group contactJean Whitted, 209-368-2809 


Sacramento – PD Caregivers Lunch Bunch
3rd Tuesday, 11am-1pm
Virtual meetings via video
Group contactAnne Spaller, MFT, 916-728-9333 


Santa Rosa
2nd Tuesday, 9:30-11am
Virtual meetings via video
Group contactMarie Kay Hansen, 209-836-5494 


Santa Rosa
4th Thursday, 11:30am-1pm
Virtual meetings via video
Group contactMarie Kay Hansen, 209-836-5494


Last updated July 2020 by Stanford Parkinson's Community Outreach. Are you a support group leader who would like to contact us about this page? Email Steven Russell