Exploring the frontiers of our field.
Integrating Interdisciplinary Teams into the VA Organizational Fabric and Clinical Practices, Stanford University and VA Palo Alto Healthcare System
Karleen Giannitrapani, PhD, MPH, MA is a new Instructor in the Stanford School of Medicine Department of Primary Care and Population Health and the Associate Director of QuIRC, the Quality Improvement Resource Center for Palliative Care supporting Geriatrics and Extended Care (GEC) for the department of Veterans Affairs nationally. She was selected to be one of the six 2020 Research Scholars by the American Academy of Hospice and Palliative Medicine for her project on Integrating interdisciplinary teams into the VA organizational fabric and clinical practices. This award is intended to advance the scientific endeavors of new/early investigators (who have applied for or will shortly apply for a Career Development Award) whose goal is to become independent scientists actively involved in palliative care research.
I Can't Get No Satisfaction Data: The Trials and Tribulations of Obtaining Satisfaction Data in Our Outpatient Palliative Medicine Clinic
There is limited patient satisfaction literature in the Palliative Medicine setting. We developed our own satisfaction survey, since our clinic was too small to use Press Ganey to assess our patient’s satisfaction with care. We also wanted something that would capture video visit data which Press Ganey did not.
We developed a 17-item survey tool. We engaged known patients to pilot our survey for clarity and ease of use. Then our survey was sent to all new patients using the hospital’s secure messaging portal. We created a standardized email with a link to our Qualtrics based survey. Our medical assistants sent the survey through our patient portal within 1-2 weeks of the patient visit. They documented weekly the number of messages sent and those unread. We reviewed weekly the number of responses. Six months in, we revised our process to send emails within two days of the visit.
South Asian Family Approaches to Diseases (SAFAD): A Program to Enhance Caregiving among South Asian Women Living with Breast Cancer
The objective of Dr. Trivedi's Sojourns Scholars Leadership Award project is to develop a culturally attuned web-based behavioral intervention that mitigates the unmet psychosocial and community resource needs of South Asian women living with breast cancer and their caregivers. The proposed project will accomplish this goal in three steps: first, to identify unmet needs and to evaluate culturally attuned resources; second, to use these insights to enhance my existing web-based self-management program to make it culturally attuned; and to evaluate its preliminary impact via a field test. Project findings will support the care of South Asian women living with breast cancer at Stanford Women's Cancer Center, and beyond.
Perioperative Palliative Care Surrounding Cancer Surgery for Patients & Their Family Members
The study goal is to compare surgeon-palliative care team co-management, versus surgeon alone management, of patients and family members preparing for major upper gastrointestinal cancer surgery. The study also aims to explore, using qualitative methods, the impact of surgeon-palliative care team co-management versus surgeon alone management on the perioperative care experience for patients, family members, surgeons, and palliative care clinicians.
Palliative Care Research Resources
- National Palliative Care Research Center (NPCRC) - The mission of the National Palliative Care Research Center (NPCRC) is to strengthen the evidence-based foundation needed for health policy and clinical practice in palliative care medicine by growing and supporting the community of palliative care research scientists and stimulating expanded research and innovation. Specifically, the NPCRC is providing a mechanism to: establish priorities for palliative care research, develop a new generation of researchers in palliative care, and coordinate and support studies focused on improving care for patients and families living with serious illness
- Palliative Care Research Collaborative (PCRC) - The mission of the PCRC is to suppor the conduct of high quality, effective palliative care clinical research by: supporting investigators at all levels of experience in the conduct of clinical studies, conducting national representative, multi-institutional studies that include diverse populations, leveraging standardized data elements and de-identifed palliative care study data repository that amplifies the impact of any single study, and providing methodologic resources, participant access/recruitment, and the experise of the PCRC investigators from multiple disciplines.
- Palliative Care Quality Collaborative (PCQC) - A national palliative care data registry that captures both program and patient-level quality data.