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Characterization of Pulmonary Artery Stenoses in Alagille Syndrome - a Medical Record Review
Not Recruiting
Trial ID: NCT01515631
Purpose
Patients who have Alagille Syndrome (AGS) also frequently have blockages (or "stenoses") of
their pulmonary arteries. Little is known about the degree or variability of these stenoses,
or the effect of this disease on the right ventricle (the chamber of the heart which pumps
blood to the lungs). This study will first quantify and describe pulmonary artery stenosis in
patients with Alagille Syndrome. The study will also assess the effect of these stenoses on
the right ventricle. The investigators hope to learn the degree and characteristics of
pulmonary artery stenosis in Alagille Syndrome. The investigators also hope to learn the
effect of this pulmonary artery stenosis on the right ventricle in patients with Alagille
Syndrome. This information is critical in the management of patients with Alagille syndrome,
as there is currently no data to guide clinicians on the management of pulmonary artery
stenosis. Furthermore, the information from this study may help physicians manage pulmonary
artery stenosis in other patients as well.
Official Title
Characterization of Pulmonary Artery Stenoses in Alagille Syndrome - a Medical Record
Not Recruiting
Contact Information
Stanford University
School of Medicine
300 Pasteur Drive
Stanford,
CA
94305
Jeffrey Feinstein, MD, MPH
650 723 7913