Patient Resources
The following support groups and organizations can help patients and their families manage and cope with neurological disorders and diseases. Alzheimer'sNational Alzheimer's Association The American Brain Tumor Association was founded in 1973 by two families who lost children to brain tumors. They vowed to find answers through research. Today, ABTA is a global organization making major strides by funding brain tumor research and providing the information patients need to make educated decisions about their healthcare. The Acoustic Neuroma Association provides information and support to patients who have been diagnosed with or experienced an acoustic neuroma or other benign problem affecting the cranial nerves. The Brain Tumor Foundation For Children, Inc. is a non-profit volunteer organization whose purposes are to: 1) Provide emotional and informational support to families of children with brain tumors; 2) Promote public education and awareness of the disease; 3) Raise funds to support research for a cure and for improvement in the treatment and the quality of life of the victims of pediatric brain tumor disease. 2231 Perimeter Park Drive, Suite 9 The Brain Tumor Society is an excellent patient and family resource. The Children's Brain Tumor Foundation has information and resources for families facing the challenge of a child with a brain or spinal cord tumor. 274 Madison Avenue, Suite 1301 The National Brain Tumor Foundation (NBTF) is a non-profit organization whose mission is to provide resources, information, and support to people whose lives are affected by brain tumor disease and to fund brain tumor research. 785 Market Street, Suite 1600 The Epilepsy Foundation works for children and adults affected by seizures through research, education, advocacy and service. 4351 Garden City Drive The American Pain Foundation mission is to improve the quality of life of people with pain by providing practical information for patients, raising public awareness and understanding of pain, and advocating against barriers to effective treatment. National Parkinson Foundation, Inc. 1501 NW 9th Avenue (Bob Hope Road) The American Parkinson's Disease Association, Inc. lists various chapter locations located throughout the United States. 1250 Hylan Blvd., Suite 4B Lucile Packard Children's Hospital has named pediatric neurosurgery as one of its Centers of Excellence . Pediatric neurosurgery is a model for clinical care and the improvement of children's health. American Society of Pediatric Neurosurgeons Childhood Brain Tumor Foundation Pediatric Brain Tumor Foundation of the United States World Arnold-Chiari Malformation Association The Pituitary Network Association (PNA) is an international non-profit organization for patients with pituitary tumors and disorders, their families, loved ones, and the physicians and health care providers who treat them. P.O. Box 1958 American Heart Association National Center The Children's Hemiplegia and Stroke Association (CHASA) BrainTraumaBrain Injury Association, Inc. 105 North Alfred Street Von Hippel-Lindau Disease Family Alliance is dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by von Hippel-Lindau disease. |
