The Stanford Neuromuscular Disorders Program News & Events

Events

2018

January

February

2/11, 9:00 AM – 3:30 PM, Stanford 5th Annual Myotonic Dystrophy Family Meeting, Mitchell Park Community Center, Palo Alto, CA, John W. Day, MD, PhD and Stanford DM experts presenting

2/13, 6:00 PM – 7:30 PM, Myasthenia Gravis Support Group,  Stanford Neuroscience Health Center, Wellness Room, 1st Floor, Palo Alto, CA

May

 5/15, 6:00 PM – 7:30 PM, Myasthenia Gravis Support Group,  Stanford Neuroscience Health Center, Wellness Room, 1st Floor, Palo Alto, CA

5/19, Stanford Spinal Muscular Atrophy Family Conference, Palo Alto, CA (location TBD)

August

8/14, 6:00 PM – 7:30 PM, Myasthenia Gravis Support Group,  Stanford Neuroscience Health Center, Wellness Room, 1st Floor, Palo Alto, CA

September

T.B.D.  Stanford and CMT Association CMT Conference, Palo Alto CA

October

T.B.D Stanford's Breakthroughs in Neurology, Dr. John Day speaking

November

11/03  Stanford Neuromuscular Program and Parent Project MD, host the End Duchenne Tour, Family Meeting, Mitchell Park Community Center, Palo Alto,

11/06, 6:00 PM – 7:30 PM, Myasthenia Gravis Support Group,  Stanford Neuroscience Health Center, Wellness Room, 1st Floor, Palo Alto, CA

Neuromuscular Videos

John Day, Professor of Neurology, discusses amotrophic lateral sclerosis (ALS) in this news segment.

Neuromuscular Support Groups

CMT Support Group Dates for 2017

When: 11 am – 1:00 pm
Where: Stanford Neuroscience Building, Wellness Room, 1st Floor, 213 Quarry, Palo Alto

January 14: Guest Speaker: Martin Simenc, founder of Home Safety Products, will speak on making home modifications. For more info about Home Safety Products, visit http:// www.homesafety.net/

March 11: Speaker: Arnie Davis of Davis Foot Comfort Center in San Francisco will present on finding the right shoes, and his work with custom adjustments for shoes to address our funky feet.

May 13: Christy Vitiello, an acupuncturist, will speak on how acupuncture can improve some CMT symptoms. Her practice is in San Francisco. Christy will share with us the benefits of acupuncture and some recommendations for finding the right acupuncturist for you. http:// www.cv-acupuncture.com/

July 8: t.b.d. 

September 3: Annual Walk to Run 4 CMT.  

November 11: t.b.d.

Myasthenia Gravis Support Group Dates for 2017

When: 6pm-7:30 pm
Where: Stanford Neuroscience Building, Wellness Room, 1st Floor, 213 Quarry, Palo Alto

February, 21: Guest Speaker: Sarah Strandberg, Speech & Language Pathologist, Stanford

April 11: no speakers

July 11: speaker tbd

October 10: speaker tbd

ALS Ice Bucket Challenge

Neuromuscular Multidisciplinary Clinic responds to Ice Bucket Challenge

California Pacific Medical Center’s Forbes Norris MDA ALS Research Center challenged Stanford’s Neuromuscular Multidisciplinary Clinic to the Ice Bucket Challenge. Yesterday more than 30 people from the Neurosciences Department, the Rehabilitation Department, the construction team for the new Hoover Two building project, the Integrative Medicine team and the business development team joined the Neuromuscular Team to respond to the challenge. Neuromuscular Clinic Director, John W. Day, MD, PhD, said a few words about the need for ALS research funding and challenged several other teams to do the Ice Bucket Challenge. Stanford’s Neuromuscular Multidisciplinary clinic cares for ALS patients and their families and is involved in ALS research. For more information about ALS and the Ice Bucket Challenge visit icebucketchallenge.org.

Stanford team at the Myotonic Dystrophy Foundation conference

Outreach Coordinator, Jennifer Fisher, crossing the finish line at the ALS Walk

Dr. Jacinda Sampson and Janis Kitsua-Lowe (Peds. OT) at the MDA Walk in San Jose

SHC Team Participates in MDA Muscle Walk 2013

Stanford Hospital & Clinics was well represented at the MDA Muscle Walk. SHC participants (pictured above, L to R) included Margaret Dougherty, OTR, Sarada Sakamuri, MD, Michelene Oberst, MSW, Julie Mello, PT, Jennifer Fisher, Community Liaison, John Day, MD, Director of Neuromuscular Program. The MDA Muscle Walk® is a series of local walk events across the country held to pay tribute to and raise funds for children and adults served by the Muscular Dystrophy Association.

Questions about events?

Jennifer Fisher, Neuromuscular Community Outreach Liaison
T: (650) 497-5934 
jnfisher@stanford.edu