Additional Resources

DIAGNOSTIC AND TREATMENT GUIDELINES FOR PHYSICIANS

For guidelines regarding the evaluation and diagnosis of PANS, please see published PANS Consortium Guidelines:

Clinical Evaluation of Youth with Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS): Recommendations from the PANS 2013 Consortium

Chang K, Frankovich J, Cooperstock M, Cunningham M, Latimer E, Murphy T, Pasternack M, Thienemann M, Williams K, Walter J, Swedo S, and From the PANS Collaborative Consortium. Journal of Child and Adolescent Psychopharmacology. February 2015, 25(1): 3-13. doi:10.1089/cap.2014.0084.

 

For treatment guidelines, please see the Revised Treatment Guidelines Released for Pediatric Acute Onset Neuropsychiatric Syndrome (PANS/PANDAS) published on July 2017 in the Journal of Child and Adolescent Psychopharmacology.

 

SUGGESTED READING MATERIAL FOR PANS PATIENTS & FAMILIES

What to Do When Your Brain Gets Stuck: A Kid's Guide to Overcoming OCD

  • Author: Dawn Huebner, Ph.D.
  • What to Do When Your Temper Flares: A Kid's Guide to Overcoming Problems with Anger

    Author: Dawn Huebner, Ph.D.
  • What to Do When You Dread Your Bed: A Kid's Guide to Overcoming Problems With Sleep

    Author: Dawn Huebner, Ph.D.
  • What to Do When You Worry Too Much: A Kid's Guide to Overcoming Problems With Anxiety

    Author: Dawn Huebner, Ph.D.
  • What to Do When Bad Habits Take Hold: A Kid's Guide to Overcoming Nail Biting and More

    Author: Dawn Huebner, Ph.D.
  • Helping Your Anxious Child: A Step-by-Step Guide for Parents

    Authors: Ronald M. Rapee, Ph.D.; Ann Wignall, D. Psych; Vanessa Cobham, Ph.D. & Heidi Lyneham, Ph.D.
  • Talking Back to OCD

    Authors: John S. March & Chrisitne M. Benton
  • Whole Brain Child: 12 Revolutionary Strategies to Nurture Your Child's Developing Mind, Survive Everyday Parenting Struggles, and Help Your Family Thrive

    Authors: Daniel J. Siegel, M.D. & Tina Bryson, Ph.D.
  • The Explosive Child: A New Approach for Understanding and Parenting Easily Frustrated Chronically Inflexible Children

    Author: Ross W, Greene, Ph.D.
  • Taming the Spirited Child
    Strategies for Parents Challenging Children Without Breaking Their Spirits


    Author: Michael H. Popkin, Ph.D.
 
 

ONLINE RESOURCES

Hospital Education Advocacy Liason (HEAL) Program:

Please click here to access the HEAL Program website and click on Returning to School Handbook (available in English & Spanish) under the Resources for parents section for information regarding IEP/504 plans and information regarding school accomodations. 

Your support leads to advancing scientific discoveries and expanding comprehensive clinical care for PANS patients