Stanford Center for Excellence in Pulmonary Biology
Neuromuscular Disorders
Neuromuscular Disorders: Program Overview
For patients experiencing difficulty breathing or prolonged respiratory illnesses, the cause may be respiratory insufficiency and muscle weakness caused by a neuromuscular disorder like muscular dystrophy or congenital myopathy.
Neuromuscular conditions often lead to respiratory complications. Respiratory insufficiency may be unrecognized or diagnosed late once respiratory failure has already ensued.
Our multidisciplinary team of experts can help assess, diagnose and manage respiratory complications from these conditions and improve breathing and overall health. We provide personalized care based on national/international guidelines and expert opinion. Our team takes a proactive approach with a goal to maintain pulmonary health and good quality of life. We also participate in cutting-edge clinical trials and other important research to help develop new therapies and work toward cures.
Meet Our Care Team
The Multidisciplinary Program for Neuromuscular Disorders is comprised of providers from the Pediatric Pulmonary Medicine and Pediatric Nuerology Divisions who are dedicated to pulmonary and respiratory health:
- Pediatric Pulmonologist
- Pediatric Neurologist
- Registered Nurse
- Respiratory Therapist
- Registered Dietician
- Physical Therapist
- Speech and Language Pathologist
- Occupational Therapist
- Genetic Counselor
- Advanced License Social Worker
- Research Assistant
Our Services
The Multidisciplinary Program in Neuromuscular Disorders and Respiratory Complications provides the following services:
- Comprehensive evaluation to determine what’s causing the breathing difficulty and map out a treatment plan.
- Lung function testing (See link below)
- Sleep studies to assess and help improve sleep quality (See link below)
- Airway clearance treatment training and follow-up care
- Nutrition Counseling
- Assisted Ventilation
- Bronchoscopy (Airway examination)
- Lung imaging
Physician Team Leaders
Dr. My My Buu
Dr. MyMy Buu is a board certified pediatric pulmonologist and specializes in the treatment of pediatric lung diseases including chronic respiratory failure and neuromuscular weakness. She has practiced pediatrics and pediatric pulmonary for more than 10 years.
Dr. Buu is dedicated to caring for children with chronic disease and special health care needs. She has extensive experience working in multidisciplinary care teams. She is the Pediatric Pulmonary Team Leader in the Neuromuscular Disorders Program and Aerodigestive Program. Her scholarly work has been focused on pediatric health in vulnerable communities.